Telemed J E Health - Implementation of a wireless device for real-time telemedical assistance of home-ventilated amyotrophic lateral sclerosis patients: a feasibility study.

Tópicos

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Resumo

Neuromuscular disorders encompass a wide category of illnesses with a significant burden on the patient, family, and society. Telehome monitoring presents an alternative for closer follow-up, by ensuring timely transmission of data and prompting medical support before deterioration occurs. We used telehome monitoring devices for amyotrophic lateral sclerosis patients with respiratory failure in a clinic. This instrument directly acts as a digital recorder of parameters received from an external instrument, such as the bi-level ventilator, and contains an internal modem for direct connection to the Internet, thereby allowing bidirectional flexibility in collecting data and parameter changes whenever needed. The use and acceptance of the system was investigated with patients and all therapists involved. The instrument was found to be user-friendly and effective by the researchers, being practical for both patients and therapists. Therefore, it can be integrated into a routine home care application based on a large respiratory rehabilitation center. The device was extensively tested, and in an ongoing randomized controlled study it is being investigated whether this management strategy is able to hasten the ventilator adaptation process and to diminish the overall utilization of health services, with concurrent economic viability. We conclude that home telemonitoring represents a positive contribution to the management of chronic patients and raised awareness of it should be considered in a near future. This portable telemonitoring device provides an opportune approach to better understand and recognize a ventilatory pattern through long-term ventilation monitoring in the home environment.

Resumo Limpo

neuromuscular disord encompass wide categori ill signific burden patient famili societi telehom monitor present altern closer followup ensur time transmiss data prompt medic support deterior occur use telehom monitor devic amyotroph later sclerosi patient respiratori failur clinic instrument direct act digit record paramet receiv extern instrument bilevel ventil contain intern modem direct connect internet therebi allow bidirect flexibl collect data paramet chang whenev need use accept system investig patient therapist involv instrument found userfriend effect research practic patient therapist therefor can integr routin home care applic base larg respiratori rehabilit center devic extens test ongo random control studi investig whether manag strategi abl hasten ventil adapt process diminish overal util health servic concurr econom viabil conclud home telemonitor repres posit contribut manag chronic patient rais awar consid near futur portabl telemonitor devic provid opportun approach better understand recogn ventilatori pattern longterm ventil monitor home environ

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