J. Med. Internet Res. - Tailored and integrated Web-based tools for improving psychosocial outcomes of cancer patients: the DoTTI development framework.

Tópicos

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Resumo

CKGROUND: Effective communication with cancer patients and their families about their disease, treatment options, and possible outcomes may improve psychosocial outcomes. However, traditional approaches to providing information to patients, including verbal information and written booklets, have a number of shortcomings centered on their limited ability to meet patient preferences and literacy levels. New-generation Web-based technologies offer an innovative and pragmatic solution for overcoming these limitations by providing a platform for interactive information seeking, information sharing, and user-centered tailoring.OBJECTIVE: The primary goal of this paper is to discuss the advantages of comprehensive and iterative Web-based technologies for health information provision and propose a four-phase framework for the development of Web-based information tools.METHODS: The proposed framework draws on our experience of constructing a Web-based information tool for hematological cancer patients and their families. The framework is based on principles for the development and evaluation of complex interventions and draws on the Agile methodology of software programming that emphasizes collaboration and iteration throughout the development process.RESULTS: The DoTTI framework provides a model for a comprehensive and iterative approach to the development of Web-based informational tools for patients. The process involves 4 phases of development: (1) Design and development, (2) Testing early iterations, (3) Testing for effectiveness, and (4) Integration and implementation. At each step, stakeholders (including researchers, clinicians, consumers, and programmers) are engaged in consultations to review progress, provide feedback on versions of the Web-based tool, and based on feedback, determine the appropriate next steps in development.CONCLUSIONS: This 4-phase framework is evidence-informed and consumer-centered and could be applied widely to develop Web-based programs for a diverse range of diseases.

Resumo Limpo

ckground effect communic cancer patient famili diseas treatment option possibl outcom may improv psychosoci outcom howev tradit approach provid inform patient includ verbal inform written booklet number shortcom center limit abil meet patient prefer literaci level newgener webbas technolog offer innov pragmat solut overcom limit provid platform interact inform seek inform share usercent tailoringobject primari goal paper discuss advantag comprehens iter webbas technolog health inform provis propos fourphas framework develop webbas inform toolsmethod propos framework draw experi construct webbas inform tool hematolog cancer patient famili framework base principl develop evalu complex intervent draw agil methodolog softwar program emphas collabor iter throughout develop processresult dotti framework provid model comprehens iter approach develop webbas inform tool patient process involv phase develop design develop test earli iter test effect integr implement step stakehold includ research clinician consum programm engag consult review progress provid feedback version webbas tool base feedback determin appropri next step developmentconclus phase framework evidenceinform consumercent appli wide develop webbas program divers rang diseas

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