BMC Med Inform Decis Mak - Communicating cancer treatment information using the Web: utilizing the patient's perspective in website development.

Tópicos

{ care(1570) inform(1187) nurs(1089) }
{ health(1844) social(1437) communiti(874) }
{ decis(3086) make(1611) patient(1517) }
{ system(1050) medic(1026) inform(1018) }
{ cancer(2502) breast(956) screen(824) }
{ use(976) code(926) identifi(902) }
{ intervent(3218) particip(2042) group(1664) }
{ inform(2794) health(2639) internet(1427) }
{ drug(1928) target(777) effect(648) }
{ network(2748) neural(1063) input(814) }
{ perform(999) metric(946) measur(919) }
{ analysi(2126) use(1163) compon(1037) }
{ take(945) account(800) differ(722) }
{ studi(2440) review(1878) systemat(933) }
{ search(2224) databas(1162) retriev(909) }
{ case(1353) use(1143) diagnosi(1136) }
{ risk(3053) factor(974) diseas(938) }
{ group(2977) signific(1463) compar(1072) }
{ detect(2391) sensit(1101) algorithm(908) }
{ data(1737) use(1416) pattern(1282) }
{ measur(2081) correl(1212) valu(896) }
{ concept(1167) ontolog(924) domain(897) }
{ clinic(1479) use(1117) guidelin(835) }
{ data(1714) softwar(1251) tool(1186) }
{ design(1359) user(1324) use(1319) }
{ method(984) reconstruct(947) comput(926) }
{ research(1085) discuss(1038) issu(1018) }
{ perform(1367) use(1326) method(1137) }
{ studi(1119) effect(1106) posit(819) }
{ health(3367) inform(1360) care(1135) }
{ medic(1828) order(1363) alert(1069) }
{ sampl(1606) size(1419) use(1276) }
{ activ(1138) subject(705) human(624) }
{ can(981) present(881) function(850) }
{ result(1111) use(1088) new(759) }
{ implement(1333) system(1263) develop(1122) }
{ survey(1388) particip(1329) question(1065) }
{ activ(1452) weight(1219) physic(1104) }
{ model(3404) distribut(989) bayesian(671) }
{ can(774) often(719) complex(702) }
{ imag(1947) propos(1133) code(1026) }
{ system(1976) rule(880) can(841) }
{ imag(1057) registr(996) error(939) }
{ bind(1733) structur(1185) ligand(1036) }
{ sequenc(1873) structur(1644) protein(1328) }
{ method(1219) similar(1157) match(930) }
{ featur(3375) classif(2383) classifi(1994) }
{ imag(2830) propos(1344) filter(1198) }
{ imag(2675) segment(2577) method(1081) }
{ patient(2315) diseas(1263) diabet(1191) }
{ motion(1329) object(1292) video(1091) }
{ assess(1506) score(1403) qualiti(1306) }
{ treatment(1704) effect(941) patient(846) }
{ surgeri(1148) surgic(1085) robot(1054) }
{ framework(1458) process(801) describ(734) }
{ problem(2511) optim(1539) algorithm(950) }
{ error(1145) method(1030) estim(1020) }
{ chang(1828) time(1643) increas(1301) }
{ learn(2355) train(1041) set(1003) }
{ algorithm(1844) comput(1787) effici(935) }
{ extract(1171) text(1153) clinic(932) }
{ method(1557) propos(1049) approach(1037) }
{ control(1307) perform(991) simul(935) }
{ model(2220) cell(1177) simul(1124) }
{ general(901) number(790) one(736) }
{ featur(1941) imag(1645) propos(1176) }
{ howev(809) still(633) remain(590) }
{ data(3963) clinic(1234) research(1004) }
{ studi(1410) differ(1259) use(1210) }
{ import(1318) role(1303) understand(862) }
{ model(2341) predict(2261) use(1141) }
{ visual(1396) interact(850) tool(830) }
{ compound(1573) activ(1297) structur(1058) }
{ blood(1257) pressur(1144) flow(957) }
{ spatial(1525) area(1432) region(1030) }
{ record(1888) medic(1808) patient(1693) }
{ model(3480) simul(1196) paramet(876) }
{ monitor(1329) mobil(1314) devic(1160) }
{ ehr(2073) health(1662) electron(1139) }
{ state(1844) use(1261) util(961) }
{ research(1218) medic(880) student(794) }
{ patient(2837) hospit(1953) medic(668) }
{ model(2656) set(1616) predict(1553) }
{ data(2317) use(1299) case(1017) }
{ age(1611) year(1155) adult(843) }
{ signal(2180) analysi(812) frequenc(800) }
{ cost(1906) reduc(1198) effect(832) }
{ gene(2352) biolog(1181) express(1162) }
{ data(3008) multipl(1320) sourc(1022) }
{ first(2504) two(1366) second(1323) }
{ time(1939) patient(1703) rate(768) }
{ patient(1821) servic(1111) care(1106) }
{ use(2086) technolog(871) perceiv(783) }
{ structur(1116) can(940) graph(676) }
{ high(1669) rate(1365) level(1280) }
{ use(1733) differ(960) four(931) }
{ estim(2440) model(1874) function(577) }
{ process(1125) use(805) approach(778) }
{ method(1969) cluster(1462) data(1082) }
{ method(2212) result(1239) propos(1039) }

Resumo

