AMIA Annu Symp Proc - Probing the benefits of real-time tracking during cancer care.

Tópicos

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Resumo

People with cancer experience many unanticipated symptoms and struggle to communicate them to clinicians. Although researchers have developed patient-reported outcome (PRO) tools to address this problem, such tools capture retrospective data intended for clinicians to review. In contrast, real-time tracking tools with visible results for patients could improve health outcomes and communication with clinicians, while also enhancing patients' symptom management. To understand potential benefits of such tools, we studied the tracking behaviors of 25 women with breast cancer. We provided 10 of these participants with a real-time tracking tool that served as a "technology probe" to uncover behaviors and benefits from voluntary use. Our findings showed that while patients' tracking behaviors without a tool were fragmented and sporadic, these behaviors with a tool were more consistent. Participants also used tracked data to see patterns among symptoms, feel psychosocial comfort, and improve symptom communication with clinicians. We conclude with design implications for future real-time tracking tools.

Resumo Limpo

peopl cancer experi mani unanticip symptom struggl communic clinician although research develop patientreport outcom pro tool address problem tool captur retrospect data intend clinician review contrast realtim track tool visibl result patient improv health outcom communic clinician also enhanc patient symptom manag understand potenti benefit tool studi track behavior women breast cancer provid particip realtim track tool serv technolog probe uncov behavior benefit voluntari use find show patient track behavior without tool fragment sporad behavior tool consist particip also use track data see pattern among symptom feel psychosoci comfort improv symptom communic clinician conclud design implic futur realtim track tool

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