J. Med. Internet Res. - Therapeutic affordances of social media: emergent themes from a global online survey of people with chronic pain.

Tópicos

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Resumo

CKGROUND: Research continues to present tenuous suggestions that social media is well suited to enhance management of chronic disease and improve health outcomes. Various studies have presented qualitative reports of health outcomes from social media use and have examined discourse and communication themes occurring through different social media. However, there is an absence of published studies examining and unpacking the underlying therapeutic mechanisms driving social media's effects.OBJECTIVE: This paper presents a qualitative analysis thoroughly describing what social media therapeutically affords people living with chronic pain who are self-managing their condition. From this therapeutic affordance perspective, we aim to formulate a preliminary conceptual model aimed at better understanding "how" social media can influence patient outcomes.METHODS: In total, 218 people with chronic pain (PWCP) completed an online survey, investigating patient-reported outcomes (PROs) from social media use. Supplementary to quantitative data collected, participants were also given the opportunity to provide further open commentary regarding their use of social media as part of chronic pain management; 68/218 unique users (31.2%) chose to provide these free-text responses. Through thematic content analysis, 117 free-text responses regarding 10 types of social media were coded. Quotes were extracted and tabulated based on therapeutic affordances that we had previously identified. Inductive analysis was then performed to code defining language and emergent themes central to describing each affordance. Three investigators examined the responses, developed the coding scheme, and applied the coding to the data.RESULTS: We extracted 155 quotes from 117 free-text responses. The largest source of quotes came from social network site users (78/155, 50.3%). Analysis of component language used to describe the aforementioned affordances and emergent themes resulted in a final revision and renaming of therapeutic affordances: "exploration" (52/155, 33.5% of quotes), "connection" (50/155, 32.3% of quotes), "narration" (33/155, 21.3% of quotes), "adaptation" (13/155, 8.4% of quotes), and "self-presentation" (7/155, 4.5% of quotes). Of the most described affordances, "exploration" was based on a propensity for participants to explain their social media use for information seeking purposes. "Connection" placed greater emphasis on interaction, highlighting themes of "exchanging information" and "mitigating isolation". Responses regarding "narration" highlighted the value of shared experiences and the emotionally cathartic role this plays.CONCLUSIONS: Much of the efficacy of social media may be explicable via a closer examination of therapeutic affordances. Particular areas that warrant attention include social media's ability to filter and guide people to useful information, connect individuals, and share experiences. Further research into a variety of chronic conditions is warranted. Coupled with the results of the present study, a greater theoretical basis detailing how social media may foster health outcomes may lead to an improved evidence base for conducting research and may inform recommendations for social media use in chronic disease management.

Resumo Limpo

ckground research continu present tenuous suggest social media well suit enhanc manag chronic diseas improv health outcom various studi present qualit report health outcom social media use examin discours communic theme occur differ social media howev absenc publish studi examin unpack under therapeut mechan drive social media effectsobject paper present qualit analysi thorough describ social media therapeut afford peopl live chronic pain selfmanag condit therapeut afford perspect aim formul preliminari conceptu model aim better understand social media can influenc patient outcomesmethod total peopl chronic pain pwcp complet onlin survey investig patientreport outcom pros social media use supplementari quantit data collect particip also given opportun provid open commentari regard use social media part chronic pain manag uniqu user chose provid freetext respons themat content analysi freetext respons regard type social media code quot extract tabul base therapeut afford previous identifi induct analysi perform code defin languag emerg theme central describ afford three investig examin respons develop code scheme appli code dataresult extract quot freetext respons largest sourc quot came social network site user analysi compon languag use describ aforement afford emerg theme result final revis renam therapeut afford explor quot connect quot narrat quot adapt quot selfpresent quot describ afford explor base propens particip explain social media use inform seek purpos connect place greater emphasi interact highlight theme exchang inform mitig isol respons regard narrat highlight valu share experi emot cathart role playsconclus much efficaci social media may explic via closer examin therapeut afford particular area warrant attent includ social media abil filter guid peopl use inform connect individu share experi research varieti chronic condit warrant coupl result present studi greater theoret basi detail social media may foster health outcom may lead improv evid base conduct research may inform recommend social media use chronic diseas manag

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