CKGROUND: Online cancer information can support patients in making treatment decisions. However, such information may not be adequately tailored to the patient's perspective, particularly if healthcare professionals do not sufficiently engage patient groups when developing online information. We applied qualitative user testing during the development of a patient information website on stereotactic ablative radiotherapy (SABR), a new guideline-recommended curative treatment for early-stage lung cancer.METHODS: We recruited 27 participants who included patients referred for SABR and their relatives. A qualitative user test of the website was performed in 18 subjects, followed by an additional evaluation by users after website redesign (N=9). We primarily used the 'thinking aloud' approach and semi-structured interviewing. Qualitative data analysis was performed to assess the main findings reported by the participants.RESULTS: Study participants preferred receiving different information that had been provided initially. Problems identified with the online information related to comprehending medical terminology, understanding the scientific evidence regarding SABR, and appreciating the side-effects associated with SABR. Following redesign of the website, participants reported fewer problems with understanding content, and some additional recommendations for better online information were identified.CONCLUSIONS: Our findings indicate that input from patients and their relatives allows for a more comprehensive and usable website for providing treatment information. Such a website can facilitate improved patient participation in treatment decision-making for cancer.

Resumo Limpo

ckground onlin cancer inform can support patient make treatment decis howev inform may adequ tailor patient perspect particular healthcar profession suffici engag patient group develop onlin inform appli qualit user test develop patient inform websit stereotact ablat radiotherapi sabr new guidelinerecommend curat treatment earlystag lung cancermethod recruit particip includ patient refer sabr relat qualit user test websit perform subject follow addit evalu user websit redesign n primarili use think aloud approach semistructur interview qualit data analysi perform assess main find report participantsresult studi particip prefer receiv differ inform provid initi problem identifi onlin inform relat comprehend medic terminolog understand scientif evid regard sabr appreci sideeffect associ sabr follow redesign websit particip report fewer problem understand content addit recommend better onlin inform identifiedconclus find indic input patient relat allow comprehens usabl websit provid treatment inform websit can facilit improv patient particip treatment decisionmak cancer

Resumos Similares

Inform Health Soc Care - Specifying process requirements for holistic care. ( 0,766929943027118 )
Int J Med Inform - Nurses' experiences of using an interactive tailored patient assessment tool one year past implementation. ( 0,762050418583358 )
Int J Med Inform - Does an integrated Emergency Department Information System change the sequence of clinical work? A mixed-method cross-site study. ( 0,756027075642843 )
J. Med. Internet Res. - Perceived barriers and facilitators of using a Web-based interactive decision aid for colorectal cancer screening in community practice settings: findings from focus groups with primary care clinicians and medical office staff. ( 0,734243759315 )
AMIA Annu Symp Proc - Describing the Clinical Communication Space through a Model of Common Ground: 'you don't know what you don't know'. ( 0,727231577161339 )
BMC Med Inform Decis Mak - Quality of prenatal and maternal care: bridging the know-do gap (QUALMAT study): an electronic clinical decision support system for rural Sub-Saharan Africa. ( 0,710702395708722 )
Int J Med Inform - A model of awareness to enhance our understanding of interprofessional collaborative care delivery and health information system design to support it. ( 0,704761162614682 )
Int J Med Inform - Using Cognitive Work Analysis to fit decision support tools to nurse managers' work flow. ( 0,702378061109077 )
Health Info Libr J - Health education for Somali Bantu refugees via home visits. ( 0,689265734834286 )
Inform Health Soc Care - 'The web is not enough, it's a base'--an explorative study of what needs a web-based support system for young carers must meet. ( 0,68541054762173 )
Int J Med Inform - Use of electronic information systems in nursing management. ( 0,685281660851836 )
Healthc (Amst) - Flexible implementation and integration of new team members to support patient-centered care. ( 0,675146082806544 )
