Telemed J E Health - Attitude of families of patients with genetic diseases to use m-health technologies.

Tópicos

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Resumo

CKGROUND: Dealing with complex chronic disease may take great advantage of mobile health (m-health) technologies. We performed an online survey on the perception of use of m-health technologies among families of patients affected with Down's syndrome, Williams' syndrome, and 22q11 deletion syndrome.MATERIALS AND METHODS: The survey included questions on sociodemographic characteristics, availability of a connection to the Internet on different devices, interest in m-health technologies, and functions to be implemented in order to meet family needs. Through multivariate analysis we studied the association between characteristics of enrolled families and interest in m-health.RESULTS: In total, 166 people completed the questionnaire. Forty-seven percent connected to the Internet through a mobile phone, versus 34% through a tablet. Eighty percent were interested in m-health solutions for their child's disease; the main reasons of interest were saving time (49%) and being more involved in the disease management (49%). Desired m-health services were aimed at rapid consultation with a physician (68%) and at retrieving updated information on research and on ongoing clinical studies (66%). Interest in m-health services was associated with availability of a mobile Internet connection, whereas no association was found with living in a remote area.CONCLUSIONS: Families of patients with Down's syndrome, Williams' syndrome, and 22q11 deletion syndrome show a positive attitude toward m-health technologies. Such syndromes represent a good model for translating published recommendations into m-health applications, which may improve compliance. Expectations regarding m-health lead to patient empowerment, and m-health applications are perceived as useful not only for people living far away from healthcare centers.

Resumo Limpo

ckground deal complex chronic diseas may take great advantag mobil health mhealth technolog perform onlin survey percept use mhealth technolog among famili patient affect down syndrom william syndrom q delet syndromemateri method survey includ question sociodemograph characterist avail connect internet differ devic interest mhealth technolog function implement order meet famili need multivari analysi studi associ characterist enrol famili interest mhealthresult total peopl complet questionnair fortyseven percent connect internet mobil phone versus tablet eighti percent interest mhealth solut child diseas main reason interest save time involv diseas manag desir mhealth servic aim rapid consult physician retriev updat inform research ongo clinic studi interest mhealth servic associ avail mobil internet connect wherea associ found live remot areaconclus famili patient down syndrom william syndrom q delet syndrom show posit attitud toward mhealth technolog syndrom repres good model translat publish recommend mhealth applic may improv complianc expect regard mhealth lead patient empower mhealth applic perceiv use peopl live far away healthcar center

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