J Biomed Inform - The ISO/IEC 11179 norm for metadata registries: does it cover healthcare standards in empirical research?

Tópicos

{ data(3963) clinic(1234) research(1004) }
{ ehr(2073) health(1662) electron(1139) }
{ concept(1167) ontolog(924) domain(897) }
{ health(3367) inform(1360) care(1135) }
{ structur(1116) can(940) graph(676) }
{ first(2504) two(1366) second(1323) }
{ can(774) often(719) complex(702) }
{ data(1737) use(1416) pattern(1282) }
{ medic(1828) order(1363) alert(1069) }
{ use(2086) technolog(871) perceiv(783) }
{ estim(2440) model(1874) function(577) }
{ sequenc(1873) structur(1644) protein(1328) }
{ assess(1506) score(1403) qualiti(1306) }
{ featur(3375) classif(2383) classifi(1994) }
{ design(1359) user(1324) use(1319) }
{ general(901) number(790) one(736) }
{ system(1976) rule(880) can(841) }
{ measur(2081) correl(1212) valu(896) }
{ imag(2830) propos(1344) filter(1198) }
{ network(2748) neural(1063) input(814) }
{ patient(2315) diseas(1263) diabet(1191) }
{ chang(1828) time(1643) increas(1301) }
{ learn(2355) train(1041) set(1003) }
{ clinic(1479) use(1117) guidelin(835) }
{ method(984) reconstruct(947) comput(926) }
{ case(1353) use(1143) diagnosi(1136) }
{ perform(999) metric(946) measur(919) }
{ system(1050) medic(1026) inform(1018) }
{ import(1318) role(1303) understand(862) }
{ model(2341) predict(2261) use(1141) }
{ compound(1573) activ(1297) structur(1058) }
{ spatial(1525) area(1432) region(1030) }
{ model(3480) simul(1196) paramet(876) }
{ data(2317) use(1299) case(1017) }
{ can(981) present(881) function(850) }
{ high(1669) rate(1365) level(1280) }
{ survey(1388) particip(1329) question(1065) }
{ method(2212) result(1239) propos(1039) }
{ model(3404) distribut(989) bayesian(671) }
{ imag(1947) propos(1133) code(1026) }
{ inform(2794) health(2639) internet(1427) }
{ imag(1057) registr(996) error(939) }
{ bind(1733) structur(1185) ligand(1036) }
{ method(1219) similar(1157) match(930) }
{ imag(2675) segment(2577) method(1081) }
{ take(945) account(800) differ(722) }
{ studi(2440) review(1878) systemat(933) }
{ motion(1329) object(1292) video(1091) }
{ treatment(1704) effect(941) patient(846) }
{ surgeri(1148) surgic(1085) robot(1054) }
{ framework(1458) process(801) describ(734) }
{ problem(2511) optim(1539) algorithm(950) }
{ error(1145) method(1030) estim(1020) }
{ algorithm(1844) comput(1787) effici(935) }
{ extract(1171) text(1153) clinic(932) }
{ method(1557) propos(1049) approach(1037) }
{ data(1714) softwar(1251) tool(1186) }
{ control(1307) perform(991) simul(935) }
{ model(2220) cell(1177) simul(1124) }
{ care(1570) inform(1187) nurs(1089) }
{ search(2224) databas(1162) retriev(909) }
{ featur(1941) imag(1645) propos(1176) }
{ howev(809) still(633) remain(590) }
{ studi(1410) differ(1259) use(1210) }
{ risk(3053) factor(974) diseas(938) }
{ research(1085) discuss(1038) issu(1018) }
{ visual(1396) interact(850) tool(830) }
{ perform(1367) use(1326) method(1137) }
{ studi(1119) effect(1106) posit(819) }
{ blood(1257) pressur(1144) flow(957) }
{ record(1888) medic(1808) patient(1693) }
{ monitor(1329) mobil(1314) devic(1160) }
{ state(1844) use(1261) util(961) }
{ research(1218) medic(880) student(794) }
{ patient(2837) hospit(1953) medic(668) }
{ model(2656) set(1616) predict(1553) }
{ age(1611) year(1155) adult(843) }
{ signal(2180) analysi(812) frequenc(800) }
{ cost(1906) reduc(1198) effect(832) }
{ group(2977) signific(1463) compar(1072) }
{ sampl(1606) size(1419) use(1276) }
{ gene(2352) biolog(1181) express(1162) }
{ data(3008) multipl(1320) sourc(1022) }
{ intervent(3218) particip(2042) group(1664) }
{ activ(1138) subject(705) human(624) }
{ time(1939) patient(1703) rate(768) }
{ patient(1821) servic(1111) care(1106) }
{ analysi(2126) use(1163) compon(1037) }
{ health(1844) social(1437) communiti(874) }
{ cancer(2502) breast(956) screen(824) }
{ use(976) code(926) identifi(902) }
{ use(1733) differ(960) four(931) }
{ drug(1928) target(777) effect(648) }
{ result(1111) use(1088) new(759) }
{ implement(1333) system(1263) develop(1122) }
{ decis(3086) make(1611) patient(1517) }
{ process(1125) use(805) approach(778) }
{ activ(1452) weight(1219) physic(1104) }
{ method(1969) cluster(1462) data(1082) }
{ detect(2391) sensit(1101) algorithm(908) }

Resumo

