BMC Med Inform Decis Mak - A community assessment of privacy preserving techniques for human genomes.

Tópicos

{ data(3008) multipl(1320) sourc(1022) }
{ implement(1333) system(1263) develop(1122) }
{ system(1050) medic(1026) inform(1018) }
{ health(1844) social(1437) communiti(874) }
{ sequenc(1873) structur(1644) protein(1328) }
{ data(1737) use(1416) pattern(1282) }
{ concept(1167) ontolog(924) domain(897) }
{ studi(1119) effect(1106) posit(819) }
{ assess(1506) score(1403) qualiti(1306) }
{ learn(2355) train(1041) set(1003) }
{ algorithm(1844) comput(1787) effici(935) }
{ care(1570) inform(1187) nurs(1089) }
{ research(1218) medic(880) student(794) }
{ data(2317) use(1299) case(1017) }
{ activ(1138) subject(705) human(624) }
{ high(1669) rate(1365) level(1280) }
{ result(1111) use(1088) new(759) }
{ imag(2830) propos(1344) filter(1198) }
{ treatment(1704) effect(941) patient(846) }
{ framework(1458) process(801) describ(734) }
{ problem(2511) optim(1539) algorithm(950) }
{ case(1353) use(1143) diagnosi(1136) }
{ perform(1367) use(1326) method(1137) }
{ group(2977) signific(1463) compar(1072) }
{ first(2504) two(1366) second(1323) }
{ patient(1821) servic(1111) care(1106) }
{ use(1733) differ(960) four(931) }
{ model(3404) distribut(989) bayesian(671) }
{ can(774) often(719) complex(702) }
{ imag(1947) propos(1133) code(1026) }
{ inform(2794) health(2639) internet(1427) }
{ system(1976) rule(880) can(841) }
{ measur(2081) correl(1212) valu(896) }
{ imag(1057) registr(996) error(939) }
{ bind(1733) structur(1185) ligand(1036) }
{ method(1219) similar(1157) match(930) }
{ featur(3375) classif(2383) classifi(1994) }
{ network(2748) neural(1063) input(814) }
{ imag(2675) segment(2577) method(1081) }
{ patient(2315) diseas(1263) diabet(1191) }
{ take(945) account(800) differ(722) }
{ studi(2440) review(1878) systemat(933) }
{ motion(1329) object(1292) video(1091) }
{ surgeri(1148) surgic(1085) robot(1054) }
{ error(1145) method(1030) estim(1020) }
{ chang(1828) time(1643) increas(1301) }
{ clinic(1479) use(1117) guidelin(835) }
{ extract(1171) text(1153) clinic(932) }
{ method(1557) propos(1049) approach(1037) }
{ data(1714) softwar(1251) tool(1186) }
{ design(1359) user(1324) use(1319) }
{ control(1307) perform(991) simul(935) }
{ model(2220) cell(1177) simul(1124) }
{ general(901) number(790) one(736) }
{ method(984) reconstruct(947) comput(926) }
{ search(2224) databas(1162) retriev(909) }
{ featur(1941) imag(1645) propos(1176) }
{ howev(809) still(633) remain(590) }
{ data(3963) clinic(1234) research(1004) }
{ studi(1410) differ(1259) use(1210) }
{ risk(3053) factor(974) diseas(938) }
{ perform(999) metric(946) measur(919) }
{ research(1085) discuss(1038) issu(1018) }
{ import(1318) role(1303) understand(862) }
{ model(2341) predict(2261) use(1141) }
{ visual(1396) interact(850) tool(830) }
{ compound(1573) activ(1297) structur(1058) }
{ blood(1257) pressur(1144) flow(957) }
{ spatial(1525) area(1432) region(1030) }
{ record(1888) medic(1808) patient(1693) }
{ health(3367) inform(1360) care(1135) }
{ model(3480) simul(1196) paramet(876) }
{ monitor(1329) mobil(1314) devic(1160) }
{ ehr(2073) health(1662) electron(1139) }
{ state(1844) use(1261) util(961) }
{ patient(2837) hospit(1953) medic(668) }
{ model(2656) set(1616) predict(1553) }
{ age(1611) year(1155) adult(843) }
{ medic(1828) order(1363) alert(1069) }
{ signal(2180) analysi(812) frequenc(800) }
{ cost(1906) reduc(1198) effect(832) }
{ sampl(1606) size(1419) use(1276) }
{ gene(2352) biolog(1181) express(1162) }
{ intervent(3218) particip(2042) group(1664) }
{ time(1939) patient(1703) rate(768) }
{ use(2086) technolog(871) perceiv(783) }
{ can(981) present(881) function(850) }
{ analysi(2126) use(1163) compon(1037) }
{ structur(1116) can(940) graph(676) }
{ cancer(2502) breast(956) screen(824) }
{ use(976) code(926) identifi(902) }
