BMC Med Inform Decis Mak - De-identifying a public use microdata file from the Canadian national discharge abstract database.

Tópicos

{ health(3367) inform(1360) care(1135) }
{ data(1714) softwar(1251) tool(1186) }
{ method(1219) similar(1157) match(930) }
{ search(2224) databas(1162) retriev(909) }
{ analysi(2126) use(1163) compon(1037) }
{ system(1976) rule(880) can(841) }
{ perform(999) metric(946) measur(919) }
{ use(976) code(926) identifi(902) }
{ measur(2081) correl(1212) valu(896) }
{ patient(2315) diseas(1263) diabet(1191) }
{ chang(1828) time(1643) increas(1301) }
{ research(1085) discuss(1038) issu(1018) }
{ research(1218) medic(880) student(794) }
{ structur(1116) can(940) graph(676) }
{ activ(1452) weight(1219) physic(1104) }
{ detect(2391) sensit(1101) algorithm(908) }
{ can(774) often(719) complex(702) }
{ data(3963) clinic(1234) research(1004) }
{ spatial(1525) area(1432) region(1030) }
{ patient(2837) hospit(1953) medic(668) }
{ cost(1906) reduc(1198) effect(832) }
{ estim(2440) model(1874) function(577) }
{ framework(1458) process(801) describ(734) }
{ problem(2511) optim(1539) algorithm(950) }
{ learn(2355) train(1041) set(1003) }
{ design(1359) user(1324) use(1319) }
{ method(984) reconstruct(947) comput(926) }
{ studi(1410) differ(1259) use(1210) }
{ risk(3053) factor(974) diseas(938) }
{ process(1125) use(805) approach(778) }
{ data(1737) use(1416) pattern(1282) }
{ inform(2794) health(2639) internet(1427) }
{ imag(1057) registr(996) error(939) }
{ take(945) account(800) differ(722) }
{ control(1307) perform(991) simul(935) }
{ care(1570) inform(1187) nurs(1089) }
{ general(901) number(790) one(736) }
{ featur(1941) imag(1645) propos(1176) }
{ howev(809) still(633) remain(590) }
{ system(1050) medic(1026) inform(1018) }
{ studi(1119) effect(1106) posit(819) }
{ record(1888) medic(1808) patient(1693) }
{ state(1844) use(1261) util(961) }
{ age(1611) year(1155) adult(843) }
{ medic(1828) order(1363) alert(1069) }
{ gene(2352) biolog(1181) express(1162) }
{ first(2504) two(1366) second(1323) }
{ high(1669) rate(1365) level(1280) }
{ cancer(2502) breast(956) screen(824) }
{ model(3404) distribut(989) bayesian(671) }
{ imag(1947) propos(1133) code(1026) }
{ bind(1733) structur(1185) ligand(1036) }
{ sequenc(1873) structur(1644) protein(1328) }
{ featur(3375) classif(2383) classifi(1994) }
{ imag(2830) propos(1344) filter(1198) }
{ network(2748) neural(1063) input(814) }
{ imag(2675) segment(2577) method(1081) }
{ studi(2440) review(1878) systemat(933) }
{ motion(1329) object(1292) video(1091) }
{ assess(1506) score(1403) qualiti(1306) }
{ treatment(1704) effect(941) patient(846) }
{ surgeri(1148) surgic(1085) robot(1054) }
{ error(1145) method(1030) estim(1020) }
{ concept(1167) ontolog(924) domain(897) }
{ clinic(1479) use(1117) guidelin(835) }
{ algorithm(1844) comput(1787) effici(935) }
{ extract(1171) text(1153) clinic(932) }
{ method(1557) propos(1049) approach(1037) }
{ model(2220) cell(1177) simul(1124) }
{ case(1353) use(1143) diagnosi(1136) }
{ import(1318) role(1303) understand(862) }
{ model(2341) predict(2261) use(1141) }
{ visual(1396) interact(850) tool(830) }
{ compound(1573) activ(1297) structur(1058) }
{ perform(1367) use(1326) method(1137) }
{ blood(1257) pressur(1144) flow(957) }
{ model(3480) simul(1196) paramet(876) }
{ monitor(1329) mobil(1314) devic(1160) }
{ ehr(2073) health(1662) electron(1139) }
{ model(2656) set(1616) predict(1553) }
{ data(2317) use(1299) case(1017) }
{ signal(2180) analysi(812) frequenc(800) }
{ group(2977) signific(1463) compar(1072) }
{ sampl(1606) size(1419) use(1276) }
{ data(3008) multipl(1320) sourc(1022) }
{ intervent(3218) particip(2042) group(1664) }
{ activ(1138) subject(705) human(624) }
{ time(1939) patient(1703) rate(768) }
{ patient(1821) servic(1111) care(1106) }
{ use(2086) technolog(871) perceiv(783) }
{ can(981) present(881) function(850) }
{ health(1844) social(1437) communiti(874) }
{ use(1733) differ(960) four(931) }
{ drug(1928) target(777) effect(648) }
{ result(1111) use(1088) new(759) }
{ implement(1333) system(1263) develop(1122) }
{ survey(1388) particip(1329) question(1065) }
{ decis(3086) make(1611) patient(1517) }
{ method(1969) cluster(1462) data(1082) }
{ method(2212) result(1239) propos(1039) }

Resumo