In order to support empirical medical research concerning reuse and improvement of the expressiveness of study data and hence promote syntactic as well as semantic interoperability, services are required for the maintenance of data element collections. As part of the project for the implementation of a German metadata repository for empirical research we assessed the ability of ISO/IEC 11179 "Information technology - Metadata registries (MDR)" part 3 edition 3 Final Committee Draft "Registry metamodel and basic attributes" to represent healthcare standards. First step of the evaluation was a reformulation of ISO's metamodel with the terms and structures of the different healthcare standards. In a second step, we imported instances of the healthcare standards into a prototypical database implementation representing ISO's metamodel. Whereas the flat structure of disease registries as well as some controlled vocabularies could be easily mapped to the ISO's metamodel, complex structures as used in reference models of electronic health records or classifications could be not exhaustively represented. A logical reconstruction of an application will be needed in order to represent them adequately. Moreover, the correct linkage between elements from ISO/IEC 11179 edition 3 and concepts of classifications remains unclear. We also observed some restrictions of ISO/IEC 11179 edition 3 concerning the representation of items of the Operational Data Model from the Clinical Data Interchange Standards Consortium, which might be outside the scope of a MDR. Thus, despite the obvious strength of the ISO/IEC 11179 edition 3 for metadata registries, some issues should be considered in its further development.

Resumo Limpo

order support empir medic research concern reus improv express studi data henc promot syntact well semant interoper servic requir mainten data element collect part project implement german metadata repositori empir research assess abil isoiec inform technolog metadata registri mdr part edit final committe draft registri metamodel basic attribut repres healthcar standard first step evalu reformul iso metamodel term structur differ healthcar standard second step import instanc healthcar standard prototyp databas implement repres iso metamodel wherea flat structur diseas registri well control vocabulari easili map iso metamodel complex structur use refer model electron health record classif exhaust repres logic reconstruct applic will need order repres adequ moreov correct linkag element isoiec edit concept classif remain unclear also observ restrict isoiec edit concern represent item oper data model clinic data interchang standard consortium might outsid scope mdr thus despit obvious strength isoiec edit metadata registri issu consid develop

Resumos Similares

Int J Med Inform - Harmonization of health data at national level: a pilot study in China. ( 0,785526579599332 )
J Biomed Inform - Integrating clinical research with the Healthcare Enterprise: from the RE-USE project to the EHR4CR platform. ( 0,704428297792896 )
J Am Med Inform Assoc - Exchanging care records using HL7 V3 care provision messages. ( 0,69778656789471 )
J. Med. Internet Res. - Computing health quality measures using Informatics for Integrating Biology and the Bedside. ( 0,668672602125767 )
J Am Med Inform Assoc - Electronic health records based phenotyping in next-generation clinical trials: a perspective from the NIH Health Care Systems Collaboratory. ( 0,665780507000148 )
Methods Inf Med - Development of an open metadata schema for prospective clinical research (openPCR) in China. ( 0,659262328047633 )
BMC Med Inform Decis Mak - Towards plug-and-play integration of archetypes into legacy electronic health record systems: the ArchiMed experience. ( 0,657176257754796 )
Perspect Health Inf Manag - Integrating research data capture into the electronic health record workflow: real-world experience to advance innovation. ( 0,641366477172187 )
AMIA Annu Symp Proc - Using Digital Crumbs from an Electronic Health Record to identify, study and improve health care teams. ( 0,636878457661417 )
AMIA Annu Symp Proc - Demonstrating collect once, use many--assimilating public health secondary data use requirements into an existing Domain Analysis Model. ( 0,632882745644989 )
AMIA Annu Symp Proc - Practical choices for infobutton customization: experience from four sites. ( 0,608413161114761 )
