Methods Inf Med - Lessons learned from a health record bank start-up.

Tópicos

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Resumo

TRODUCTION: This article is part of a Focus Theme of METHODS of Information in Medicine on Health Record Banking.BACKGROUND: In late summer 2010, an organization was formed in greater Phoenix, Arizona (USA), to introduce a health record bank (HRB) in that community. The effort was initiated after market research and was aimed at engaging 200,000 individuals as members in the first year (5% of the population). It was also intended to evaluate a business model that was based on early adoption by consumers and physicians followed by additional revenue streams related to incremental services and secondary uses of clinical data, always with specific permission from individual members, each of whom controlled all access to his or her own data.OBJECTIVES: To report on the details of the HRB experience in Phoenix, to describe the sources of problems that were experienced, and to identify lessons that need to be considered in future HRB ventures.METHODS: We describe staffing for the HRB effort, the computational platform that was developed, the approach to marketing, the engagement of practicing physicians, and the governance model that was developed to guide the HRB design and implementation.RESULTS: Despite efforts to engage the physician community, limited consumer advertising, and a carefully considered financial strategy, the experiment failed due to insufficient enrollment of individual members. It was discontinued in April 2011.CONCLUSIONS: Although the major problem with this HRB project was undercapitalization, we believe this effort demonstrated that basic HRB accounts should be free for members and that physician engagement and participation are key elements in constructing an effective marketing channel. Local community governance is essential for trust, and the included population must be large enough to provide sufficient revenues to sustain the resource in the long term.

Resumo Limpo

troduct articl part focus theme method inform medicin health record bankingbackground late summer organ form greater phoenix arizona usa introduc health record bank hrb communiti effort initi market research aim engag individu member first year popul also intend evalu busi model base earli adopt consum physician follow addit revenu stream relat increment servic secondari use clinic data alway specif permiss individu member control access dataobject report detail hrb experi phoenix describ sourc problem experienc identifi lesson need consid futur hrb venturesmethod describ staf hrb effort comput platform develop approach market engag practic physician govern model develop guid hrb design implementationresult despit effort engag physician communiti limit consum advertis care consid financi strategi experi fail due insuffici enrol individu member discontinu april conclus although major problem hrb project undercapit believ effort demonstr basic hrb account free member physician engag particip key element construct effect market channel local communiti govern essenti trust includ popul must larg enough provid suffici revenu sustain resourc long term

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