CKGROUND: The Canadian Institute for Health Information (CIHI) collects hospital discharge abstract data (DAD) from Canadian provinces and territories. There are many demands for the disclosure of this data for research and analysis to inform policy making. To expedite the disclosure of data for some of these purposes, the construction of a DAD public use microdata file (PUMF) was considered. Such purposes include: confirming some published results, providing broader feedback to CIHI to improve data quality, training students and fellows, providing an easily accessible data set for researchers to prepare for analyses on the full DAD data set, and serve as a large health data set for computer scientists and statisticians to evaluate analysis and data mining techniques. The objective of this study was to measure the probability of re-identification for records in a PUMF, and to de-identify a national DAD PUMF consisting of 10% of records.METHODS: Plausible attacks on a PUMF were evaluated. Based on these attacks, the 2008-2009 national DAD was de-identified. A new algorithm was developed to minimize the amount of suppression while maximizing the precision of the data. The acceptable threshold for the probability of correct re-identification of a record was set at between 0.04 and 0.05. Information loss was measured in terms of the extent of suppression and entropy.RESULTS: Two different PUMF files were produced, one with geographic information, and one with no geographic information but more clinical information. At a threshold of 0.05, the maximum proportion of records with the diagnosis code suppressed was 20%, but these suppressions represented only 8-9% of all values in the DAD. Our suppression algorithm has less information loss than a more traditional approach to suppression. Smaller regions, patients with longer stays, and age groups that are infrequently admitted to hospitals tend to be the ones with the highest rates of suppression.CONCLUSIONS: The strategies we used to maximize data utility and minimize information loss can result in a PUMF that would be useful for the specific purposes noted earlier. However, to create a more detailed file with less information loss suitable for more complex health services research, the risk would need to be mitigated by requiring the data recipient to commit to a data sharing agreement.

Resumo Limpo

ckground canadian institut health inform cihi collect hospit discharg abstract data dad canadian provinc territori mani demand disclosur data research analysi inform polici make expedit disclosur data purpos construct dad public use microdata file pumf consid purpos includ confirm publish result provid broader feedback cihi improv data qualiti train student fellow provid easili access data set research prepar analys full dad data set serv larg health data set comput scientist statistician evalu analysi data mine techniqu object studi measur probabl reidentif record pumf deidentifi nation dad pumf consist recordsmethod plausibl attack pumf evalu base attack nation dad deidentifi new algorithm develop minim amount suppress maxim precis data accept threshold probabl correct reidentif record set inform loss measur term extent suppress entropyresult two differ pumf file produc one geograph inform one geograph inform clinic inform threshold maximum proport record diagnosi code suppress suppress repres valu dad suppress algorithm less inform loss tradit approach suppress smaller region patient longer stay age group infrequ admit hospit tend one highest rate suppressionconclus strategi use maxim data util minim inform loss can result pumf use specif purpos note earlier howev creat detail file less inform loss suitabl complex health servic research risk need mitig requir data recipi commit data share agreement

Resumos Similares

J. Med. Internet Res. - Storing and using health data in a virtual private cloud. ( 0,789808107986824 )
J Am Med Inform Assoc - iDASH: integrating data for analysis, anonymization, and sharing. ( 0,757398287052094 )
Int J Health Geogr - An open source web application for the surveillance and prevention of the impacts on public health of extreme meteorological events: the SUPREME system. ( 0,745202416509661 )
Int J Health Geogr - Mapping for maternal and newborn health: the distributions of women of childbearing age, pregnancies and births. ( 0,730186248971142 )
J Med Syst - Design and implementation of a telecare information platform. ( 0,729465848291325 )
Int J Health Geogr - Neighborhood deprivation, vehicle ownership, and potential spatial access to a variety of fruits and vegetables in a large rural area in Texas. ( 0,722484275741736 )
