Health Informatics J - Development and usability testing of a web-based cancer symptom and quality-of-life support intervention.

Tópicos

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Resumo

The feasibility and acceptability of computerized screening and patient-reported outcome measures have been demonstrated in the literature. However, patient-centered management of health information entails two challenges: gathering and presenting data using "patient-tailored" methods and supporting "patient-control" of health information. The design and development of many symptom and quality-of-life information systems have not included opportunities for systematically collecting and analyzing user input. As part of a larger clinical trial, the Electronic Self-Report Assessment for Cancer-II project, participatory design approaches were used to build and test new features and interfaces for patient/caregiver users. The research questions centered on patient/caregiver preferences with regard to the following: (a) content, (b) user interface needs, (c) patient-oriented summary, and (d) patient-controlled sharing of information with family, caregivers, and clinicians. Mixed methods were used with an emphasis on qualitative approaches; focus groups and individual usability tests were the primary research methods. Focus group data were content analyzed, while individual usability sessions were assessed with both qualitative and quantitative methods. We identified 12 key patient/caregiver preferences through focus groups with 6 participants. We implemented seven of these preferences during the iterative design process. We deferred development for some of the preferences due to resource constraints. During individual usability testing (n = 8), we were able to identify 65 usability issues ranging from minor user confusion to critical errors that blocked task completion. The participatory development model that we used led to features and design revisions that were patient centered. We are currently evaluating new approaches for the application interface and for future research pathways. We encourage other researchers to adopt user-centered design approaches when building patient-centered technologies.

Resumo Limpo

feasibl accept computer screen patientreport outcom measur demonstr literatur howev patientcent manag health inform entail two challeng gather present data use patienttailor method support patientcontrol health inform design develop mani symptom qualityoflif inform system includ opportun systemat collect analyz user input part larger clinic trial electron selfreport assess cancerii project participatori design approach use build test new featur interfac patientcaregiv user research question center patientcaregiv prefer regard follow content b user interfac need c patientori summari d patientcontrol share inform famili caregiv clinician mix method use emphasi qualit approach focus group individu usabl test primari research method focus group data content analyz individu usabl session assess qualit quantit method identifi key patientcaregiv prefer focus group particip implement seven prefer iter design process defer develop prefer due resourc constraint individu usabl test n abl identifi usabl issu rang minor user confus critic error block task complet participatori develop model use led featur design revis patient center current evalu new approach applic interfac futur research pathway encourag research adopt usercent design approach build patientcent technolog

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