J. Med. Internet Res. - Sources of information and behavioral patterns in online health forums: observational study.

Tópicos

{ health(1844) social(1437) communiti(874) }
{ data(1737) use(1416) pattern(1282) }
{ data(3008) multipl(1320) sourc(1022) }
{ use(2086) technolog(871) perceiv(783) }
{ search(2224) databas(1162) retriev(909) }
{ import(1318) role(1303) understand(862) }
{ time(1939) patient(1703) rate(768) }
{ can(981) present(881) function(850) }
{ first(2504) two(1366) second(1323) }
{ model(3404) distribut(989) bayesian(671) }
{ can(774) often(719) complex(702) }
{ system(1976) rule(880) can(841) }
{ bind(1733) structur(1185) ligand(1036) }
{ general(901) number(790) one(736) }
{ case(1353) use(1143) diagnosi(1136) }
{ howev(809) still(633) remain(590) }
{ research(1085) discuss(1038) issu(1018) }
{ model(3480) simul(1196) paramet(876) }
{ group(2977) signific(1463) compar(1072) }
{ structur(1116) can(940) graph(676) }
{ activ(1452) weight(1219) physic(1104) }
{ method(2212) result(1239) propos(1039) }
{ inform(2794) health(2639) internet(1427) }
{ measur(2081) correl(1212) valu(896) }
{ patient(2315) diseas(1263) diabet(1191) }
{ take(945) account(800) differ(722) }
{ research(1218) medic(880) student(794) }
{ age(1611) year(1155) adult(843) }
{ activ(1138) subject(705) human(624) }
{ analysi(2126) use(1163) compon(1037) }
{ use(976) code(926) identifi(902) }
{ result(1111) use(1088) new(759) }
{ survey(1388) particip(1329) question(1065) }
{ method(1969) cluster(1462) data(1082) }
{ detect(2391) sensit(1101) algorithm(908) }
{ imag(1947) propos(1133) code(1026) }
{ imag(1057) registr(996) error(939) }
{ sequenc(1873) structur(1644) protein(1328) }
{ method(1219) similar(1157) match(930) }
{ featur(3375) classif(2383) classifi(1994) }
{ imag(2830) propos(1344) filter(1198) }
{ network(2748) neural(1063) input(814) }
{ imag(2675) segment(2577) method(1081) }
{ studi(2440) review(1878) systemat(933) }
{ motion(1329) object(1292) video(1091) }
{ assess(1506) score(1403) qualiti(1306) }
{ treatment(1704) effect(941) patient(846) }
{ surgeri(1148) surgic(1085) robot(1054) }
{ framework(1458) process(801) describ(734) }
{ problem(2511) optim(1539) algorithm(950) }
{ error(1145) method(1030) estim(1020) }
{ chang(1828) time(1643) increas(1301) }
{ learn(2355) train(1041) set(1003) }
{ concept(1167) ontolog(924) domain(897) }
{ clinic(1479) use(1117) guidelin(835) }
{ algorithm(1844) comput(1787) effici(935) }
{ extract(1171) text(1153) clinic(932) }
{ method(1557) propos(1049) approach(1037) }
{ data(1714) softwar(1251) tool(1186) }
{ design(1359) user(1324) use(1319) }
{ control(1307) perform(991) simul(935) }
{ model(2220) cell(1177) simul(1124) }
{ care(1570) inform(1187) nurs(1089) }
{ method(984) reconstruct(947) comput(926) }
{ featur(1941) imag(1645) propos(1176) }
{ data(3963) clinic(1234) research(1004) }
{ studi(1410) differ(1259) use(1210) }
{ risk(3053) factor(974) diseas(938) }
{ perform(999) metric(946) measur(919) }
{ system(1050) medic(1026) inform(1018) }
{ model(2341) predict(2261) use(1141) }
{ visual(1396) interact(850) tool(830) }
{ compound(1573) activ(1297) structur(1058) }
{ perform(1367) use(1326) method(1137) }
{ studi(1119) effect(1106) posit(819) }
{ blood(1257) pressur(1144) flow(957) }
{ spatial(1525) area(1432) region(1030) }
{ record(1888) medic(1808) patient(1693) }
{ health(3367) inform(1360) care(1135) }
{ monitor(1329) mobil(1314) devic(1160) }
{ ehr(2073) health(1662) electron(1139) }
{ state(1844) use(1261) util(961) }
{ patient(2837) hospit(1953) medic(668) }
{ model(2656) set(1616) predict(1553) }
{ data(2317) use(1299) case(1017) }
{ medic(1828) order(1363) alert(1069) }
{ signal(2180) analysi(812) frequenc(800) }
{ cost(1906) reduc(1198) effect(832) }
{ sampl(1606) size(1419) use(1276) }
{ gene(2352) biolog(1181) express(1162) }
{ intervent(3218) particip(2042) group(1664) }
{ patient(1821) servic(1111) care(1106) }
{ high(1669) rate(1365) level(1280) }
{ cancer(2502) breast(956) screen(824) }
{ use(1733) differ(960) four(931) }
{ drug(1928) target(777) effect(648) }
{ implement(1333) system(1263) develop(1122) }
{ estim(2440) model(1874) function(577) }
{ decis(3086) make(1611) patient(1517) }
{ process(1125) use(805) approach(778) }

Resumo