AMIA Annu Symp Proc - Coordination of care for complex pediatric patients: perspectives from providers and parents. ( 0,673190594229865 )
Int J Med Inform - Effect of a nursing information system on the quality of information processing in nursing: An evaluation study using the HIS-monitor instrument. ( 0,672945806559285 )
AMIA Annu Symp Proc - Examining the Multi-level Fit between Work and Technology in a Secure Messaging Implementation. ( 0,672622059276666 )
Appl Clin Inform - Insight into the sharing of medical images: physician, other health care providers, and staff experience in a variety of medical settings. ( 0,667221155789393 )
J. Med. Internet Res. - Young men's views toward the barriers and facilitators of Internet-based Chlamydia trachomatis screening: qualitative study. ( 0,66668874855566 )
Healthc (Amst) - The EFECT framework for interprofessional education in the patient centered medical home. ( 0,665494986686424 )
Int J Med Inform - Multi-disciplinary communication networks for skin risk assessment in nursing homes with high IT sophistication. ( 0,664198511995836 )
Int J Med Inform - Lost in translation: the challenges of seamless integration in nursing practices. ( 0,663350772384661 )
Int J Med Inform - Processes and outcomes of developing a continuity of care document for use as a personal health record by people living with HIV/AIDS in New York City. ( 0,657344265909016 )
Int J Med Inform - Effects of a computerized decision support system on pressure ulcers and malnutrition in nursing homes for the elderly. ( 0,656053841897386 )
BMC Med Inform Decis Mak - Addressing tensions when popular media and evidence-based care collide. ( 0,65369680734046 )
Int J Med Inform - Managing variations from surgical care plans: challenges for coordination. ( 0,653020762255866 )
J Am Med Inform Assoc - Intensive care unit nurses' information needs and recommendations for integrated displays to improve nurses' situation awareness. ( 0,650430533169565 )
Healthc (Amst) - When scaling prevention means scaling demand: Voluntary medical male circumcision in Nyanza Province, Kenya. ( 0,649569802461631 )
Telemed J E Health - Implementing home blood glucose and blood pressure telemonitoring in primary care practices for patients with diabetes: lessons learned. ( 0,649330753457225 )
AMIA Annu Symp Proc - To talk or not to talk: exploring culturally diverse patients' health information communication choices. ( 0,648028571187291 )
BMC Med Inform Decis Mak - Improving the effectiveness of electronic health record-based referral processes. ( 0,647400948986207 )
J. Med. Internet Res. - Evaluating user experiences of the secure messaging tool on the Veterans Affairs' patient portal system. ( 0,646425912636233 )
BMC Med Inform Decis Mak - National survey focusing on the crucial information needs of intensive care charge nurses and intensivists: same goal, different demands. ( 0,64613145383237 )
J Biomed Inform - Informing the design of clinical decision support services for evaluation of children with minor blunt head trauma in the emergency department: a sociotechnical analysis. ( 0,645457137182299 )
Int J Med Inform - An exploration of the impact of computerized patient documentation on clinical collaboration. ( 0,644510593776732 )
AMIA Annu Symp Proc - Development of a nursing handoff tool: a web-based application to enhance patient safety. ( 0,64450694050449 )
AMIA Annu Symp Proc - Falling through the cracks: information breakdowns in critical care handoff communication. ( 0,643493942863878 )
J Clin Monit Comput - Clinical refinement of the automatic lung parameter estimator (ALPE). ( 0,643426272646377 )
Appl Clin Inform - Advice for Decision Makers Based on an Electronic Health Record Evaluation at a Program for All-inclusive Care for Elders Site. ( 0,641789518056594 )
J Med Syst - Design and development of a mobile-based system for supporting emergency triage decision making. ( 0,640911163196077 )
Telemed J E Health - The practice of telehealth by nurses: an experience in primary healthcare in Brazil. ( 0,640229696095229 )
AMIA Annu Symp Proc - Clinical Workflow Observations to Identify Opportunities for Nurse, Physicians and Patients to Share a Patient-centered Plan of Care. ( 0,639439718039647 )
J. Med. Internet Res. - An evaluation of the use of smartphones to communicate between clinicians: a mixed-methods study. ( 0,638662312574864 )
