Inform Health Soc Care - Spontaneously published illness stories on a website for young women with breast cancer: do writers and themes reflect the wider population?

Tópicos

{ cancer(2502) breast(956) screen(824) }
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{ studi(2440) review(1878) systemat(933) }
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Resumo

This study examined writer characteristics and themes written about in a set of 167 spontaneously published stories on a Dutch website for young women with breast cancer. The stories were coded for 6 disease characteristics and 16 themes. Coding results were compared with the characteristics of young women with breast cancer in a hospital cancer register and to the frequency of problems among young breast cancer patients participating in quantitative studies. We found that writer characteristics were diverse. Yet, logistic regression showed that women were more likely to be a writer if they were diagnosed at a younger age (OR 0.82; 95% CI (0.78, 0.85)), underwent a mastectomy (OR 4.63; 95% CI (2.59, 8.26)), or were in the first treatment period (OR 2.83; 95% CI (1.44, 5.58)). All 16 themes were present in the stories, but some themes were addressed less often than their frequency among participants of quantitative studies suggested. The findings indicate that a set of spontaneously published stories might not completely reflect the characteristics and themes of the wider population of young women with breast cancer. Websites with spontaneously published stories should inform readers about this.

Resumo Limpo

studi examin writer characterist theme written set spontan publish stori dutch websit young women breast cancer stori code diseas characterist theme code result compar characterist young women breast cancer hospit cancer regist frequenc problem among young breast cancer patient particip quantit studi found writer characterist divers yet logist regress show women like writer diagnos younger age ci underw mastectomi ci first treatment period ci theme present stori theme address less often frequenc among particip quantit studi suggest find indic set spontan publish stori might complet reflect characterist theme wider popul young women breast cancer websit spontan publish stori inform reader

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