J. Med. Internet Res. - Directed use of the internet for health information by patients with chronic kidney disease: prospective cohort study.


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CKGROUND: Health information technology has become common in the care of patients with chronic diseases; however, there are few such applications employed in kidney disease.OBJECTIVE: The aim of the study was to evaluate the use of a website providing disease-specific safety information by patients with predialysis chronic kidney disease.METHODS: As part of the Safe Kidney Care (SKC) study, an educational website was designed to provide information on safety concerns in chronic kidney disease. Phase I study participants were provided a medical alert accessory with a unique ID number, the Safe Kidney Care website, and an in-person tutorial on the use of the Internet and accessing the SKC website at baseline. Participants were asked to visit the website and enter their unique ID as frequently as they desired over the next 365 days or until their annual follow-up visit, whichever occurred first. Participants' visits and dwell times on specific safety modules were tracked using embedded webpage PHP scripts linked to a MySQL database, enabling the collection of website usage statistics.RESULTS: Of 108 Phase I participants, 28.7% (31/108) visited the website from 1-6 times during the observation period (median follow-up 365 days). Median access time was 7 minutes per visit (range <1-46) and 13 minutes per person (range <1-123). The three most frequently visited pages were "Renal function calculator", "Pills to avoid", and "Foods to avoid". High school education and frequent Internet use were significantly associated with website entry (P=.02 and P=.03, respectively).CONCLUSIONS: Preliminary results show general interest in a Web-based platform designed to improve patient safety in chronic kidney disease.TRIAL REGISTRATION: Clinicaltrials.gov NCT01407367; http://clinicaltrials.gov/show/NCT01407367 (Archived by WebCite at http://www.webcitation.org/6KvxFKA6M).

Resumo Limpo

ckground health inform technolog becom common care patient chronic diseas howev applic employ kidney diseaseobject aim studi evalu use websit provid diseasespecif safeti inform patient predialysi chronic kidney diseasemethod part safe kidney care skc studi educ websit design provid inform safeti concern chronic kidney diseas phase studi particip provid medic alert accessori uniqu id number safe kidney care websit inperson tutori use internet access skc websit baselin particip ask visit websit enter uniqu id frequent desir next day annual followup visit whichev occur first particip visit dwell time specif safeti modul track use embed webpag php script link mysql databas enabl collect websit usag statisticsresult phase particip visit websit time observ period median followup day median access time minut per visit rang minut per person rang three frequent visit page renal function calcul pill avoid food avoid high school educ frequent internet use signific associ websit entri p p respectivelyconclus preliminari result show general interest webbas platform design improv patient safeti chronic kidney diseasetri registr clinicaltrialsgov nct httpclinicaltrialsgovshownct archiv webcit httpwwwwebcitationorgkvxfkam

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