Appl Clin Inform - Multilingual Medical Data Models in ODM Format: A Novel Form-based Approach to Semantic Interoperability between Routine Healthcare and Clinical Research. ( 0,607658788042533 )
J Med Syst - Performance assessment of EMR systems based on post-relational database. ( 0,607445863422386 )
Int J Med Inform - Open data in public health surveillance systems: a case study using the French Sentinelles network. ( 0,606735395780233 )
J Biomed Inform - Defining and measuring completeness of electronic health records for secondary use. ( 0,605722125117228 )
AMIA Annu Symp Proc - Electronic laboratory data quality and the value of a health information exchange to support public health reporting processes. ( 0,605708361657495 )
AMIA Annu Symp Proc - Comparison of SNOMED CT versus Medcin terminology concept coverage for mild Traumatic Brain Injury. ( 0,60017952389932 )
J Biomed Inform - Integrating electronic health record information to support integrated care: practical application of ontologies to improve the accuracy of diabetes disease registers. ( 0,598758387416385 )
BMC Med Inform Decis Mak - Developing an electronic health record (EHR) for methadone treatment recording and decision support. ( 0,598157665842433 )
J Biomed Inform - An ontological modeling approach to cerebrovascular disease studies: the NEUROWEB case. ( 0,596334428861981 )
J Biomed Inform - An approach for the semantic interoperability of ISO EN 13606 and OpenEHR archetypes. ( 0,5927600005982 )
J Chem Inf Model - How does the quality of phospholipidosis data influence the predictivity of structural alerts? ( 0,586592574286983 )
Int J Med Inform - Understanding data requirements of retrospective studies. ( 0,584438612581038 )
Perspect Health Inf Manag - Adoption and utilization of electronic health record systems by long-term care facilities in Texas. ( 0,584308309696166 )
Methods Inf Med - Harmonization of detailed clinical models with clinical study data standards. ( 0,583483901345625 )
AMIA Annu Symp Proc - Standardized mapping of nursing assessments across 59 U.S. military treatment facilities. ( 0,582447712374426 )
J Am Med Inform Assoc - National-scale clinical information exchange in the United Kingdom: lessons for the United States. ( 0,581526897316662 )
J Biomed Inform - The National Institutes of Health's Biomedical Translational Research Information System (BTRIS): design, contents, functionality and experience to date. ( 0,580341454682257 )
AMIA Annu Symp Proc - OPIC: Ontology-driven Patient Information Capturing system for epilepsy. ( 0,579238774025182 )
J Am Med Inform Assoc - Mapping clinical phenotype data elements to standardized metadata repositories and controlled terminologies: the eMERGE Network experience. ( 0,574433243965354 )
BMC Med Inform Decis Mak - An evaluation of data quality in Canada's Continuing Care Reporting System (CCRS): secondary analyses of Ontario data submitted between 1996 and 2011. ( 0,57229719224432 )
AMIA Annu Symp Proc - Leveraging standards to support patient-centric interdisciplinary plans of care. ( 0,571026920496321 )
J Am Med Inform Assoc - Agreement of Medicaid claims and electronic health records for assessing preventive care quality among adults. ( 0,568701368198659 )
J Am Med Inform Assoc - Leveraging electronic healthcare record standards and semantic web technologies for the identification of patient cohorts. ( 0,567699501312971 )
J Am Med Inform Assoc - PEDSnet: a National Pediatric Learning Health System. ( 0,567496947942237 )
J Med Syst - Analysis of the EHR systems in Spanish Primary Public Health System: the lack of interoperability. ( 0,566091828973072 )
Appl Clin Inform - Concept and Implementation of a Single Source Information System in Nuclear Medicine for Myocardial Scintigraphy (SPECT-CT data). ( 0,565682815115281 )
J Am Med Inform Assoc - The NIAID Division of AIDS enterprise information system: integrated decision support for global clinical research programs. ( 0,563710379868527 )
J Med Syst - Building clinical data groups for electronic medical record in China. ( 0,560658736865262 )
Int J Med Inform - Applying the archetype approach to the database of a biobank information management system. ( 0,5577634590178 )