CKGROUND: Increasing numbers of patients are raising their voice in online forums. This shift is welcome as an act of patient autonomy, reflected in the term "expert patient". At the same time, there is considerable concern that patients can be easily misguided by pseudoscientific research and debate. Little is known about the sources of information used in health-related online forums, how users apply this information, and how they behave in such forums.OBJECTIVE: The intent of the study was to identify (1) the sources of information used in online health-related forums, and (2) the roles and behavior of active forum visitors in introducing and disseminating this information.METHODS: This observational study used the largest German multiple sclerosis (MS) online forum as a database, analyzing the user debate about the recently proposed and controversial Chronic Cerebrospinal Venous Insufficiency (CCSVI) hypothesis. After extracting all posts and then filtering relevant CCSVI posts between 01 January 2008 and 17 August 2012, we first identified hyperlinks to scientific publications and other information sources used or referenced in the posts. Employing k-means clustering, we then analyzed the users' preference for sources of information and their general posting habits.RESULTS: Of 139,912 posts from 11,997 threads, 8628 posts discussed or at least mentioned CCSVI. We detected hyperlinks pointing to CCSVI-related scientific publications in 31 posts. In contrast, 2829 different URLs were posted to the forum, most frequently referring to social media, such as YouTube or Facebook. We identified a total of 6 different roles of hyperlink posters including Social Media Fans, Organization Followers, and Balanced Source Users. Apart from the large and nonspecific residual category of the "average user", several specific behavior patterns were identified, such as the small but relevant groups of CCSVI-Focused Responders or CCSVI Activators.CONCLUSIONS: The bulk of the observed contributions were not based on scientific results, but on various social media sources. These sources seem to contain mostly opinions and personal experience. A small group of people with distinct behavioral patterns played a core role in fuelling the discussion about CCSVI.

Resumo Limpo

ckground increas number patient rais voic onlin forum shift welcom act patient autonomi reflect term expert patient time consider concern patient can easili misguid pseudoscientif research debat littl known sourc inform use healthrel onlin forum user appli inform behav forumsobject intent studi identifi sourc inform use onlin healthrel forum role behavior activ forum visitor introduc dissemin informationmethod observ studi use largest german multipl sclerosi ms onlin forum databas analyz user debat recent propos controversi chronic cerebrospin venous insuffici ccsvi hypothesi extract post filter relev ccsvi post januari august first identifi hyperlink scientif public inform sourc use referenc post employ kmean cluster analyz user prefer sourc inform general post habitsresult post thread post discuss least mention ccsvi detect hyperlink point ccsvirel scientif public post contrast differ url post forum frequent refer social media youtub facebook identifi total differ role hyperlink poster includ social media fan organ follow balanc sourc user apart larg nonspecif residu categori averag user sever specif behavior pattern identifi small relev group ccsvifocus respond ccsvi activatorsconclus bulk observ contribut base scientif result various social media sourc sourc seem contain most opinion person experi small group peopl distinct behavior pattern play core role fuell discuss ccsvi

Resumos Similares

J. Med. Internet Res. - What are health-related users tweeting? A qualitative content analysis of health-related users and their messages on twitter. ( 0,88863424683255 )
J. Med. Internet Res. - Communicating genetics and smoking through social media: are we there yet? ( 0,878155411483615 )
J. Med. Internet Res. - Mind the gap: social media engagement by public health researchers. ( 0,863165443075977 )
J. Med. Internet Res. - Tweet content related to sexually transmitted diseases: no joking matter. ( 0,862860779184678 )
J. Med. Internet Res. - Would you tell everyone this? Facebook conversations as health promotion interventions. ( 0,86200799923545 )
Health Informatics J - Social media and physicians: Exploring the benefits and challenges. ( 0,858793144408636 )
IEEE J Biomed Health Inform - Network-based modeling and intelligent data mining of social media for improving care. ( 0,857633280477021 )
J. Med. Internet Res. - Superusers in social networks for smoking cessation: analysis of demographic characteristics and posting behavior from the Canadian Cancer Society's smokers' helpline online and StopSmokingCenter.net. ( 0,856776042597658 )
