Med Decis Making - Information for decision making by patients with early-stage prostate cancer: a comparison across 9 countries.


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RPOSE: To describe decisional roles of patients with early-stage prostate cancer in 9 countries and to compare the information they rated important for decision making (DM).METHOD: A survey of recently treated patients was conducted in Canada, Italy, England, Germany, Poland, Portugal, Netherlands, Spain, and Turkey. Participants indicated their decisional role in their actual decision and the role they would prefer now. Each participant also rated (essential/desired/no opinion/avoid) the importance of obtaining answers, between diagnosis and treatment decision, to each of 92 questions. For each essential/desired question, participants specified all purposes for that information (to help them: understand/decide/plan/not sure/other).RESULTS: A total of 659 patients participated with country-specific response rates between 58%-77%. Between 83%-96% of each country's participants recalled actually taking an active decisional role and, in most countries, that increased slightly if they were to make the decision today; there were no significant differences among countries. There was a small reliable difference in the mean number of questions rated essential for DM across countries. More striking, however, was the wide variability within each country: no question was rated essential for DM by even 50% of its participants but almost every question was rated essential by some.CONCLUSIONS: Almost all participants from each country want to participate in their treatment decisions. Although there are country-specific differences in the amount of information required, wide variation within each country suggests that information that patients feel is essential or desired for DM should be addressed on an individual basis in all countries.

Resumo Limpo

rpose describ decision role patient earlystag prostat cancer countri compar inform rate import decis make dmmethod survey recent treat patient conduct canada itali england germani poland portug netherland spain turkey particip indic decision role actual decis role prefer now particip also rate essentialdesiredno opinionavoid import obtain answer diagnosi treatment decis question essentialdesir question particip specifi purpos inform help understanddecideplannot sureotherresult total patient particip countryspecif respons rate countri particip recal actual take activ decision role countri increas slight make decis today signific differ among countri small reliabl differ mean number question rate essenti dm across countri strike howev wide variabl within countri question rate essenti dm even particip almost everi question rate essenti someconclus almost particip countri want particip treatment decis although countryspecif differ amount inform requir wide variat within countri suggest inform patient feel essenti desir dm address individu basi countri

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