BMC Med Inform Decis Mak - Presenting evidence-based health information for people with multiple sclerosis: the IN-DEEP project protocol.


{ inform(2794) health(2639) internet(1427) }
{ care(1570) inform(1187) nurs(1089) }
{ research(1218) medic(880) student(794) }
{ decis(3086) make(1611) patient(1517) }
{ studi(2440) review(1878) systemat(933) }
{ data(1714) softwar(1251) tool(1186) }
{ take(945) account(800) differ(722) }
{ studi(1410) differ(1259) use(1210) }
{ model(2656) set(1616) predict(1553) }
{ data(2317) use(1299) case(1017) }
{ data(3008) multipl(1320) sourc(1022) }
{ use(2086) technolog(871) perceiv(783) }
{ can(981) present(881) function(850) }
{ result(1111) use(1088) new(759) }
{ can(774) often(719) complex(702) }
{ howev(809) still(633) remain(590) }
{ research(1085) discuss(1038) issu(1018) }
{ visual(1396) interact(850) tool(830) }
{ state(1844) use(1261) util(961) }
{ health(1844) social(1437) communiti(874) }
{ data(1737) use(1416) pattern(1282) }
{ system(1976) rule(880) can(841) }
{ sequenc(1873) structur(1644) protein(1328) }
{ imag(2675) segment(2577) method(1081) }
{ search(2224) databas(1162) retriev(909) }
{ import(1318) role(1303) understand(862) }
{ age(1611) year(1155) adult(843) }
{ first(2504) two(1366) second(1323) }
{ intervent(3218) particip(2042) group(1664) }
{ structur(1116) can(940) graph(676) }
{ method(1969) cluster(1462) data(1082) }
{ model(3404) distribut(989) bayesian(671) }
{ imag(1947) propos(1133) code(1026) }
{ measur(2081) correl(1212) valu(896) }
{ imag(1057) registr(996) error(939) }
{ bind(1733) structur(1185) ligand(1036) }
{ method(1219) similar(1157) match(930) }
{ featur(3375) classif(2383) classifi(1994) }
{ imag(2830) propos(1344) filter(1198) }
{ network(2748) neural(1063) input(814) }
{ patient(2315) diseas(1263) diabet(1191) }
{ motion(1329) object(1292) video(1091) }
{ assess(1506) score(1403) qualiti(1306) }
{ treatment(1704) effect(941) patient(846) }
{ surgeri(1148) surgic(1085) robot(1054) }
{ framework(1458) process(801) describ(734) }
{ problem(2511) optim(1539) algorithm(950) }
{ error(1145) method(1030) estim(1020) }
{ chang(1828) time(1643) increas(1301) }
{ learn(2355) train(1041) set(1003) }
{ concept(1167) ontolog(924) domain(897) }
{ clinic(1479) use(1117) guidelin(835) }
{ algorithm(1844) comput(1787) effici(935) }
{ extract(1171) text(1153) clinic(932) }
{ method(1557) propos(1049) approach(1037) }
{ design(1359) user(1324) use(1319) }
{ control(1307) perform(991) simul(935) }
{ model(2220) cell(1177) simul(1124) }
{ general(901) number(790) one(736) }
{ method(984) reconstruct(947) comput(926) }
{ featur(1941) imag(1645) propos(1176) }
{ case(1353) use(1143) diagnosi(1136) }
{ data(3963) clinic(1234) research(1004) }
{ risk(3053) factor(974) diseas(938) }
{ perform(999) metric(946) measur(919) }
{ system(1050) medic(1026) inform(1018) }
{ model(2341) predict(2261) use(1141) }
{ compound(1573) activ(1297) structur(1058) }
{ perform(1367) use(1326) method(1137) }
{ studi(1119) effect(1106) posit(819) }
{ blood(1257) pressur(1144) flow(957) }
{ spatial(1525) area(1432) region(1030) }
{ record(1888) medic(1808) patient(1693) }
{ health(3367) inform(1360) care(1135) }
{ model(3480) simul(1196) paramet(876) }
{ monitor(1329) mobil(1314) devic(1160) }
{ ehr(2073) health(1662) electron(1139) }
{ patient(2837) hospit(1953) medic(668) }
{ medic(1828) order(1363) alert(1069) }
{ signal(2180) analysi(812) frequenc(800) }
{ cost(1906) reduc(1198) effect(832) }
{ group(2977) signific(1463) compar(1072) }
{ sampl(1606) size(1419) use(1276) }
{ gene(2352) biolog(1181) express(1162) }
{ activ(1138) subject(705) human(624) }
{ time(1939) patient(1703) rate(768) }
{ patient(1821) servic(1111) care(1106) }
{ analysi(2126) use(1163) compon(1037) }
{ high(1669) rate(1365) level(1280) }
{ cancer(2502) breast(956) screen(824) }
{ use(976) code(926) identifi(902) }
{ use(1733) differ(960) four(931) }
{ drug(1928) target(777) effect(648) }
{ implement(1333) system(1263) develop(1122) }
{ survey(1388) particip(1329) question(1065) }
{ estim(2440) model(1874) function(577) }
{ process(1125) use(805) approach(778) }
{ activ(1452) weight(1219) physic(1104) }
{ method(2212) result(1239) propos(1039) }
{ detect(2391) sensit(1101) algorithm(908) }