AMIA Annu Symp Proc - Sharing is caring, but not error free: transparency of granular controls for sharing personal health information in social networks. ( 0,851516768096369 )
J. Med. Internet Res. - Interaction patterns of nurturant support exchanged in online health social networking. ( 0,851141410502091 )
AMIA Annu Symp Proc - Does sustained participation in an online health community affect sentiment? ( 0,84734786230792 )
J. Med. Internet Res. - The use of social media by state tobacco control programs to promote smoking cessation: a cross-sectional study. ( 0,847256649746416 )
Inform Health Soc Care - Online conversations among Ontario university students: environmental concerns. ( 0,842713014121555 )
J. Med. Internet Res. - Analysis of a parent-initiated social media campaign for Hirschsprung's disease. ( 0,840859873996268 )
J. Med. Internet Res. - Applying social network analysis to understand the knowledge sharing behaviour of practitioners in a clinical online discussion forum. ( 0,840162717875333 )
J Med Syst - Facebook as a platform for health information and communication: a case study of a diabetes group. ( 0,838841804121027 )
BMC Med Inform Decis Mak - Making decisions in a complex information environment: evidential preference and information we trust. ( 0,836621083221936 )
J Biomed Inform - Recommendations for the design, implementation and evaluation of social support in online communities, networks, and groups. ( 0,832092603844674 )
J. Med. Internet Res. - HealthTrust: a social network approach for retrieving online health videos. ( 0,830241061693732 )
Health Info Libr J - Assessment of vaccination-related information for consumers available on Facebook. ( 0,826999546285366 )
J. Med. Internet Res. - Implementing a virtual community of practice for family physician training: a mixed-methods case study. ( 0,826636030392056 )
J. Med. Internet Res. - Community management that works: how to build and sustain a thriving online health community. ( 0,820640070341579 )
J. Med. Internet Res. - The role of Facebook in Crush the Crave, a mobile- and social media-based smoking cessation intervention: qualitative framework analysis of posts. ( 0,815693359344894 )
Inform Health Soc Care - Characteristics of patients seeking health information online via social health networks versus general Internet sites: a comparative study. ( 0,815330478738913 )
Telemed J E Health - The world of e-patients: A content analysis of online social networks focusing on diseases. ( 0,81398106369511 )
Inform Health Soc Care - Health care development: integrating transaction cost theory with social support theory. ( 0,812636480784225 )
IEEE Trans Image Process - Cooperation stimulation strategies for peer-to-peer wireless live video-sharing social networks. ( 0,812064612577265 )
J. Med. Internet Res. - Queer as F**k: reaching and engaging gay men in sexual health promotion through social networking sites. ( 0,811896543162738 )
AMIA Annu Symp Proc - Drama and danger: the opportunities and challenges of promoting youth sexual health through online social networks. ( 0,808348601133242 )
J Am Med Inform Assoc - Nationwide online social networking for cardiovascular care in Korea using Facebook. ( 0,806466301724941 )
J. Med. Internet Res. - A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. ( 0,804467525074248 )
J. Med. Internet Res. - Social media and mobile apps for health promotion in Australian Indigenous populations: scoping review. ( 0,804310819146181 )
J. Med. Internet Res. - What young people want from a sexual health website: design and development of Sexunzipped. ( 0,801147914639728 )
J. Med. Internet Res. - Still a hard-to-reach population? Using social media to recruit Latino gay couples for an HIV intervention adaptation study. ( 0,799631036613955 )
J. Med. Internet Res. - Tweeting for and against public health policy: response to the Chicago Department of Public Health's electronic cigarette Twitter campaign. ( 0,798766981537239 )
J. Med. Internet Res. - Global reach of direct-to-consumer advertising using social media for illicit online drug sales. ( 0,798520007075322 )
J. Med. Internet Res. - Online information exchanges for parents of children with a rare health condition: key findings from an online support community. ( 0,797962962770656 )
J. Med. Internet Res. - An exploration of social circles and prescription drug abuse through Twitter. ( 0,79749616579292 )
J. Med. Internet Res. - The conceptual and practical ethical dilemmas of using health discussion board posts as research data. ( 0,797320988865563 )