{ drug(1928) target(777) effect(648) }
{ survey(1388) particip(1329) question(1065) }
{ estim(2440) model(1874) function(577) }
{ decis(3086) make(1611) patient(1517) }
{ process(1125) use(805) approach(778) }
{ activ(1452) weight(1219) physic(1104) }
{ method(1969) cluster(1462) data(1082) }
{ method(2212) result(1239) propos(1039) }
{ detect(2391) sensit(1101) algorithm(908) }

Resumo

To answer the need for the rigorous protection of biomedical data, we organized the Critical Assessment of Data Privacy and Protection initiative as a community effort to evaluate privacy-preserving dissemination techniques for biomedical data. We focused on the challenge of sharing aggregate human genomic data (e.g., allele frequencies) in a way that preserves the privacy of the data donors, without undermining the utility of genome-wide association studies (GWAS) or impeding their dissemination. Specifically, we designed two problems for disseminating the raw data and the analysis outcome, respectively, based on publicly available data from HapMap and from the Personal Genome Project. A total of six teams participated in the challenges. The final results were presented at a workshop of the iDASH (integrating Data for Analysis, 'anonymization,' and SHaring) National Center for Biomedical Computing. We report the results of the challenge and our findings about the current genome privacy protection techniques.

Resumo Limpo

answer need rigor protect biomed data organ critic assess data privaci protect initi communiti effort evalu privacypreserv dissemin techniqu biomed data focus challeng share aggreg human genom data eg allel frequenc way preserv privaci data donor without undermin util genomewid associ studi gwas imped dissemin specif design two problem dissemin raw data analysi outcom respect base public avail data hapmap person genom project total six team particip challeng final result present workshop idash integr data analysi anonym share nation center biomed comput report result challeng find current genom privaci protect techniqu

Resumos Similares

AMIA Annu Symp Proc - Creating shareable decision support services: an interdisciplinary challenge. ( 0,698122025130588 )
J Integr Bioinform - DBE2 - management of experimental data for the VANTED system. ( 0,69316938904742 )
Int J Med Inform - Development and evaluation of SOA-based AAL services in real-life environments: a case study and lessons learned. ( 0,626704184259054 )
Brief. Bioinformatics - Batch effect removal methods for microarray gene expression data integration: a survey. ( 0,619782992833001 )
Brief. Bioinformatics - Social pathway annotation: extensions of the systems biology metabolic modelling assistant. ( 0,612501665616677 )
Int J Comput Assist Radiol Surg - DICOM relay over the cloud. ( 0,594080261275871 )
J Am Med Inform Assoc - An i2b2-based, generalizable, open source, self-scaling chronic disease registry. ( 0,592747304910279 )
Methods Inf Med - Health data cooperatives - citizen empowerment. ( 0,591211453262116 )
J Med Syst - Federated querying architecture with clinical & translational health IT application. ( 0,588012735326811 )
J Biomed Inform - The linked medical data access control framework. ( 0,587746896249623 )
AMIA Annu Symp Proc - Characterizing the sublanguage of online breast cancer forums for medications, symptoms, and emotions. ( 0,580169575724836 )
J Am Med Inform Assoc - A unified structural/terminological interoperability framework based on LexEVS: application to TRANSFoRm. ( 0,57530310775937 )
BMC Med Inform Decis Mak - Decision support at home (DS@HOME)--system architectures and requirements. ( 0,570743949688298 )
J Am Med Inform Assoc - WHO guidance on electronic systems to manage data for tuberculosis care and control. ( 0,570355286449763 )
Int J Med Inform - Social care informatics as an essential part of holistic health care: a call for action. ( 0,570053336237493 )
