Int J Med Inform - Open data in public health surveillance systems: a case study using the French Sentinelles network.

Tópicos

{ data(3963) clinic(1234) research(1004) }
{ concept(1167) ontolog(924) domain(897) }
{ howev(809) still(633) remain(590) }
{ data(2317) use(1299) case(1017) }
{ health(1844) social(1437) communiti(874) }
{ process(1125) use(805) approach(778) }
{ health(3367) inform(1360) care(1135) }
{ first(2504) two(1366) second(1323) }
{ activ(1452) weight(1219) physic(1104) }
{ spatial(1525) area(1432) region(1030) }
{ use(976) code(926) identifi(902) }
{ method(1969) cluster(1462) data(1082) }
{ sequenc(1873) structur(1644) protein(1328) }
{ data(1714) softwar(1251) tool(1186) }
{ care(1570) inform(1187) nurs(1089) }
{ system(1050) medic(1026) inform(1018) }
{ medic(1828) order(1363) alert(1069) }
{ estim(2440) model(1874) function(577) }
{ imag(1057) registr(996) error(939) }
{ method(1219) similar(1157) match(930) }
{ imag(2830) propos(1344) filter(1198) }
{ network(2748) neural(1063) input(814) }
{ problem(2511) optim(1539) algorithm(950) }
{ design(1359) user(1324) use(1319) }
{ research(1085) discuss(1038) issu(1018) }
{ monitor(1329) mobil(1314) devic(1160) }
{ ehr(2073) health(1662) electron(1139) }
{ state(1844) use(1261) util(961) }
{ cost(1906) reduc(1198) effect(832) }
{ use(2086) technolog(871) perceiv(783) }
{ survey(1388) particip(1329) question(1065) }
{ detect(2391) sensit(1101) algorithm(908) }
{ model(3404) distribut(989) bayesian(671) }
{ can(774) often(719) complex(702) }
{ imag(1947) propos(1133) code(1026) }
{ data(1737) use(1416) pattern(1282) }
{ inform(2794) health(2639) internet(1427) }
{ system(1976) rule(880) can(841) }
{ measur(2081) correl(1212) valu(896) }
{ bind(1733) structur(1185) ligand(1036) }
{ featur(3375) classif(2383) classifi(1994) }
{ imag(2675) segment(2577) method(1081) }
{ patient(2315) diseas(1263) diabet(1191) }
{ take(945) account(800) differ(722) }
{ studi(2440) review(1878) systemat(933) }
{ motion(1329) object(1292) video(1091) }
{ assess(1506) score(1403) qualiti(1306) }
{ treatment(1704) effect(941) patient(846) }
{ surgeri(1148) surgic(1085) robot(1054) }
{ framework(1458) process(801) describ(734) }
{ error(1145) method(1030) estim(1020) }
{ chang(1828) time(1643) increas(1301) }
{ learn(2355) train(1041) set(1003) }
{ clinic(1479) use(1117) guidelin(835) }
{ algorithm(1844) comput(1787) effici(935) }
{ extract(1171) text(1153) clinic(932) }
{ method(1557) propos(1049) approach(1037) }
{ control(1307) perform(991) simul(935) }
{ model(2220) cell(1177) simul(1124) }
{ general(901) number(790) one(736) }
{ method(984) reconstruct(947) comput(926) }
{ search(2224) databas(1162) retriev(909) }
{ featur(1941) imag(1645) propos(1176) }
{ case(1353) use(1143) diagnosi(1136) }
{ studi(1410) differ(1259) use(1210) }
{ risk(3053) factor(974) diseas(938) }
{ perform(999) metric(946) measur(919) }
{ import(1318) role(1303) understand(862) }
{ model(2341) predict(2261) use(1141) }
{ visual(1396) interact(850) tool(830) }
{ compound(1573) activ(1297) structur(1058) }
{ perform(1367) use(1326) method(1137) }
{ studi(1119) effect(1106) posit(819) }
{ blood(1257) pressur(1144) flow(957) }
{ record(1888) medic(1808) patient(1693) }
{ model(3480) simul(1196) paramet(876) }
{ research(1218) medic(880) student(794) }
{ patient(2837) hospit(1953) medic(668) }
{ model(2656) set(1616) predict(1553) }
{ age(1611) year(1155) adult(843) }
{ signal(2180) analysi(812) frequenc(800) }
{ group(2977) signific(1463) compar(1072) }
{ sampl(1606) size(1419) use(1276) }
{ gene(2352) biolog(1181) express(1162) }
{ data(3008) multipl(1320) sourc(1022) }
{ intervent(3218) particip(2042) group(1664) }
{ activ(1138) subject(705) human(624) }
{ time(1939) patient(1703) rate(768) }
{ patient(1821) servic(1111) care(1106) }
{ can(981) present(881) function(850) }
{ analysi(2126) use(1163) compon(1037) }
{ structur(1116) can(940) graph(676) }
{ high(1669) rate(1365) level(1280) }
{ cancer(2502) breast(956) screen(824) }
{ use(1733) differ(960) four(931) }
{ drug(1928) target(777) effect(648) }
{ result(1111) use(1088) new(759) }
{ implement(1333) system(1263) develop(1122) }
{ decis(3086) make(1611) patient(1517) }
{ method(2212) result(1239) propos(1039) }