J. Med. Internet Res. - Did you hear the one about the doctor? An examination of doctor jokes posted on Facebook. ( 0,796276517464746 )
J. Med. Internet Res. - Growing a professional network to over 3000 members in less than 4 years: evaluation of InspireNet, British Columbia's virtual nursing health services research network. ( 0,788149248923935 )
J. Med. Internet Res. - Pro-anorexia and pro-recovery photo sharing: a tale of two warring tribes. ( 0,785910176446681 )
J. Med. Internet Res. - An AIDS-denialist online community on a Russian social networking service: patterns of interactions with newcomers and rhetorical strategies of persuasion. ( 0,783735121629536 )
J. Med. Internet Res. - Sharing medical data for health research: the early personal health record experience. ( 0,783084122353461 )
J. Med. Internet Res. - Public health interventions: reaching Latino adolescents via short message service and social media. ( 0,780270204932064 )
J Biomed Inform - Circles of Health: towards an advanced social network about disabilities of neurological origin. ( 0,778790594702354 )
J. Med. Internet Res. - Therapeutic affordances of social media: emergent themes from a global online survey of people with chronic pain. ( 0,775662992949712 )
J. Med. Internet Res. - Use of twitter among local health departments: an analysis of information sharing, engagement, and action. ( 0,773630662666495 )
Inform Health Soc Care - Relatives and friends queries on a psychologists question and answer forum online - authorship and contents. ( 0,773387621473313 )
J. Med. Internet Res. - Social media: a review and tutorial of applications in medicine and health care. ( 0,773191382405111 )
J. Med. Internet Res. - Barriers and facilitators for the implementation of an online clinical health community in addition to usual fertility care: a cross-sectional study. ( 0,772921503375137 )
J. Med. Internet Res. - Online social and professional support for smokers trying to quit: an exploration of first time posts from 2562 members. ( 0,772617394486669 )
Health Info Libr J - Examining the application of Web 2.0 in medical-related organisations. ( 0,770405842795797 )
J. Med. Internet Res. - Designing messaging to engage patients in an online suicide prevention intervention: survey results from patients with current suicidal ideation. ( 0,761010706146931 )
Appl Clin Inform - The use of smartphones on General Internal Medicine wards: a mixed methods study. ( 0,757388323293994 )
J. Med. Internet Res. - Social media and rating sites as tools to understanding quality of care: a scoping review. ( 0,754225121251898 )
J Am Med Inform Assoc - Participatory surveillance of diabetes device safety: a social media-based complement to traditional FDA reporting. ( 0,752719245154285 )
J. Med. Internet Res. - Work and mass personal communication as means of navigating nutrition and exercise concerns in an online cancer community. ( 0,752021427597492 )
Health Info Libr J - Development of a complex intervention to improve health literacy skills. ( 0,750816359846316 )
J. Med. Internet Res. - Can anonymous posters on medical forums be reidentified? ( 0,74761547379149 )
J Am Med Inform Assoc - Reviewing social media use by clinicians. ( 0,747322895167763 )
J. Med. Internet Res. - Communicating the experience of chronic pain and illness through blogging. ( 0,745990532325073 )
BMC Med Inform Decis Mak - Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users. ( 0,745694772448358 )
J. Med. Internet Res. - Enabling community through social media. ( 0,745111343117026 )
Spat Spatiotemporal Epidemiol - Immigrant maternal depression and social networks. A multilevel Bayesian spatial logistic regression in South Western Sydney, Australia. ( 0,743432175526218 )
BMC Med Inform Decis Mak - Against conventional wisdom: when the public, the media, and medical practice collide. ( 0,742598838526604 )
J. Med. Internet Res. - User-generated online health content: a survey of Internet users in the United Kingdom. ( 0,742512078139132 )
AMIA Annu Symp Proc - Characterizing the sublanguage of online breast cancer forums for medications, symptoms, and emotions. ( 0,741121739404784 )
J. Med. Internet Res. - Seeking support on facebook: a content analysis of breast cancer groups. ( 0,739863048408395 )
Methods Inf Med - Inferring community structure in healthcare forums. An empirical study. ( 0,732715687023564 )
Int J Med Inform - The use of information technologies for knowledge sharing by secondary healthcare organisations in New Zealand. ( 0,729781191255655 )
Comput Math Methods Med - Modeling the spread of tuberculosis in semiclosed communities. ( 0,728087353701114 )
