J. Med. Internet Res. - Information and communication technology to support self-management of patients with mild acquired cognitive impairments: systematic review.


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CKGROUND: Mild acquired cognitive impairment (MACI) is a new term used to describe a subgroup of patients with mild cognitive impairment (MCI) who are expected to reach a stable cognitive level over time. This patient group is generally young and have acquired MCI from a head injury or mild stroke. Although the past decade has seen a large amount of research on how to use information and communication technology (ICT) to support self-management of patients with chronic diseases, MACI has not received much attention. Therefore, there is a lack of information about what tools have been created and evaluated that are suitable for self-management of MACI patients, and a lack of clear direction on how best to proceed with ICT tools to support self-management of MACI patients.OBJECTIVE: This paper aims to provide direction for further research and development of tools that can support health care professionals in assisting MACI patients with self-management. An overview of studies reporting on the design and/or evaluation of ICT tools for assisting MACI patients in self-management is presented. We also analyze the evidence of benefit provided by these tools, and how their functionality matches MACI patients' needs to determine areas of interest for further research and development.METHODS: A review of the existing literature about available assistive ICT tools for MACI patients was conducted using 8 different medical, scientific, engineering, and physiotherapy library databases. The functionality of tools was analyzed using an analytical framework based on the International Classification of Functioning, Disability and Health (ICF) and a subset of common and important problems for patients with MACI created by MACI experts in Sweden.RESULTS: A total of 55 search phrases applied in the 8 databases returned 5969 articles. After review, 7 articles met the inclusion criteria. Most articles reported case reports and exploratory research. Out of the 7 articles, 4 (57%) studies had less than 10 participants, 5 (71%) technologies were memory aids, and 6 studies were mobile technologies. All 7 studies fit the profile for patients with MACI as described by our analytical framework. However, several areas in the framework important for meeting patient needs were not covered by the functionality in any of the ICT tools.CONCLUSIONS: This study shows a lack of ICT tools developed and evaluated for supporting self-management of MACI patients. Our analytical framework was a valuable tool for providing an overview of how the functionality of these tools matched patient needs. There are a number of important areas for MACI patients that are not covered by the functionality of existing tools, such as support for interpersonal interactions and relationships. Further research on ICT tools to support self-management for patients with MACI is needed.

Resumo Limpo

ckground mild acquir cognit impair maci new term use describ subgroup patient mild cognit impair mci expect reach stabl cognit level time patient group general young acquir mci head injuri mild stroke although past decad seen larg amount research use inform communic technolog ict support selfmanag patient chronic diseas maci receiv much attent therefor lack inform tool creat evalu suitabl selfmanag maci patient lack clear direct best proceed ict tool support selfmanag maci patientsobject paper aim provid direct research develop tool can support health care profession assist maci patient selfmanag overview studi report design andor evalu ict tool assist maci patient selfmanag present also analyz evid benefit provid tool function match maci patient need determin area interest research developmentmethod review exist literatur avail assist ict tool maci patient conduct use differ medic scientif engin physiotherapi librari databas function tool analyz use analyt framework base intern classif function disabl health icf subset common import problem patient maci creat maci expert swedenresult total search phrase appli databas return articl review articl met inclus criteria articl report case report exploratori research articl studi less particip technolog memori aid studi mobil technolog studi fit profil patient maci describ analyt framework howev sever area framework import meet patient need cover function ict toolsconclus studi show lack ict tool develop evalu support selfmanag maci patient analyt framework valuabl tool provid overview function tool match patient need number import area maci patient cover function exist tool support interperson interact relationship research ict tool support selfmanag patient maci need

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