Telemed J E Health - Developing the Native People for Cancer Control Telehealth Network.

Tópicos

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Resumo

JECTIVE: We aimed to develop a telehealth network to deliver postdiagnosis cancer care clinical services and education to American Indian and Alaska Native patients, their families, and their healthcare providers. We also sought to identify the challenges and opportunities of implementing such a telehealth-based application for this rural and underserved population.MATERIALS AND METHODS: We followed a participatory formative evaluation approach to engage all stakeholders in the telehealth network design and implementation. This approach allowed us to identify and address technical and infrastructure barriers, lack of previous experience with telehealth, and political, legal, and historical challenges.RESULTS: Between September 2006 and August 2009, nine tribal clinics in Washington and 26 clinical sites in Alaska had participated in the telehealth network activities. Network programming included cancer education presentations, case conferences, and cancer survivor support groups. Twenty-seven cancer education presentations were held, with a total provider attendance of 369. Forty-four case conferences were held, with a total of 129 cases discussed. In total, 513 patient encounters took place. Keys to success included gaining provider and community acceptance, working closely with respected tribal members, understanding tribal sovereignty and governance, and working in partnership with cultural liaisons.CONCLUSION: The telehealth network exceeded expectations in terms of the number of participating sites and the number of patients served. Following a participatory formative evaluation approach contributed to the success of this telehealth network and demonstrated the importance of community involvement in all stages of telehealth system design and implementation.

Resumo Limpo

jectiv aim develop telehealth network deliv postdiagnosi cancer care clinic servic educ american indian alaska nativ patient famili healthcar provid also sought identifi challeng opportun implement telehealthbas applic rural underserv populationmateri method follow participatori format evalu approach engag stakehold telehealth network design implement approach allow us identifi address technic infrastructur barrier lack previous experi telehealth polit legal histor challengesresult septemb august nine tribal clinic washington clinic site alaska particip telehealth network activ network program includ cancer educ present case confer cancer survivor support group twentyseven cancer educ present held total provid attend fortyfour case confer held total case discuss total patient encount took place key success includ gain provid communiti accept work close respect tribal member understand tribal sovereignti govern work partnership cultur liaisonsconclus telehealth network exceed expect term number particip site number patient serv follow participatori format evalu approach contribut success telehealth network demonstr import communiti involv stage telehealth system design implement

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