J. Med. Internet Res. - Security considerations for e-mental health interventions. ( 0,569715213572031 )
J. Med. Internet Res. - Using social networking to understand social networks: analysis of a mobile phone closed user group used by a Ghanaian health team. ( 0,569468196288522 )
J Biomed Inform - Procurement of shared data instruments for Research Electronic Data Capture (REDCap). ( 0,567624134160122 )
J Am Med Inform Assoc - A qualitative study of the activities performed by people involved in clinical decision support: recommended practices for success. ( 0,566803971456465 )
J Med Syst - Learning from colleagues about healthcare IT implementation and optimization: lessons from a medical informatics listserv. ( 0,565857093438131 )
Appl Clin Inform - The false security of blind dates: chrononymization's lack of impact on data privacy of laboratory data. ( 0,564761742586704 )
Perspect Health Inf Manag - What caused the breach? An examination of use of information technology and health data breaches. ( 0,56457675267053 )
AMIA Annu Symp Proc - Using RxNorm for cross-institutional formulary data normalization within a distributed grid-computing environment. ( 0,562139843008817 )
AMIA Annu Symp Proc - Collaborative development and maintenance of health terminologies. ( 0,56176553168381 )
Int J Med Inform - Processes and outcomes of developing a continuity of care document for use as a personal health record by people living with HIV/AIDS in New York City. ( 0,557417915556649 )
Comput Math Methods Med - Computational modeling of interventions and protective thresholds to prevent disease transmission in deploying populations. ( 0,556299011756491 )
Int J Med Inform - Health information exchange system usage patterns in three communities: practice sites, users, patients, and data. ( 0,556114209995835 )
Telemed J E Health - E-health implementation challenges in Iranian medical centers: a qualitative study in Iran. ( 0,554252441034057 )
Methods Inf Med - What Are Complex eHealth Innovations and How Do You Measure Them? Position Paper. ( 0,5512949635379 )
Methods Inf Med - Potential and requirements of IT for ambient assisted living technologies. Results of a Delphi study. ( 0,549074484929445 )
Brief. Bioinformatics - Comparative genomics approach to detecting split-coding regions in a low-coverage genome: lessons from the chimaera Callorhinchus milii (Holocephali, Chondrichthyes). ( 0,544930026607894 )
Appl Clin Inform - Initial implementation and evaluation of a Hepatitis C treatment clinical decision support system (CDSS): a nurse practitioner-driven quality improvement initiative. ( 0,544346914182702 )
Int J Med Inform - Promoting ICT innovations for the ageing population in Japan. ( 0,542016759150387 )
Telemed J E Health - Electronic prescriptions are slowly spreading in the European Union. ( 0,539762354700988 )
Comput Methods Programs Biomed - Development of an online automatic diagnostic reference levels management system for digital radiography: a pilot experience. ( 0,539533156569035 )
Int J Med Inform - Pilot implementation of health information systems: issues and challenges. ( 0,538897901115217 )
AMIA Annu Symp Proc - Patient informed governance of distributed research networks: results and discussion from six patient focus groups. ( 0,537738146758039 )
Comput. Biol. Med. - NeuPAT: an intranet database supporting translational research in neuroblastic tumors. ( 0,534088660257267 )
J Med Syst - E-Health: a global approach with extensive semantic variation. ( 0,533107450874381 )
Int J Med Inform - Key factors influencing the implementation success of a home telecare application. ( 0,5328812156785 )
J Telemed Telecare - Readiness of health-care institutions in KwaZulu-Natal to implement telepsychiatry. ( 0,532792729578419 )