J Am Med Inform Assoc - The Regional Healthcare Ecosystem Analyst (RHEA): a simulation modeling tool to assist infectious disease control in a health system. ( 0,717613897020112 )
Int J Comput Assist Radiol Surg - A PACS archive architecture supported on cloud services. ( 0,707574753958611 )
AMIA Annu Symp Proc - The SHARPn project on secondary use of Electronic Medical Record data: progress, plans, and possibilities. ( 0,699066769524135 )
Int J Med Inform - A Public Health Grid (PHGrid): Architecture and value proposition for 21st century public health. ( 0,698378992826822 )
J Am Med Inform Assoc - Data governance requirements for distributed clinical research networks: triangulating perspectives of diverse stakeholders. ( 0,675103950992906 )
Comput Methods Programs Biomed - Cloud based intelligent system for delivering health care as a service. ( 0,671889228691309 )
J. Med. Internet Res. - Open source, open standards, and health care information systems. ( 0,669870568047317 )
Int J Med Inform - The essential role of reconfiguration capabilities in the implementation of HIV-related health information exchanges. ( 0,664672847412401 )
J Med Syst - Research on application information system integration platform in medicine manufacturing enterprise. ( 0,664151621123055 )
J. Med. Internet Res. - Mobile health (mHealth) approaches and lessons for increased performance and retention of community health workers in low- and middle-income countries: a review. ( 0,660271826315475 )
J Biomed Inform - Steps towards a digital health ecosystem. ( 0,659423361532051 )
J Med Syst - Integration of footprints information systems in palliative care: the case of Medical Center of Central Georgia. ( 0,658927405433483 )
AMIA Annu Symp Proc - Multi-National, Multi-Institutional Analysis of Clinical Decision Support Data Needs to Inform Development of the HL7 Virtual Medical Record Standard. ( 0,654626137694932 )
Spat Spatiotemporal Epidemiol - The role of public health and how boundary analysis can provide a tool for public health investigations: the public health perspective. ( 0,653666761561622 )
BMC Med Inform Decis Mak - The use of regional platforms for managing electronic health records for the production of regional public health indicators in France. ( 0,652309875201989 )
Methods Inf Med - Architectural approaches for HL7-based health information systems implementation. ( 0,645653209983287 )
AMIA Annu Symp Proc - Comprehensive yet scalable health information systems for low resource settings: a collaborative effort in sierra leone. ( 0,645607934809394 )
AMIA Annu Symp Proc - Development and use of a medication history service associated with a health information exchange: architecture and preliminary findings. ( 0,645203094731231 )
J. Med. Internet Res. - Using online health communities to deliver patient-centered care to people with chronic conditions. ( 0,645045373746974 )
J Chem Inf Model - ChemCalc: a building block for tomorrow's chemical infrastructure. ( 0,642524435576774 )
Telemed J E Health - Formative second opinion: qualifying health professionals for the unified health system through the Brazilian Telehealth Program. ( 0,641615940333203 )
Int J Health Geogr - Methods to measure potential spatial access to delivery care in low- and middle-income countries: a case study in rural Ghana. ( 0,639468445664117 )
J Integr Bioinform - Bioinformatics strategies in life sciences: from data processing and data warehousing to biological knowledge extraction. ( 0,638935206426347 )
Health Info Libr J - Health information support provided by professional associations in Canada. ( 0,637150087773494 )
J Am Med Inform Assoc - Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting. ( 0,636856841807298 )
Health Info Libr J - If you cannot beat them, join them! Using Health 2.0 and popular Internet applications to improve information literacy. ( 0,63629846335053 )
BMC Med Inform Decis Mak - Architecture of a consent management suite and integration into IHE-based Regional Health Information Networks. ( 0,63619185758474 )
AMIA Annu Symp Proc - Preparing for an aging population and improving chronic disease management. ( 0,634986708929985 )
Health Info Libr J - Information needs of public health practitioners: a review of the literature. ( 0,634969752957131 )
Perspect Health Inf Manag - Reasons for deficiencies in health information laws in Iran. ( 0,63284971660302 )