Resumo

TRODUCTION: Public Health Surveillance (PHS) produces an increasing number of health indicators. Exposing these data is at the core of interoperability; however no standard has yet been adopted for such information on the internet.METHOD: Here, we compared two approaches to expose data from the French Sentinelles network, an information system focusing on communicable diseases surveillance in the general population. We implemented SDMX-HD (Statistical Data and Metadata Exchange-Health Domain), a standard supported by government agencies to exchange statistical data and OpenData (OData), a general purpose protocol proposed by Microsoft Corp. The same data were described using SDMX-HD (available at http://sdmx.sentiweb.fr) and using OData (http://odata.sentiweb.fr).DISCUSSION: These two use cases proved the feasibility of opening public health data on the internet, and highlighted difficulties: SDMX, a full-featured solution, encouraged harmonization and reusability, sustainability, but required complex developments and tools; OData was much simpler to implement but required a "from scratch" description and did not encourage reusability. From an end-user perspective, integration in every-day tools is not achieved yet. These two approaches are a first step to interoperability in PHS.

Resumo Limpo

troduct public health surveil phs produc increas number health indic expos data core interoper howev standard yet adopt inform internetmethod compar two approach expos data french sentinell network inform system focus communic diseas surveil general popul implement sdmxhd statist data metadata exchangehealth domain standard support govern agenc exchang statist data opendata odata general purpos protocol propos microsoft corp data describ use sdmxhd avail httpsdmxsentiwebfr use odata httpodatasentiwebfrdiscuss two use case prove feasibl open public health data internet highlight difficulti sdmx fullfeatur solut encourag harmon reusabl sustain requir complex develop tool odata much simpler implement requir scratch descript encourag reusabl endus perspect integr everyday tool achiev yet two approach first step interoper phs