J. Med. Internet Res. - A web-based tool to support shared decision making for people with a psychotic disorder: randomized controlled trial and process evaluation. ( 0,63624553305999 )
Int J Med Inform - Health information exchange interventions can enhance quality and continuity of HIV care. ( 0,635976980052679 )
Int J Med Inform - Going paperless at the emergency department: a socio-technical study of an information system for patient tracking. ( 0,635709202210643 )
J Am Med Inform Assoc - The intended and unintended consequences of communication systems on general internal medicine inpatient care delivery: a prospective observational case study of five teaching hospitals. ( 0,635000658442138 )
BMC Med Inform Decis Mak - Participatory eHealth development to support nurses in antimicrobial stewardship. ( 0,632528436853336 )
AMIA Annu Symp Proc - A Framework for Incorporating Patient Preferences to Deliver Participatory Medicine via Interdisciplinary Healthcare Teams. ( 0,631639712756567 )
Telemed J E Health - Task-technology fit of video telehealth for nurses in an outpatient clinic setting. ( 0,630437262848454 )
BMC Med Inform Decis Mak - Successful implementation of new technologies in nursing care: a questionnaire survey of nurse-users. ( 0,630370532570693 )
J Biomed Inform - Bridging gaps in handoffs: a continuity of care based approach. ( 0,626411744689787 )
J Biomed Inform - Intra-operative decision making: more than meets the eye. ( 0,626061485578801 )
J Am Med Inform Assoc - Patient-centered care requires a patient-oriented workflow model. ( 0,623049586397227 )
J. Med. Internet Res. - How strong are passwords used to protect personal health information in clinical trials? ( 0,622460077121937 )
Appl Clin Inform - Design challenges for electronic medication administration record systems in residential aged care facilities: a formative evaluation. ( 0,621812091807641 )
Int J Med Inform - The success of a management information system in health care - a case study from Finland. ( 0,619281377466732 )
BMC Med Inform Decis Mak - Development of a culturally appropriate computer-delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV. ( 0,619030126031611 )
Int J Med Inform - Bedside information technology to support patient-centered care. ( 0,617160810004476 )
Int J Med Inform - Guidelines for maternal and neonatal point of care: needs of and attitudes towards a computerized clinical decision support system in rural Burkina Faso. ( 0,616981682129466 )
J Am Med Inform Assoc - Social but safe? Quality and safety of diabetes-related online social networks. ( 0,616070164007516 )
J. Med. Internet Res. - Growing a professional network to over 3000 members in less than 4 years: evaluation of InspireNet, British Columbia's virtual nursing health services research network. ( 0,616039168509175 )
Int J Med Inform - The impact of medical record technologies on collaboration in emergency medicine. ( 0,614561105686051 )
J. Med. Internet Res. - Experiences of multidisciplinary development team members during user-centered design of telecare products and services: a qualitative study. ( 0,614133805635563 )
Int J Med Inform - Evaluation of the national nursing model and four nursing documentation systems in Finland--lessons learned and directions for the future. ( 0,613955634683566 )
J Med Syst - Advanced nurse-patient communication system. ( 0,612215131697118 )
Healthc (Amst) - Association of medical home team-based care functions and perceived improvements in patient-centered care at VHA primary care clinics. ( 0,611432659289127 )
Health Informatics J - The coordination hub: Toward patient-centered and collaborative care processes. ( 0,610608178397482 )
Int J Med Inform - Exploring practice variation in preventive pressure-ulcer care using data from a clinical data repository. ( 0,61014668516165 )
Health Informatics J - Designing and evaluating a balanced scorecard for a health information management department in a Canadian urban non-teaching hospital. ( 0,609736986799278 )
J Am Med Inform Assoc - The impact of PACS on clinician work practices in the intensive care unit: a systematic review of the literature. ( 0,608216707805527 )
Med Decis Making - Participation of very old adults in health care decisions. ( 0,606454868191592 )
J Innov Health Inform - Using information to deliver safer care: a mixed-methods study exploring general practitioners' information needs in North West London primary care. ( 0,605821527075114 )
