J. Med. Internet Res. - Emotional approach coping and the effects of online peer-led support group participation among patients with breast cancer: a longitudinal study.

Tópicos

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Resumo

CKGROUND: Previous research on the effects of online peer support on psychological well-being of patients with cancer showed mixed findings. There is a need for longitudinal studies explaining if and when online peer-led support groups are beneficial. How patients cope with emotions that come along with the cancer diagnosis might influence effectiveness of online participation. Emotional approach coping is a construct encompassing the intentional use of emotional processing and emotional expression in efforts to manage adverse circumstances.OBJECTIVE: In this longitudinal study, we hypothesize that mixed findings in previous research are partly caused by individual differences in coping with emotions, which may moderate the effects of online support group participation on patients' well-being.METHODS: A total of 133 Dutch patients with breast cancer filled out a baseline (T0) and a follow-up (T1, 6 months later) questionnaire assessing intensity of online participation within the online support community, emotional approach coping (ie, actively processing and expressing emotions), and psychological well-being (depression, emotional well-being, and breast cancer-related concerns). There were 109 patients who visited an online support community at both points in time. Repeated measures ANOVAs assessed change in well-being over time.RESULTS: Results showed 3-way interactions of time, online intensity of participation, and emotional approach coping on emotional well-being (F1,89=4.232, P=.04, (2) =.045) and depression (F1,88=8.167, P=.005, (2) =.085). Online support group participation increased emotional well-being over time for patients who scored low on emotional approach coping at T0, provided that they were highly active online. Patients who were highly active online with a high score on emotional approach coping reported no change in sense of well-being, but showed the highest score on well-being overall. Participating less frequently online was only beneficial for patients who scored high on emotional approach coping, showing an increase in well-being over time. Patients participating less frequently and with a low score on emotional approach coping reported no significant change in well-being over time.CONCLUSIONS: This study extends previous findings on the effects of online peer support in two ways: by testing changes in well-being as a function of intensity of online support group participation and by examining the role of individual differences in emotional coping styles. Findings showed no negative effects of intense support group participation. Participating frequently online was especially helpful for patients who approach their emotions less actively; their emotional well-being increased over time. In contrast, frequent online users who actively approach their emotions experienced no change in well-being, reporting highest levels of well-being overall. For patients who participate less intensively within the support community, coping style seems to outweigh effects of online participation; over time, patients who actively approached emotions experienced an increase in psychological well-being, whereas patients with a low score on emotional approach coping reported no change in depression and emotional well-being.

Resumo Limpo

ckground previous research effect onlin peer support psycholog wellb patient cancer show mix find need longitudin studi explain onlin peerl support group benefici patient cope emot come along cancer diagnosi might influenc effect onlin particip emot approach cope construct encompass intent use emot process emot express effort manag advers circumstancesobject longitudin studi hypothes mix find previous research part caus individu differ cope emot may moder effect onlin support group particip patient wellbeingmethod total dutch patient breast cancer fill baselin t followup t month later questionnair assess intens onlin particip within onlin support communiti emot approach cope ie activ process express emot psycholog wellb depress emot wellb breast cancerrel concern patient visit onlin support communiti point time repeat measur anova assess chang wellb timeresult result show way interact time onlin intens particip emot approach cope emot wellb f p depress f p onlin support group particip increas emot wellb time patient score low emot approach cope t provid high activ onlin patient high activ onlin high score emot approach cope report chang sens wellb show highest score wellb overal particip less frequent onlin benefici patient score high emot approach cope show increas wellb time patient particip less frequent low score emot approach cope report signific chang wellb timeconclus studi extend previous find effect onlin peer support two way test chang wellb function intens onlin support group particip examin role individu differ emot cope style find show negat effect intens support group particip particip frequent onlin especi help patient approach emot less activ emot wellb increas time contrast frequent onlin user activ approach emot experienc chang wellb report highest level wellb overal patient particip less intens within support communiti cope style seem outweigh effect onlin particip time patient activ approach emot experienc increas psycholog wellb wherea patient low score emot approach cope report chang depress emot wellb

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