Geospat Health - Using geographical information systems for defining the accessibility to health care facilities in Jeddah City, Saudi Arabia. ( 0,6307506547063 )
J Med Syst - Cloud-based hospital information system as a service for grassroots healthcare institutions. ( 0,629997156929214 )
Int J Health Geogr - Development of spatial density maps based on geoprocessing web services: application to tuberculosis incidence in Barcelona, Spain. ( 0,629689792288826 )
J. Med. Internet Res. - The emergent discipline of health web science. ( 0,628706154919525 )
J. Med. Internet Res. - Analysis of the definition and utility of personal health records using Q methodology. ( 0,628481909227843 )
J Am Med Inform Assoc - The National Alliance for Medical Image Computing, a roadmap initiative to build a free and open source software infrastructure for translational research in medical image analysis. ( 0,626731756922692 )
Methods Inf Med - Outcomes assessment of the regional health information exchange: a five-year follow-up study. ( 0,624856239740086 )
BMC Med Inform Decis Mak - The human resource information system: a rapid appraisal of Pakistan's capacity to employ the tool. ( 0,620208789234646 )
Spat Spatiotemporal Epidemiol - Investigating impacts of positional error on potential health care accessibility. ( 0,620038231578163 )
J Am Med Inform Assoc - Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS): architecture. ( 0,618074135393413 )
J Am Med Inform Assoc - Query Health: standards-based, cross-platform population health surveillance. ( 0,613822498847345 )
Int J Med Inform - A Rasch model analysis of technology usage in Minnesota hospitals. ( 0,607659412020159 )
Perspect Health Inf Manag - Health information exchange between jails and their communities: a bridge that is needed under healthcare reform. ( 0,60690649944869 )
J. Med. Internet Res. - Collaborative biomedicine in the age of big data: the case of cancer. ( 0,605970395235675 )
Healthc (Amst) - Supporting HITECH implementation and assessing lessons for the future: The role of program evaluation. ( 0,60593178122114 )
J Am Med Inform Assoc - Shifts in the architecture of the Nationwide Health Information Network. ( 0,605167412069914 )
Int J Med Inform - Characteristics of health IT outage and suggested risk management strategies: an analysis of historical incident reports in China. ( 0,602234521417376 )
AMIA Annu Symp Proc - ARX--A Comprehensive Tool for Anonymizing Biomedical Data. ( 0,601955076593517 )
BMC Med Inform Decis Mak - A national survey of health service infrastructure and policy impacts on access to computerised CBT in Scotland. ( 0,601940507437462 )
J Am Med Inform Assoc - Why common carrier and network neutrality principles apply to the Nationwide Health Information Network (NWHIN). ( 0,60172201660804 )
Telemed J E Health - Federal efforts to define and advance telehealth--a work in progress. ( 0,601627393218143 )
J Med Syst - Predefined three tier business intelligence architecture in healthcare enterprise. ( 0,60117095572748 )
Int J Med Inform - Ethical and legal challenges for health telematics in a global world: telehealth and the technological imperative. ( 0,600178242508567 )
Int J Health Geogr - Spatial optimization of residential care facility locations in Beijing, China: maximum equity in accessibility. ( 0,599477855286721 )
Perspect Health Inf Manag - Long-term care and health information technology: opportunities and responsibilities for long-term and post-acute care providers. ( 0,598848957890519 )
Perspect Health Inf Manag - Innovation in Indian healthcare: using health information technology to achieve health equity for American Indian and Alaska Native populations. ( 0,598130150458785 )
AMIA Annu Symp Proc - The training and support needs of faculty and students using a health information technology system were significant: a case study in a dental school. ( 0,597982317756481 )
J Am Med Inform Assoc - Implementation of an innovative, integrated electronic medical record (EMR) and public health information exchange for HIV/AIDS. ( 0,597655487640758 )
AMIA Annu Symp Proc - Implementation of interinstitutional and transnational remote terminology services. ( 0,597211504316167 )
J Am Med Inform Assoc - Sociotechnical challenges to developing technologies for patient access to health information exchange data. ( 0,596703410270584 )
Int J Health Geogr - Injury surveillance in low-resource settings using Geospatial and Social Web technologies. ( 0,596159602176053 )