CKGROUND: Increasingly, evidence-based health information, in particular evidence from systematic reviews, is being made available to lay audiences, in addition to health professionals. Research efforts have focused on different formats for the lay presentation of health information. However, there is a paucity of data on how patients integrate evidence-based health information with other factors such as their preferences for information and experiences with information-seeking. The aim of this project is to explore how people with multiple sclerosis (MS) integrate health information with their needs, experiences, preferences and values and how these factors can be incorporated into an online resource of evidence-based health information provision for people with MS and their families.METHODS: This project is an Australian-Italian collaboration between researchers, MS societies and people with MS. Using a four-stage mixed methods design, a model will be developed for presenting evidence-based health information on the Internet for people with MS and their families. This evidence-based health information will draw upon systematic reviews of MS interventions from The Cochrane Library. Each stage of the project will build on the last. After conducting focus groups with people with MS and their family members (Stage 1), we will develop a model for summarising and presenting Cochrane MS reviews that is integrated with supporting information to aid understanding and decision making. This will be reviewed and finalised with people with MS, family members, health professionals and MS Society staff (Stage 2), before being uploaded to the Internet and evaluated (Stages 3 and 4).DISCUSSION: This project aims to produce accessible and meaningful evidence-based health information about MS for use in the varied decision making and management situations people encounter in everyday life. It is expected that the findings will be relevant to broader efforts to provide evidence-based health information for patients and the general public. The international collaboration also permits exploration of cultural differences that could inform international practice.

Resumo Limpo

ckground increas evidencebas health inform particular evid systemat review made avail lay audienc addit health profession research effort focus differ format lay present health inform howev pauciti data patient integr evidencebas health inform factor prefer inform experi informationseek aim project explor peopl multipl sclerosi ms integr health inform need experi prefer valu factor can incorpor onlin resourc evidencebas health inform provis peopl ms familiesmethod project australianitalian collabor research ms societi peopl ms use fourstag mix method design model will develop present evidencebas health inform internet peopl ms famili evidencebas health inform will draw upon systemat review ms intervent cochran librari stage project will build last conduct focus group peopl ms famili member stage will develop model summaris present cochran ms review integr support inform aid understand decis make will review finalis peopl ms famili member health profession ms societi staff stage upload internet evalu stage discuss project aim produc access meaning evidencebas health inform ms use vari decis make manag situat peopl encount everyday life expect find will relev broader effort provid evidencebas health inform patient general public intern collabor also permit explor cultur differ inform intern practic

Resumos Similares

J. Med. Internet Res. - Impact of an online medical internet site on knowledge and practice of health care providers: a mixed methods study of the Spinal Cord Injury Rehabilitation Evidence project. ( 0,832671418470555 )
J. Med. Internet Res. - Dr Google and the consumer: a qualitative study exploring the navigational needs and online health information-seeking behaviors of consumers with chronic health conditions. ( 0,824759880991939 )
Health Info Libr J - Information needs and information-seeking behaviour analysis of primary care physicians and nurses: a literature review. ( 0,821186578380758 )
J. Med. Internet Res. - The characteristics and motivations of online health information seekers: cross-sectional survey and qualitative interview study. ( 0,803508053855145 )
AMIA Annu Symp Proc - A mobile/web app for long distance caregivers of older adults: functional requirements and design implications from a user centered design process. ( 0,80317895070991 )
Health Info Libr J - Library services and user satisfaction in developing countries: a case study. ( 0,800844861620954 )
Inform Health Soc Care - A survey of public health and consumer health informatics programmes and courses in Canadian universities and colleges. ( 0,79939311109065 )
