J. Med. Internet Res. - Facilitating out-of-home caregiving through health information technology: survey of informal caregivers' current practices, interests, and perceived barriers.

Tópicos

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Resumo

CKGROUND: Many patients with chronic conditions are supported by out-of-home informal caregivers-family members, friends, and other individuals who provide care and support without pay-who, if armed with effective consumer health information technology, could inexpensively facilitate their care.OBJECTIVE: We sought to understand caregivers' use of, interest in, and perceived barriers to health information technology for out-of-home caregiving.METHODS: We conducted 2 sequential Web-based surveys with a national sample of individuals who provide out-of-home caregiving to an adult family member or friend with a chronic illness. We queried respondents about their use of health information technology for out-of-home caregiving and used multivariable regression to investigate caregiver and care-recipient characteristics associated with caregivers' technology use for caregiving.RESULTS: Among 316 out-of-home caregiver respondents, 34.5% (109/316) reported using health information technology for caregiving activities. The likelihood of a caregiver using technology increased significantly with intensity of caregiving (as measured by number of out-of-home caregiving activities). Compared with very low intensity caregivers, the adjusted odds ratio (OR) of technology use was 1.88 (95% CI 1.01-3.50) for low intensity caregivers, 2.39 (95% CI 1.11-5.15) for moderate intensity caregivers, and 3.70 (95% CI 1.62-8.45) for high intensity caregivers. Over 70% (149/207) of technology nonusers reported interest in using technology in the future to support caregiving. The most commonly cited barriers to technology use for caregiving were health system privacy rules that restrict access to care-recipients' health information and lack of familiarity with programs or websites that facilitate out-of-home caregiving.CONCLUSIONS: Health information technology use for out-of-home caregiving is common, especially among individuals who provide more intense caregiving. Health care systems can address the mismatch between caregivers' interest in and use of technology by modifying privacy policies that impede information exchange.

Resumo Limpo

ckground mani patient chronic condit support outofhom inform caregiversfamili member friend individu provid care support without paywho arm effect consum health inform technolog inexpens facilit careobject sought understand caregiv use interest perceiv barrier health inform technolog outofhom caregivingmethod conduct sequenti webbas survey nation sampl individu provid outofhom caregiv adult famili member friend chronic ill queri respond use health inform technolog outofhom caregiv use multivari regress investig caregiv carerecipi characterist associ caregiv technolog use caregivingresult among outofhom caregiv respond report use health inform technolog caregiv activ likelihood caregiv use technolog increas signific intens caregiv measur number outofhom caregiv activ compar low intens caregiv adjust odd ratio technolog use ci low intens caregiv ci moder intens caregiv ci high intens caregiv technolog nonus report interest use technolog futur support caregiv common cite barrier technolog use caregiv health system privaci rule restrict access carerecipi health inform lack familiar program websit facilit outofhom caregivingconclus health inform technolog use outofhom caregiv common especi among individu provid intens caregiv health care system can address mismatch caregiv interest use technolog modifi privaci polici imped inform exchang

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