IEEE J Biomed Health Inform - Semantic Normalization and Query Abstraction Based on SNOMED-CT and HL7: Supporting Multicentric Clinical Trials. ( 0,529616736405476 )
J Biomed Inform - A survey of SNOMED CT implementations. ( 0,529299562286707 )
AMIA Annu Symp Proc - Improving Clinical Data Integrity by using Data Adjudication Techniques for Data Received through a Health Information Exchange (HIE). ( 0,528928262326928 )
Telemed J E Health - An integrated telehealth system for remote administration of an adult autism assessment. ( 0,528485453915243 )
AMIA Annu Symp Proc - Design Considerations for Post-Acute Care mHealth: Patient Perspectives. ( 0,527801064568033 )
J Am Med Inform Assoc - Computerization of workflows, guidelines, and care pathways: a review of implementation challenges for process-oriented health information systems. ( 0,525124129179924 )
BMC Med Inform Decis Mak - Pseudonymization of patient identifiers for translational research. ( 0,524521787116787 )
Health Informatics J - Beyond bureaucracy: emerging trends in social care informatics. ( 0,522331274245215 )
BMC Med Inform Decis Mak - Development and formative evaluation of the e-Health Implementation Toolkit (e-HIT). ( 0,521458235124979 )
J Telemed Telecare - Key challenges in the development and implementation of telehealth projects. ( 0,520599295599967 )
Inform Health Soc Care - A healthcare management system for Turkey based on a service-oriented architecture. ( 0,520232140233943 )
IEEE Trans Image Process - Informative state-based video communication. ( 0,518370653076823 )
Int J Med Inform - Perspectives of Australian adults about protecting the privacy of their health information in statistical databases. ( 0,515954914492885 )
J. Med. Internet Res. - Sociotechnical challenges and progress in using social media for health. ( 0,515430288944344 )
AMIA Annu Symp Proc - Graphical methods for reducing, visualizing and analyzing large data sets using hierarchical terminologies. ( 0,515179578973486 )
J Med Syst - An enhanced security solution for electronic medical records based on AES hybrid technique with SOAP/XML and SHA-1. ( 0,51425212593253 )
BMC Med Inform Decis Mak - Boundaries and e-health implementation in health and social care. ( 0,5128142241066 )
J Integr Bioinform - Quality controls in integrative approaches to detect errors and inconsistencies in biological databases. ( 0,512685286039473 )
AMIA Annu Symp Proc - Implementation of a platform dedicated to the biomedical analysis terminologies management. ( 0,512525066180867 )
IEEE Trans Image Process - MIMO nonlinear ultrasonic tomography by propagation and backpropagation method. ( 0,512515598790515 )
J Am Med Inform Assoc - Auditing the multiply-related concepts within the UMLS. ( 0,511205945320593 )
AMIA Annu Symp Proc - Integration of heterogeneous clinical decision support systems and their knowledge sets: feasibility study with Drug-Drug Interaction alerts. ( 0,510829546883545 )
Sci Data - An extended Arctic proxy temperature database for the past 2,000 years. ( 0,510043862643336 )
Med Decis Making - Multicohort models in cost-effectiveness analysis: why aggregating estimates over multiple cohorts can hide useful information. ( 0,507829195761436 )
J Biomed Inform - Federated Aggregate Cohort Estimator (FACE): an easy to deploy, vendor neutral, multi-institutional cohort query architecture. ( 0,506193952256464 )
J. Med. Internet Res. - Community management that works: how to build and sustain a thriving online health community. ( 0,505783314793521 )
J. Med. Internet Res. - A holistic framework to improve the uptake and impact of eHealth technologies. ( 0,5044903618036 )
Brief. Bioinformatics - Challenges in integrating Escherichia coli molecular biology data. ( 0,502980134701307 )
J Med Syst - HL7 engine module for healthcare information systems. ( 0,50233743161349 )