J. Med. Internet Res. - Online communication between doctors and patients in Europe: status and perspectives. ( 0,785020857289256 )
Telemed J E Health - Attitudes and awareness of web-based self-care resources in the military: a preliminary survey study. ( 0,783156841117935 )
Int J Med Inform - Information quality of a Nursing Information System depends on the nurses: a combined quantitative and qualitative evaluation. ( 0,782558557606319 )
Health Info Libr J - Online health information search and evaluation: observations and semi-structured interviews with college students and maternal health experts. ( 0,782354854565598 )
J. Med. Internet Res. - Analysis of ehealth search perspectives among female college students in the health professions using Q methodology. ( 0,782193149359203 )
Inform Health Soc Care - A community education initiative to improve using online health information: participation and impact. ( 0,781619129025146 )
Health Informatics J - Spanish students' use of the Internet for mental health information and support seeking. ( 0,781567043837716 )
J. Med. Internet Res. - Student perceptions of a hands-on practicum to supplement an online eHealth course. ( 0,779070192266888 )
J. Med. Internet Res. - Information-seeking at a caregiving website: a qualitative analysis. ( 0,776248141137713 )
BMC Med Inform Decis Mak - How information systems should support the information needs of general dentists in clinical settings: suggestions from a qualitative study. ( 0,773638077571116 )
J. Med. Internet Res. - eHealth literacy among college students: a systematic review with implications for eHealth education. ( 0,771509456884399 )
J. Med. Internet Res. - Parents seeking health-related information on the Internet: cross-sectional study. ( 0,771469157707423 )
AMIA Annu Symp Proc - Information is in the eye of the beholder: Seeking information on the MMR vaccine through an Internet search engine. ( 0,771445147309193 )
J. Med. Internet Res. - Socioeconomic and geographic disparities in health information seeking and Internet use in Puerto Rico. ( 0,770474860878522 )
Int J Med Inform - Market segmentation of health information use on the Internet in Korea. ( 0,770331735855836 )
J. Med. Internet Res. - How patients with schizophrenia use the internet: qualitative study. ( 0,766394182869191 )
J. Med. Internet Res. - Motivations for contributing to health-related articles on Wikipedia: an interview study. ( 0,76635210552242 )
Int J Med Inform - Internet use by the public to search for health-related information. ( 0,760775902945231 )
J. Med. Internet Res. - eHealth literacy: extending the digital divide to the realm of health information. ( 0,757887661641736 )
J. Med. Internet Res. - eMental health experiences and expectations: a survey of youths' Web-based resource preferences in Canada. ( 0,756645743240615 )
J. Med. Internet Res. - Use of the internet as a health information resource among French young adults: results from a nationally representative survey. ( 0,753449059700224 )
J. Med. Internet Res. - Internet skills performance tests: are people ready for eHealth? ( 0,753307025234262 )
J. Med. Internet Res. - Internet use for health-related information via personal computers and cell phones in Japan: a cross-sectional population-based survey. ( 0,752821496373007 )
J. Med. Internet Res. - Multiple information sources and consequences of conflicting information about medicine use during pregnancy: a multinational Internet-based survey. ( 0,751207220755785 )
J. Med. Internet Res. - Can online consumers contribute to drug knowledge? A mixed-methods comparison of consumer-generated and professionally controlled psychotropic medication information on the internet. ( 0,750664924299974 )
AMIA Annu Symp Proc - Patient moderator interaction in online health communities. ( 0,748276645304389 )
Health Info Libr J - 'Quality signposting': the role of online information prescription in providing patient information. ( 0,746534696666565 )
J Am Med Inform Assoc - Seeking health information online: does limited healthcare access matter? ( 0,745638378891542 )
J. Med. Internet Res. - Content and functionality of alcohol and other drug websites: results of an online survey. ( 0,744986785362363 )
Health Informatics J - Students' trust judgements in online health information seeking. ( 0,744667557874215 )
J. Med. Internet Res. - Seeking health information and support online: does it differ as a function of engagement in risky health behaviors? Evidence from the health information national trends survey. ( 0,743896551681988 )
