J Telemed Telecare - A pilot study of the effectiveness of home teleconsultations in paediatric palliative care.

Tópicos

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Resumo

We conducted a pilot study to investigate the effectiveness of a home telehealth service for paediatric palliative care consultations. Over a 10 week period, 14 of the 17 caregivers approached to be part of the study agreed to participate. Families were allocated, non-randomly, to a control group (usual care) or an intervention group (usual care with the addition of home telehealth consultations). The primary outcome measure was quality-of-life score. Caregivers were surveyed for up to 99 days following recruitment. A descriptive analysis of the quality-of-life data showed no differences between caregivers in the two groups. However, important lessons were learnt regarding factors which influence the success of studies in this population group, and the domains of caregiver quality-of-life that warrant intervention. Palliative care is complex, and multiple interventions and supports are required if care is to be managed at home. Home telehealth consultations are a feasible and acceptable means of facilitating a palliative care consultation which can reduce the burden on families at a distressing time.

Resumo Limpo

conduct pilot studi investig effect home telehealth servic paediatr palliat care consult week period caregiv approach part studi agre particip famili alloc nonrandom control group usual care intervent group usual care addit home telehealth consult primari outcom measur qualityoflif score caregiv survey day follow recruit descript analysi qualityoflif data show differ caregiv two group howev import lesson learnt regard factor influenc success studi popul group domain caregiv qualityoflif warrant intervent palliat care complex multipl intervent support requir care manag home home telehealth consult feasibl accept mean facilit palliat care consult can reduc burden famili distress time

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