J Am Med Inform Assoc - Data use and effectiveness in electronic surveillance of healthcare associated infections in the 21st century: a systematic review. ( 0,498838660769499 )
Inform Health Soc Care - Older adults' acceptance of a community-based telehealth wellness system. ( 0,498798072104429 )
J Med Syst - Multiple 3D medical data watermarking for healthcare data management. ( 0,498628507231884 )
Comput Biol Chem - Kernel-based data fusion improves the drug-protein interaction prediction. ( 0,496687727757171 )
Comput Methods Programs Biomed - Systems engineering principles for the design of biomedical signal processing systems. ( 0,495902267824112 )
Telemed J E Health - Transnational comparison: A retrospective study on e-health in sparsely populated areas of the northern periphery. ( 0,495321704574515 )
AMIA Annu Symp Proc - Method for the development of data visualizations for community members with varying levels of health literacy. ( 0,493594487975696 )
Inform Health Soc Care - Relatives and friends queries on a psychologists question and answer forum online - authorship and contents. ( 0,493533539576051 )
Health Info Libr J - Content analysis as a means of exploring research opportunities from a conference programme. ( 0,491291071073571 )
Brief. Bioinformatics - OpenHelix: bioinformatics education outside of a different box. ( 0,491281763115155 )
J Integr Bioinform - WIBL: Workbench for Integrative Biological Learning. ( 0,491270687509149 )
J Am Med Inform Assoc - Using the CER Hub to ensure data quality in a multi-institution smoking cessation study. ( 0,491103471778086 )
IEEE Trans Image Process - Diverse Expected Gradient Active Learning for Relative Attributes. ( 0,490315865158514 )
Telemed J E Health - Post-disaster Gulf Coast recovery using telehealth. ( 0,490046234980575 )
Telemed J E Health - Cyberterrorism: is the U.S. healthcare system safe? ( 0,489563985001552 )
J Med Syst - A non-repudiated and traceable authorization system based on electronic health insurance cards. ( 0,487514949418087 )
Int J Med Inform - A comparative review of patient safety initiatives for national health information technology. ( 0,487187432991193 )
BMC Med Inform Decis Mak - Requirements for guidelines systems: implementation challenges and lessons from existing software-engineering efforts. ( 0,487091232559996 )
AMIA Annu Symp Proc - Predicting Patient's Trajectory of Physiological Data using Temporal Trends in Similar Patients: A System for Near-Term Prognostics. ( 0,486764348588902 )
Geospat Health - GeoMedStat: an integrated spatial surveillance system to track air pollution and associated healthcare events. ( 0,485497823224867 )
J Med Syst - Constructing a model-based software monitor for the insulin pump behavior. ( 0,485205986281578 )
J Am Med Inform Assoc - Pharmacogenomics in the pocket of every patient? A prototype based on quick response codes. ( 0,484167622600177 )
Perspect Health Inf Manag - Commentary on the federal government's role in influencing e-prescribing use and research. ( 0,483679242831042 )
Int J Med Inform - Key IT management issues in hospitals: Results of a Delphi study in Canada. ( 0,482765367521436 )
J Biomed Inform - Using electronic health records for clinical research: the case of the EHR4CR project. ( 0,482574009959851 )
J Biomed Inform - Privacy-preserving record linkage on large real world datasets. ( 0,481466473901795 )
IEEE Trans Image Process - Multimodal graph-based reranking for web image search. ( 0,479419590822448 )
J Am Med Inform Assoc - A study in transfer learning: leveraging data from multiple hospitals to enhance hospital-specific predictions. ( 0,478911081402943 )
Perspect Health Inf Manag - Leadership's role in support of online academic programs: implementing an administrative support matrix. ( 0,478642857467336 )
Methods Inf Med - A pictorial schema for a comprehensive user-oriented identification of medical Apps. ( 0,478559418670274 )