Telemed J E Health - Factors affecting electronic health information needs in primary care patients. ( 0,74270371326513 )
J. Med. Internet Res. - Review of extracting information from the Social Web for health personalization. ( 0,742374272638397 )
Appl Clin Inform - The health information technology workforce: estimations of demands and a framework for requirements. ( 0,742269463293711 )
J. Med. Internet Res. - What do web-use skill differences imply for online health information searches? ( 0,741067954180927 )
Health Info Libr J - Information behaviour of Canadian pharmaceutical policy makers. ( 0,738207511742838 )
J. Med. Internet Res. - Internet use frequency and patient-centered care: measuring patient preferences for participation using the health information wants questionnaire. ( 0,73457593376529 )
Health Info Libr J - Use and value of information sources by parents of child psychiatric patients. ( 0,732338738173598 )
J. Med. Internet Res. - Munchausen by internet: current research and future directions. ( 0,731477902101027 )
Inform Health Soc Care - Internet use for health information among haematology outpatients: a cross-sectional survey. ( 0,73120037372439 )
Inform Health Soc Care - Use of and trust in health information on the Internet: a nationwide eight-year follow-up survey. ( 0,730944052572124 )
J. Med. Internet Res. - An international comparison of web-based reporting about health care quality: content analysis. ( 0,730763546729271 )
J. Med. Internet Res. - Internet use and eHealth literacy of low-income parents whose children have special health care needs. ( 0,729235025424098 )
J. Med. Internet Res. - Evaluating the process of online health information searching: a qualitative approach to exploring consumer perspectives. ( 0,729153080338723 )
J. Med. Internet Res. - Do online mental health services improve help-seeking for young people? A systematic review. ( 0,725034288642344 )
Health Info Libr J - Qualified doctor and medical students' use of resources for accessing information: what is used and why? ( 0,723944692406977 )
BMC Med Inform Decis Mak - Predictive modelling: parents' decision making to use online child health information to increase their understanding and/or diagnose or treat their child's health. ( 0,723786752559908 )
BMC Med Inform Decis Mak - Understanding reactions to an internet-delivered health-care intervention: accommodating user preferences for information provision. ( 0,72309593886331 )
BMC Med Inform Decis Mak - Use of the internet as a source of health information by Spanish adolescents. ( 0,723029291787146 )
BMC Med Inform Decis Mak - An analysis of online health information on schizophrenia or related conditions: a cross-sectional survey. ( 0,721373556928435 )
Int J Med Inform - Online health information seeking by people with physical disabilities due to neurological conditions. ( 0,720093042840051 )
Inform Health Soc Care - Health on the Web: An examination of health content and mobilising information on local television Websites. ( 0,719007352541564 )
Int J Med Inform - Internet health information seeking is a team sport: analysis of the Pew Internet Survey. ( 0,718951486314491 )
J. Med. Internet Res. - Digital inequalities of family life information seeking and family well-being among Chinese adults in Hong Kong: a population survey. ( 0,718718450081628 )
Telemed J E Health - National health information infrastructure model: a milestone for health information management education realignment. ( 0,717159551529938 )
BMC Med Inform Decis Mak - Surfing the internet for health information: an italian survey on use and population choices. ( 0,714483377947548 )
Int J Med Inform - Health information seeking, diet and physical activity: an empirical assessment by medium and critical demographics. ( 0,713499295652681 )
Int J Med Inform - An exploratory study of inactive health information seekers. ( 0,712357346882471 )
Telemed J E Health - Understanding the online health information user profiles in Korea: from a psychological perspective. ( 0,7122043295105 )
BMC Med Inform Decis Mak - Evaluation of internet access and utilization by medical students in Lahore, Pakistan. ( 0,711443162587212 )
J. Med. Internet Res. - The effects of preference for information on consumers' online health information search behavior. ( 0,708918210246278 )
BMC Med Inform Decis Mak - An evaluation of the content and quality of tinnitus information on websites preferred by General Practitioners. ( 0,706514929207533 )
