J Telemed Telecare - Use of home telehealth in palliative cancer care: a case study.

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Resumo

We conducted a mixed-methods case study to explore the perceptions of family caregivers and palliative cancer patients of home telehealth, and their experience with it. The intervention in the randomized controlled trial from which study participants were selected consisted of specialist nurses available 24 hours per day who communicated with patients and families using videophones, with optional remote monitoring. Qualitative data were collected from interviews with five patient/caregiver dyads and seven bereaved family caregivers, direct observation and nursing documentation. Quantitative data were collected from computerized nursing documentation and analyzed for patterns of use. During the study there were 255 contacts, including videophone, telephone or face-to-face visits, between tele-nurses and families. Overall the patients, family caregivers and tele-nurses felt that home telehealth enabled family caregiving, citing increased access to care, and patient and family caregiver reassurance. Pain management was the most common reason for initiating contact with the nurse, followed by emotional support. Concerns included lack of integration of services, inappropriate timing of the intervention and technical problems. The case study confirmed the importance of timely and accessible care for a group of clinically vulnerable, dying cancer patients and their family caregivers.

Resumo Limpo

conduct mixedmethod case studi explor percept famili caregiv palliat cancer patient home telehealth experi intervent random control trial studi particip select consist specialist nurs avail hour per day communic patient famili use videophon option remot monitor qualit data collect interview five patientcaregiv dyad seven bereav famili caregiv direct observ nurs document quantit data collect computer nurs document analyz pattern use studi contact includ videophon telephon facetofac visit telenurs famili overal patient famili caregiv telenurs felt home telehealth enabl famili caregiv cite increas access care patient famili caregiv reassur pain manag common reason initi contact nurs follow emot support concern includ lack integr servic inappropri time intervent technic problem case studi confirm import time access care group clinic vulner die cancer patient famili caregiv

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