Inform Health Soc Care - Managing information and knowledge within maternity services: Privacy and consent issues.

Tópicos

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{ health(3367) inform(1360) care(1135) }
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{ can(774) often(719) complex(702) }
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{ system(1976) rule(880) can(841) }
{ patient(2315) diseas(1263) diabet(1191) }
{ take(945) account(800) differ(722) }
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{ age(1611) year(1155) adult(843) }
{ medic(1828) order(1363) alert(1069) }
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{ cost(1906) reduc(1198) effect(832) }
{ group(2977) signific(1463) compar(1072) }
{ gene(2352) biolog(1181) express(1162) }
{ first(2504) two(1366) second(1323) }
{ intervent(3218) particip(2042) group(1664) }
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{ analysi(2126) use(1163) compon(1037) }
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{ high(1669) rate(1365) level(1280) }
{ cancer(2502) breast(956) screen(824) }
{ use(1733) differ(960) four(931) }
{ drug(1928) target(777) effect(648) }
{ implement(1333) system(1263) develop(1122) }
{ estim(2440) model(1874) function(577) }
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{ method(1969) cluster(1462) data(1082) }
{ method(2212) result(1239) propos(1039) }

Resumo

JECTIVE: Electronic Patient Records have improved vastly the quality and efficiency of care delivered. However, the formation of single demographic database and the ease of electronic information sharing give rise to many concerns including issues of consent, by whom and how data are accessed and used. This paper examines the organizational and socio-technical issues related to privacy, confidentiality and security when employing electronic records within a maternity service hospital in England.METHODS: A preliminary questionnaire was administered (n = 52), in total, 24 responses were received. Sixteen responses were from personnel in the information technology department, 5 from health information department and 3 from midwifery managers. This was followed by a semi-structured interview with representatives from the clinical and technological side.RESULTS: A number of issues related to information governance (IG) have been identified, especially breaches on sharing personal information without consent from the patients have been identified as one immediate challenge that needs to be fixed.CONCLUSION: There is an immediate need for more robust, realistic, built-in accountability both locally and nationally on data sharing. A culture of ownership and strict adherence to IG principles is paramount. Focused training in the area of data, information and knowledge sharing will bring in a balance of legitimate usage against the individual's rights to confidentiality and privacy.

Resumo Limpo

jectiv electron patient record improv vast qualiti effici care deliv howev format singl demograph databas eas electron inform share give rise mani concern includ issu consent data access use paper examin organiz sociotechn issu relat privaci confidenti secur employ electron record within matern servic hospit englandmethod preliminari questionnair administ n total respons receiv sixteen respons personnel inform technolog depart health inform depart midwiferi manag follow semistructur interview repres clinic technolog sideresult number issu relat inform govern ig identifi especi breach share person inform without consent patient identifi one immedi challeng need fixedconclus immedi need robust realist builtin account local nation data share cultur ownership strict adher ig principl paramount focus train area data inform knowledg share will bring balanc legitim usag individu right confidenti privaci

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