AMIA Annu Symp Proc - Electronic end-of-life care registry: the Utah ePOLST initiative.

Tópicos

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{ survey(1388) particip(1329) question(1065) }
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Resumo

As a patient's end-of-life approaches, it is typical for the disease to be the focus of treatment instead of the dying patient. There is limited congruence between the care preferred by patients and the treatment actually delivered to patients during their end-of-life. The Physician Orders for Life-Sustaining Treatment Paradigm has been endorsed or is in development in all but three states and the District of Columbia in an effort to ensure that patients are provided with adequate opportunities to specify their end-of-life care preferences. However, most states are using paper forms to document these preferences which may be inaccessible when needed. We have developed an electronic end-of-life care registry that allows authorized users to store and retrieve information pertaining to patients' end-of-life care preferences. In this paper, we describe (a) the requirements identified for the registry from the users' perspective and (b) the design and development of the electronic registry.

Resumo Limpo

patient endoflif approach typic diseas focus treatment instead die patient limit congruenc care prefer patient treatment actual deliv patient endoflif physician order lifesustain treatment paradigm endors develop three state district columbia effort ensur patient provid adequ opportun specifi endoflif care prefer howev state use paper form document prefer may inaccess need develop electron endoflif care registri allow author user store retriev inform pertain patient endoflif care prefer paper describ requir identifi registri user perspect b design develop electron registri

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