BMC Med Inform Decis Mak - The anxious wait: assessing the impact of patient accessible EHRs for breast cancer patients.

Tópicos

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Resumo

CKGROUND: Personal health records (PHRs) provide patients with access to personal health information (PHI) and targeted education. The use of PHRs has the potential to improve a wide range of outcomes, including empowering patients to be more active participants in their care. There are a number of widespread barriers to adoption, including privacy and security considerations. In addition, there are clinical concerns that patients could become anxious or distressed when accessing complex medical information. This study assesses the implementation of a PHR, and its impact on anxiety levels and perceptions of self-efficacy in a sample of breast cancer patients.METHODS: A quasi-experimental pre-test/post-test design was used to collect data from participants to evaluate the use of the PHR. Study participants completed background and pre-assessment questionnaires and were then registered into the portal. By entering an activation key, participants were then able to review their lab results and diagnostic imaging reports. After six weeks, participants completed post-assessment questionnaires and usability heuristics. All data were collected using an online survey tool. Data were cleaned and analyzed using SAS v9.1.RESULTS: A total of 311 breast cancer patients completed demographic and pre-assessment questionnaires, 250 registered to use the online intervention, and 125 participants completed all required study elements. Matching the pre- and post-anxiety scores demonstrated a decrease in mean anxiety scores (-2.2, p = 0.03); the chemotherapy sub-group had a statistically insignificant mean increase (1.8, p = .14). There was no mean change in self-efficacy scores.CONCLUSIONS: Participants generally found the portal easy to use; however, the perceived value of improved participation was not detected in the self-efficacy scores. Having access to personal health information did not increase anxiety levels. While these results suggest that the use of this PHR may be of benefit for informing patients, further research is required to investigate the impact on the patients experiences, their participation in their care, their relationships with the health care team, and their health outcomes.

Resumo Limpo

ckground person health record phrs provid patient access person health inform phi target educ use phrs potenti improv wide rang outcom includ empow patient activ particip care number widespread barrier adopt includ privaci secur consider addit clinic concern patient becom anxious distress access complex medic inform studi assess implement phr impact anxieti level percept selfefficaci sampl breast cancer patientsmethod quasiexperiment pretestposttest design use collect data particip evalu use phr studi particip complet background preassess questionnair regist portal enter activ key particip abl review lab result diagnost imag report six week particip complet postassess questionnair usabl heurist data collect use onlin survey tool data clean analyz use sas vresult total breast cancer patient complet demograph preassess questionnair regist use onlin intervent particip complet requir studi element match pre postanxieti score demonstr decreas mean anxieti score p chemotherapi subgroup statist insignific mean increas p mean chang selfefficaci scoresconclus particip general found portal easi use howev perceiv valu improv particip detect selfefficaci score access person health inform increas anxieti level result suggest use phr may benefit inform patient research requir investig impact patient experi particip care relationship health care team health outcom

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