J Biomed Inform - Translating standards into practice: experience and lessons learned at the Department of Veterans Affairs. ( 0,556187815518093 )
Comput Methods Programs Biomed - Efficient data management in a large-scale epidemiology research project. ( 0,55467087397464 )
Appl Clin Inform - An empiric analysis of omaha system targets. ( 0,554543103670106 )
J Am Med Inform Assoc - A Dimensional Bus model for integrating clinical and research data. ( 0,551679555740859 )
AMIA Annu Symp Proc - How communities are leveraging the health information technology workforce to implement electronic health records. ( 0,550476578521535 )
Int J Med Inform - Determining the privacy policy deficiencies of health ICT applications through semi-formal modelling. ( 0,548941103945907 )
J Am Med Inform Assoc - Informatics and data quality at collaborative multicenter Breast and Colon Cancer Family Registries. ( 0,548719007463521 )
J Med Syst - Automated mapping of clinical terms into SNOMED-CT. An application to codify procedures in pathology. ( 0,547409058126257 )
AMIA Annu Symp Proc - Meeting the electronic health record meaningful use criterion for the HL7 infobutton standard using OpenInfobutton and the Librarian Infobutton Tailoring Environment (LITE). ( 0,547153978280277 )
J Am Med Inform Assoc - Completeness, accuracy, and computability of National Quality Forum-specified eMeasures. ( 0,545654821402627 )
J Am Med Inform Assoc - Practices and perspectives on building integrated data repositories: results from a 2010 CTSA survey. ( 0,543868776964861 )
AMIA Annu Symp Proc - Timeliness and data element completeness of immunization data in Washington State in 2010: a comparison of data exchange methods. ( 0,543332021284377 )
AMIA Annu Symp Proc - The NIH Office of Rare Diseases Research patient registry Standard: a report from the University of New Mexico's Oculopharyngeal Muscular Dystrophy Patient Registry. ( 0,542796306000911 )
Health Info Libr J - A mapping review of the literature on UK-focused health and social care databases. ( 0,541648043120806 )
J Am Med Inform Assoc - Harmonized patient-reported data elements in the electronic health record: supporting meaningful use by primary care action on health behaviors and key psychosocial factors. ( 0,541318147661361 )
Appl Clin Inform - Diabetes and hypertension quality measurement in four safety-net sites: lessons learned after implementation of the same commercial electronic health record. ( 0,541297676984979 )
J Am Med Inform Assoc - Quality evaluation of value sets from cancer study common data elements using the UMLS semantic groups. ( 0,541271552003016 )
Comput. Biol. Med. - Hyperbolic Dirac Nets for medical decision support. Theory, methods, and comparison with Bayes Nets. ( 0,540328865057209 )
IEEE Trans Vis Comput Graph - 3D Scatterplot Navigation. ( 0,53942673940886 )
AMIA Annu Symp Proc - Development of automated quality reporting: aligning local efforts with national standards. ( 0,539194378106066 )
J Am Med Inform Assoc - Developing a data infrastructure for a learning health system: the PORTAL network. ( 0,53901280574196 )
J Am Med Inform Assoc - Area-level factors associated with electronic health record adoption and meaningful use in the Regional Extension Center Program. ( 0,538220700990237 )
Perspect Health Inf Manag - Leveraging the cloud for electronic health record access. ( 0,538063752819912 )
J Med Syst - Associating clinical archetypes through UMLS Metathesaurus term clusters. ( 0,537924677430416 )
J Biomed Inform - Clinical data interoperability based on archetype transformation. ( 0,536110803476423 )
J Biomed Inform - Implementing standards for the interoperability among healthcare providers in the public regionalized Healthcare Information System of the Lombardy Region. ( 0,535958997519787 )
Perspect Health Inf Manag - Digital family histories for data mining. ( 0,535432207298737 )
BMC Med Inform Decis Mak - A user-friendly tool to transform large scale administrative data into wide table format using a MapReduce program with a Pig Latin based script. ( 0,534485236352143 )
J Am Med Inform Assoc - Facility characteristics associated with the use of electronic health records in residential care facilities. ( 0,533905041316057 )
Appl Clin Inform - Physician beliefs about the impact of meaningful use of the EHR: a cross-sectional study. ( 0,532607137628628 )