Health Info Libr J - The role of health information kiosks in diverse settings: a systematic review. ( 0,705644123453759 )
J. Med. Internet Res. - Consumers' perceptions of patient-accessible electronic medical records. ( 0,7016783596459 )
J. Med. Internet Res. - Theme issue on e-mental health: a growing field in internet research. ( 0,700895865888924 )
AMIA Annu Symp Proc - Social and behavioral history information in public health datasets. ( 0,696464450603365 )
J. Med. Internet Res. - Online mental health resources in rural Australia: clinician perceptions of acceptability. ( 0,695400441718073 )
Int J Health Geogr - On the Internet of Things, smart cities and the WHO Healthy Cities. ( 0,692419484280305 )
AMIA Annu Symp Proc - Metadata extraction routines for improving infobutton performance. ( 0,69072514424302 )
J Biomed Inform - Implementation of a user-centered framework in the development of a web-based health information database and call center. ( 0,690402320712102 )
J. Med. Internet Res. - Predictors of eHealth usage: insights on the digital divide from the Health Information National Trends Survey 2012. ( 0,683149236235442 )
J. Med. Internet Res. - Dirt cheap and without prescription: how susceptible are young US consumers to purchasing drugs from rogue internet pharmacies? ( 0,680649101248001 )
BMC Med Inform Decis Mak - Italian hospitals on the web: a cross-sectional analysis of official websites. ( 0,678929887024228 )
Telemed J E Health - Rural adults' use of health-related information online: data from a 2006 National Online Health Survey. ( 0,676930586546319 )
Telemed J E Health - Delivering healthcare information via the internet: cardiac patients' access, usage, perceptions of usefulness, and web site content preferences. ( 0,675227565960894 )
Health Info Libr J - Determining where physical therapists get information to support clinical practice decisions. ( 0,674588695357167 )
J. Med. Internet Res. - Paging Dr. Google: does technology fill the gap created by the prenatal care visit structure? Qualitative focus group study with pregnant women. ( 0,674040265420204 )
Int J Med Inform - Internet skill-related problems in accessing online health information. ( 0,673610610008002 )
J. Med. Internet Res. - Effects of internet use on health and depression: a longitudinal study. ( 0,67310521970197 )
J. Med. Internet Res. - Crowdsourced health research studies: an important emerging complement to clinical trials in the public health research ecosystem. ( 0,672124745148043 )
Comput Methods Programs Biomed - Automatic information timeliness assessment of diabetes web sites by evidence based medicine. ( 0,67166252864499 )
Inform Health Soc Care - Seeking health advice on the Internet in patients with health problems: a cross-sectional population study in Slovenia. ( 0,671017461821638 )
J. Med. Internet Res. - Evaluating aspects of online medication safety in long-term follow-up of 136 Internet pharmacies: illegal rogue online pharmacies flourish and are long-lived. ( 0,669946266751064 )
AMIA Annu Symp Proc - Do health care users think electronic health records are important for themselves and their providers?: Exploring group differences in a national survey. ( 0,669803767619127 )
J. Med. Internet Res. - Internet and social media for health-related information and communication in health care: preferences of the Dutch general population. ( 0,669308309722802 )
Health Info Libr J - The role of the health information professional. ( 0,667949478705728 )
J. Med. Internet Res. - What are young adults saying about mental health? An analysis of Internet blogs. ( 0,664492760014947 )
Telemed J E Health - What makes teens start using and keep using health information web sites? A mixed model analysis of teens with chronic illnesses. ( 0,662888364569514 )
Perspect Health Inf Manag - Evaluation of dengue-related health information on the internet. ( 0,662735667543898 )
Int J Med Inform - The integration of Information and Communication Technology into nursing. ( 0,66257716765175 )
J. Med. Internet Res. - What explains usage of mobile physician-rating apps? Results from a web-based questionnaire. ( 0,662527978541767 )
Int J Med Inform - Who is NOT likely to access the Internet for health information? Findings from first-time mothers in southwest Sydney, Australia. ( 0,661282153597443 )
Health Info Libr J - The application and value of information sources in clinical practice: an examination of the perspective of naturopaths. ( 0,660993473634329 )