Int J Med Inform - Tensions of network security and collaborative work practice: understanding a single sign-on deployment in a regional hospital. ( 0,604811839589889 )
Perspect Health Inf Manag - Incorporating patient perspectives into the personal health record: implications for care and caring. ( 0,604177216863496 )
J Am Med Inform Assoc - Health information exchange technology on the front lines of healthcare: workflow factors and patterns of use. ( 0,6041438016396 )
Inform Health Soc Care - Experiences with using information and communication technology to build a multi-municipal support network for informal carers. ( 0,602706409145503 )
Int J Med Inform - Effects of a computerized decision support system on care planning for pressure ulcers and malnutrition in nursing homes: an intervention study. ( 0,602682569257228 )
Appl Clin Inform - A case report in health information exchange for inter-organizational patient transfers. ( 0,599205052038932 )
J Telemed Telecare - Telehealth in palliative care in the UK: a review of the evidence. ( 0,599038163052785 )
Int J Med Inform - Perceptions of urgency: defining the gap between what physicians and nurses perceive to be an urgent issue. ( 0,59886932061486 )
Int J Med Inform - Organisational influences on nurses' use of clinical decision support systems. ( 0,598743336226324 )
J Am Med Inform Assoc - The discriminatory cost of ICD-10-CM transition between clinical specialties: metrics, case study, and mitigating tools. ( 0,597217043768172 )
J Med Syst - Understanding critical barriers to implementing a clinical information system in a nursing home through the lens of a socio-technical perspective. ( 0,597103670045899 )
Perspect Health Inf Manag - Assessment of success on the RHIA certification examination: a comparison of baccalaureate program graduates and postbaccalaureate certificate program graduates. ( 0,596984905540843 )
BMC Med Inform Decis Mak - Qualitative evaluation of a diabetes electronic decision support tool: views of users. ( 0,596975800837061 )
BMC Med Inform Decis Mak - Methods to identify, study and understand end-user participation in HIT development. ( 0,594499706692209 )
J Am Med Inform Assoc - Towards public health decision support: a systematic review of bidirectional communication approaches. ( 0,594491889419161 )
Comput. Biol. Med. - Smart medical environment at the point of care: auto-tracking clinical interventions at the bed side using RFID technology. ( 0,594265021363801 )
Int J Med Inform - Different usage of the same oncology information system in two hospitals in Sydney--lessons go beyond the initial introduction. ( 0,593277344862734 )
Appl Clin Inform - Understanding interprofessional communication: a content analysis of email communications between doctors and nurses. ( 0,593198022357542 )
Int J Med Inform - The integration of Information and Communication Technology into nursing. ( 0,591934301671263 )
J Med Syst - Data envelopment analysis model for the appraisal and relative performance evaluation of nurses at an intensive care unit. ( 0,590630631229842 )
AMIA Annu Symp Proc - A software communication tool for the tele-ICU. ( 0,590622539077881 )
AMIA Annu Symp Proc - SRCAST-Diagnosis: understanding how different members of a patient-care team interact with clinical decision support system. ( 0,589632752758822 )
Telemed J E Health - Home telehealth: facilitators, barriers, and impact of nurse support among high-risk dialysis patients. ( 0,589540436223074 )
Inform Health Soc Care - Patients' contribution to the development of a web-based plan for integrated care - a participatory design study. ( 0,588976671165317 )
Health Informatics J - Using integrated bio-physiotherapy informatics in home health-care settings: A qualitative analysis of a point-of-care decision support system. ( 0,588554082796796 )
Inform Health Soc Care - Information practices of health care professionals related to patient discharge from hospital. ( 0,588275354067833 )
J Am Med Inform Assoc - Challenges to nurses' efforts of retrieving, documenting, and communicating patient care information. ( 0,588100459030956 )
J Am Med Inform Assoc - Content and functional specifications for a standards-based multidisciplinary rounding tool to maintain continuity across acute and critical care. ( 0,586975250045626 )
J. Med. Internet Res. - Exploring the value of technology to stimulate interprofessional discussion and education: a needs assessment of emergency medicine professionals. ( 0,58591217664752 )