J Biomed Inform - A multi-technique approach to bridge electronic case report form design and data standard adoption. ( 0,531483360913283 )
AMIA Annu Symp Proc - A semantic and syntactic text simplification tool for health content. ( 0,53036970733517 )
AMIA Annu Symp Proc - Impacts of EHR Certification and Meaningful Use Implementation on an Integrated Delivery Network. ( 0,529985707067083 )
Perspect Health Inf Manag - Personal health records: is rapid adoption hindering interoperability? ( 0,529642688975796 )
IEEE J Biomed Health Inform - On the seamless, harmonized use of ISO/IEEE11073 and openEHR. ( 0,529637954843292 )
J Am Med Inform Assoc - Sharing behavioral data through a grid infrastructure using data standards. ( 0,529000594671227 )
J Am Med Inform Assoc - Patient safety goals for the proposed Federal Health Information Technology Safety Center. ( 0,527903368351965 )
AMIA Annu Symp Proc - An application for monitoring order set usage in a commercial electronic health record. ( 0,527493494659537 )
J Biomed Inform - The utility of general purpose versus specialty clinical databases for research: warfarin dose estimation from extracted clinical variables. ( 0,527400597464318 )
J Med Syst - Managing repeat digital radiography images-a systematic approach and improvement. ( 0,527185570866411 )
AMIA Annu Symp Proc - Adapting a Clinical Data Repository to ICD-10-CM through the use of a Terminology Repository. ( 0,52525709527117 )
J Am Med Inform Assoc - The ADVANCE network: accelerating data value across a national community health center network. ( 0,524466964205255 )
J Biomed Inform - Incorporating personalized gene sequence variants, molecular genetics knowledge, and health knowledge into an EHR prototype based on the Continuity of Care Record standard. ( 0,523796689942122 )
Inform Health Soc Care - A study on people's concepts associating community health exam interventions with their participation in future health examinations. ( 0,523627152306539 )
J Biomed Inform - Feasibility of encoding the Institute for Clinical Systems Improvement Depression Guideline using the Omaha System. ( 0,522828252087155 )
AMIA Annu Symp Proc - Assessing readiness for meeting meaningful use: identifying electronic health record functionality and measuring levels of adoption. ( 0,521392647478035 )
AMIA Annu Symp Proc - The Knowledge Program: an innovative, comprehensive electronic data capture system and warehouse. ( 0,520812140143353 )
J Am Med Inform Assoc - Normalization and standardization of electronic health records for high-throughput phenotyping: the SHARPn consortium. ( 0,520366702426377 )
J Biomed Inform - SNOMED CT module-driven clinical archetype management. ( 0,518771455691535 )
J Am Med Inform Assoc - Don't take your EHR to heaven, donate it to science: legal and research policies for EHR post mortem. ( 0,51866531415296 )
AMIA Annu Symp Proc - Could Patient Self-reported Health Data Complement EHR for Phenotyping? ( 0,518570071445111 )
J Med Syst - Linkage of data from diverse data sources (LDS): a data combination model provides clinical data of corresponding specimens in biobanking information system. ( 0,517873509438548 )
J Am Med Inform Assoc - Informatics and operations--let's get integrated. ( 0,517795497335953 )
J Med Syst - Organization's quality maturity as a vehicle for EHR success. ( 0,517776837925057 )
Inform Health Soc Care - Assessment of environmental health risks is feasible by secondary use of administrative registers. ( 0,517718354933337 )
Methods Inf Med - SS-MIX: a ministry project to promote standardized healthcare information exchange. ( 0,517484949912968 )
J Am Med Inform Assoc - Are Meaningful Use Stage 2 certified EHRs ready for interoperability? Findings from the SMART C-CDA Collaborative. ( 0,517143177288438 )
Int J Med Inform - Do service innovations influence the adoption of electronic health records in long-term care organizations? Results from the U.S. National Survey of Residential Care Facilities. ( 0,517135054694507 )
J Am Med Inform Assoc - Exploring the sociotechnical intersection of patient safety and electronic health record implementation. ( 0,515478541731896 )
AMIA Annu Symp Proc - Desiderata for healthcare integrated data repositories based on architectural comparison of three public repositories. ( 0,514260526631848 )