J Med Syst - Learning from colleagues about healthcare IT implementation and optimization: lessons from a medical informatics listserv. ( 0,721264571395703 )
J. Med. Internet Res. - Internet and mobile technology use among urban African American parents: survey study of a clinical population. ( 0,721152150164615 )
J Biomed Inform - Health outcomes and related effects of using social media in chronic disease management: a literature review and analysis of affordances. ( 0,720531329657356 )
Telemed J E Health - Spanning boundaries into remote communities: an exploration of experiences with telehealth chronic disease self-management programs in rural northern ontario, Canada. ( 0,715775517796966 )
J Am Med Inform Assoc - Not all my friends need to know: a qualitative study of teenage patients, privacy, and social media. ( 0,712944613713605 )
AMIA Annu Symp Proc - Evaluating health interest profiles extracted from patient-generated data. ( 0,711753809806216 )
J. Med. Internet Res. - Which frail older patients use online health communities and why? A mixed methods process evaluation of use of the Health and Welfare portal. ( 0,710958736558111 )
Int J Health Geogr - Neighborhood differences in social capital in Ghent (Belgium): a multilevel approach. ( 0,705437485736912 )
J. Med. Internet Res. - Use of social media by Western European hospitals: longitudinal study. ( 0,705068788963583 )
BMC Med Inform Decis Mak - Mobile phones and social structures: an exploration of a closed user group in rural Ghana. ( 0,704509212478659 )
Int J Med Inform - Revisiting the online health information reliability debate in the wake of web 2.0: an inter-disciplinary literature and website review. ( 0,703344005786643 )
J. Med. Internet Res. - Are public health organizations tweeting to the choir? Understanding local health department Twitter followership. ( 0,7020651926042 )
J. Med. Internet Res. - Characterizing the followers and tweets of a marijuana-focused Twitter handle. ( 0,698517211657813 )
J. Med. Internet Res. - Using natural language processing to enable in-depth analysis of clinical messages posted to an Internet mailing list: a feasibility study. ( 0,692769991718156 )
J. Med. Internet Res. - Social cognitive determinants of nutrition and physical activity among web-health users enrolling in an online intervention: the influence of social support, self-efficacy, outcome expectations, and self-regulation. ( 0,690376885409274 )
J. Med. Internet Res. - Use of social media across US hospitals: descriptive analysis of adoption and utilization. ( 0,683775809671459 )
J. Med. Internet Res. - Sharing health data for better outcomes on PatientsLikeMe. ( 0,681123603960506 )
J. Med. Internet Res. - How community matters for how people interact with information: mixed methods study of young men who have sex with other men. ( 0,678470755740525 )
Int J Med Inform - Health information exchange system usage patterns in three communities: practice sites, users, patients, and data. ( 0,676260990640502 )
BMC Med Inform Decis Mak - Avatars using computer/smartphone mediated communication and social networking in prevention of sexually transmitted diseases among North-Norwegian youngsters. ( 0,673609657793811 )
J. Med. Internet Res. - Are health behavior change interventions that use online social networks effective? A systematic review. ( 0,671097395747013 )
J. Med. Internet Res. - Online health information seeking behaviors of Hispanics in New York City: a community-based cross-sectional study. ( 0,665218209796849 )
Int J Med Inform - The divided communities of shared concerns: mapping the intellectual structure of e-Health research in social science journals. ( 0,663071893895506 )
J. Med. Internet Res. - Digital social media, youth, and nonmedical use of prescription drugs: the need for reform. ( 0,662538673569053 )
BMC Med Inform Decis Mak - A systematic review of interactive multimedia interventions to promote children's communication with health professionals: implications for communicating with overweight children. ( 0,660617571205098 )
AMIA Annu Symp Proc - Studying the vendor perspective on clinical decision support. ( 0,660230932135305 )
Int J Med Inform - Barriers to acceptance of personal digital assistants for HIV/AIDS data collection in Angola. ( 0,658352670894322 )
J. Med. Internet Res. - Should health organizations use web 2.0 media in times of an infectious disease crisis? An in-depth qualitative study of citizens' information behavior during an EHEC outbreak. ( 0,656106147830155 )