J Am Med Inform Assoc - Implementing health information exchange for public health reporting: a comparison of decision and risk management of three regional health information organizations in New York state. ( 0,595907146017622 )
Methods Inf Med - The lower saxony bank of health. rationale, principles, services, organization and architectural framework. ( 0,595905252242024 )
J Integr Bioinform - Data partitioning enables the use of standard SOAP Web Services in genome-scale workflows. ( 0,594607036098869 )
Methods Inf Med - Supporting translational research on inherited cardiomyopathies through information technology. ( 0,593526212894148 )
Int J Med Inform - Empowering citizens with access control mechanisms to their personal health resources. ( 0,593248600211399 )
J Biomed Inform - A transparent and transportable methodology for evaluating Data Linkage software. ( 0,593245034091843 )
Health Info Libr J - Dissemination of public health information: key tools utilised by the NECOBELAC network in Europe and Latin America. ( 0,592242704614196 )
Int J Health Geogr - Geographical variation of unmet medical needs in Italy: a multivariate logistic regression analysis. ( 0,591535490656892 )
BMC Med Inform Decis Mak - Implementing computerised Aboriginal and Torres Strait Islander health checks in primary care for clinical care and research: a process evaluation. ( 0,590819610328239 )
Inform Health Soc Care - Information technology and hospice palliative care: social, cultural, ethical and technical implications in a rural setting. ( 0,590191156496302 )
Int J Med Inform - Trustworthy reuse of health data: a transnational perspective. ( 0,589627352016448 )
Methods Inf Med - IMPACT: a generic tool for modelling and simulating public health policy. ( 0,58947209028676 )
Healthc (Amst) - How it's done: Keys to implementation of delivery system reform. ( 0,589069154097732 )
Wiley Interdiscip Rev Syst Biol Med - Integration of proteomics into systems biology of cancer. ( 0,587448003159353 )
Health Informatics J - Electronic patient information systems and care pathways: the organisational challenges of implementation and integration. ( 0,586612750850789 )
Int J Health Geogr - Spatial access to residential care resources in Beijing, China. ( 0,586548851285701 )
J Am Med Inform Assoc - Ten key considerations for the successful implementation and adoption of large-scale health information technology. ( 0,585956009273767 )
Telemed J E Health - Meeting the continuing education needs of rural mental health providers. ( 0,585673580831544 )
Int J Med Inform - Improved HIV-related outcomes associated with implementation of a novel public health information exchange. ( 0,585530010675719 )
Methods Inf Med - Enabling GeneHunter as a grid service: a case study for implementing analytical services in biomedical grids. ( 0,585427670563501 )
Med Decis Making - Health technology assessment: an evidence-based medicine perspective. ( 0,585421105511931 )
Int J Med Inform - Collective action for a common service platform for independent living services. ( 0,585125288714091 )
J Telemed Telecare - National telemental health responses to a major bushfire disaster. ( 0,58406765572726 )
BMC Med Inform Decis Mak - Communicating information about what not to do to consumers. ( 0,584060114022311 )
J Med Syst - A novel web-enabled healthcare solution on health vault system. ( 0,583839518888675 )
Int J Health Geogr - Optimization of preventive health care facility locations. ( 0,582030579268342 )
J Am Med Inform Assoc - Lessons from the Canadian national health information technology plan for the United States: opinions of key Canadian experts. ( 0,58064926138359 )
Healthc (Amst) - Geographic variation in health IT and health care outcomes: A snapshot before the meaningful use incentive program began. ( 0,580594382295583 )
Int J Med Inform - Transforming healthcare with information technology in Japan: a review of policy, people, and progress. ( 0,57973070603763 )
J Med Syst - A review of the personal health records in selected countries and Iran. ( 0,5795122719768 )
Int J Health Geogr - It's a long, long walk: accessibility to hospitals, maternity and integrated health centers in Niger. ( 0,579413656015103 )
J. Med. Internet Res. - Opportunities and challenges of cloud computing to improve health care services. ( 0,578879262615363 )
Int J Health Geogr - Spatial modelling of healthcare utilisation for treatment of fever in Namibia. ( 0,57623887645757 )