Resumos Similares

Methods Inf Med - Development of an open metadata schema for prospective clinical research (openPCR) in China. ( 0,680433858975311 )
AMIA Annu Symp Proc - OPIC: Ontology-driven Patient Information Capturing system for epilepsy. ( 0,676517288926183 )
J Biomed Inform - Integrating clinical research with the Healthcare Enterprise: from the RE-USE project to the EHR4CR platform. ( 0,662224948500652 )
J Biomed Inform - The National Institutes of Health's Biomedical Translational Research Information System (BTRIS): design, contents, functionality and experience to date. ( 0,647503579711674 )
Comput Methods Programs Biomed - Efficient data management in a large-scale epidemiology research project. ( 0,647424940560491 )
J Biomed Inform - An ontological modeling approach to cerebrovascular disease studies: the NEUROWEB case. ( 0,637417419510954 )
Methods Inf Med - Harmonization of detailed clinical models with clinical study data standards. ( 0,63725206049443 )
J Biomed Inform - A multi-technique approach to bridge electronic case report form design and data standard adoption. ( 0,632795818598275 )
Int J Med Inform - Harmonization of health data at national level: a pilot study in China. ( 0,630957886343273 )
AMIA Annu Symp Proc - The NIH Office of Rare Diseases Research patient registry Standard: a report from the University of New Mexico's Oculopharyngeal Muscular Dystrophy Patient Registry. ( 0,62921039044376 )
Comput Methods Programs Biomed - IDD Info: a software to manage surveillance data of Iodine Deficiency Disorders. ( 0,627283282367427 )
AMIA Annu Symp Proc - Using Digital Crumbs from an Electronic Health Record to identify, study and improve health care teams. ( 0,620642389566023 )
J. Med. Internet Res. - Computing health quality measures using Informatics for Integrating Biology and the Bedside. ( 0,617211856527424 )
AMIA Annu Symp Proc - Comparison of SNOMED CT versus Medcin terminology concept coverage for mild Traumatic Brain Injury. ( 0,616610747109254 )
AMIA Annu Symp Proc - Precision and negative predictive value of links between ClinicalTrials.gov and PubMed. ( 0,616396645303531 )
J Am Med Inform Assoc - Sharing behavioral data through a grid infrastructure using data standards. ( 0,616164836697312 )
J Am Med Inform Assoc - The EpiCanvas infectious disease weather map: an interactive visual exploration of temporal and spatial correlations. ( 0,614209663041452 )
J Chem Inf Model - How does the quality of phospholipidosis data influence the predictivity of structural alerts? ( 0,612061389590165 )
Health Info Libr J - A mapping review of the literature on UK-focused health and social care databases. ( 0,606745629476695 )
J Biomed Inform - The ISO/IEC 11179 norm for metadata registries: does it cover healthcare standards in empirical research? ( 0,606735395780233 )
AMIA Annu Symp Proc - Demonstrating collect once, use many--assimilating public health secondary data use requirements into an existing Domain Analysis Model. ( 0,606515782652822 )
Appl Clin Inform - Multilingual Medical Data Models in ODM Format: A Novel Form-based Approach to Semantic Interoperability between Routine Healthcare and Clinical Research. ( 0,604518362979056 )
Methods Inf Med - Semi automated transformation to OWL formatted files as an approach to data integration. A feasibility study using environmental, disease register and primary care clinical data. ( 0,598700061139694 )
J Am Med Inform Assoc - Exchanging care records using HL7 V3 care provision messages. ( 0,595856620695765 )
Comput Methods Programs Biomed - QAIT: a quality assurance issue tracking tool to facilitate the improvement of clinical data quality. ( 0,592181264998946 )
J Am Med Inform Assoc - Practices and perspectives on building integrated data repositories: results from a 2010 CTSA survey. ( 0,592138740883913 )
J Biomed Inform - The utility of general purpose versus specialty clinical databases for research: warfarin dose estimation from extracted clinical variables. ( 0,59012685719359 )
AMIA Annu Symp Proc - ClinData Express--a metadata driven clinical research data management system for secondary use of clinical data. ( 0,589615792009655 )
J Am Med Inform Assoc - Mapping clinical phenotype data elements to standardized metadata repositories and controlled terminologies: the eMERGE Network experience. ( 0,587858282325877 )
AMIA Annu Symp Proc - What Is Asked in Clinical Data Request Forms? A Multi-site Thematic Analysis of Forms Towards Better Data Access Support. ( 0,587729535573886 )
J Am Med Inform Assoc - Two open access, high-quality datasets from anesthetic records. ( 0,587118588186553 )
Methods Inf Med - Bridging data models and terminologies to support adverse drug event reporting using EHR data. ( 0,585075489117151 )
J Biomed Inform - Integrating electronic health record information to support integrated care: practical application of ontologies to improve the accuracy of diabetes disease registers. ( 0,584928737613834 )
J Am Med Inform Assoc - Electronic health records based phenotyping in next-generation clinical trials: a perspective from the NIH Health Care Systems Collaboratory. ( 0,58085832926604 )
AMIA Annu Symp Proc - Quantifying clinical data quality using relative gold standards. ( 0,580836422645033 )
J Biomed Inform - An informatics framework for the standardized collection and analysis of medication data in networked research. ( 0,580764387732331 )
J Med Syst - Linkage of data from diverse data sources (LDS): a data combination model provides clinical data of corresponding specimens in biobanking information system. ( 0,580291581216346 )
J Am Med Inform Assoc - Quality evaluation of value sets from cancer study common data elements using the UMLS semantic groups. ( 0,579218559913826 )
Int J Med Inform - A standardised graphic method for describing data privacy frameworks in primary care research using a flexible zone model. ( 0,573034396257129 )
Appl Clin Inform - Unlocking Data for Clinical Research - The German i2b2 Experience. ( 0,572225676680836 )
IEEE J Biomed Health Inform - SecourHealth: a delay-tolerant security framework for mobile health data collection. ( 0,572147522357559 )
Methods Inf Med - On creating a patient-centric database from multiple Hospital Information Systems. ( 0,571273108577817 )
Inform Health Soc Care - Construction of a linked health and social care database resource--lessons on process, content and culture. ( 0,566670751247156 )
J Am Med Inform Assoc - Electronic recording and reporting system for tuberculosis in China: experience and opportunities. ( 0,563822510642225 )
J Med Syst - Online treatment compliance checking for clinical pathways. ( 0,563466331273903 )
J Biomed Inform - Research-IQ: development and evaluation of an ontology-anchored integrative query tool. ( 0,563137805888536 )
J Am Med Inform Assoc - A Dimensional Bus model for integrating clinical and research data. ( 0,562965134900544 )
Brief. Bioinformatics - Translational research platforms integrating clinical and omics data: a review of publicly available solutions. ( 0,562928039778715 )
Appl Clin Inform - Creation of a hyponatremia registry supported by an industry-derived quality control methodology. ( 0,559809620202138 )
AMIA Annu Symp Proc - Mining the human phenome using semantic web technologies: a case study for Type 2 Diabetes. ( 0,559273525079464 )
J Am Med Inform Assoc - Easily configured real-time CPOE Pick Off Tool supporting focused clinical research and quality improvement. ( 0,558572321856343 )
Appl Clin Inform - Developing a tool to assess the quality of socio-demographic data in community health centres. ( 0,557130361860565 )
Int J Health Geogr - Injury surveillance in low-resource settings using Geospatial and Social Web technologies. ( 0,556279074252992 )
Brief. Bioinformatics - Three-stage quality control strategies for DNA re-sequencing data. ( 0,553676865995827 )
J Biomed Inform - Standardizing clinical laboratory data for secondary use. ( 0,550734089825275 )
BMC Med Inform Decis Mak - A repository based on a dynamically extensible data model supporting multidisciplinary research in neuroscience. ( 0,550287666721237 )
BMC Med Inform Decis Mak - A user-friendly tool to transform large scale administrative data into wide table format using a MapReduce program with a Pig Latin based script. ( 0,549620146579663 )
BMC Med Inform Decis Mak - Web-browser encryption of personal health information. ( 0,549352481050773 )
Int J Med Inform - Understanding data requirements of retrospective studies. ( 0,5485686010031 )
J Biomed Inform - A smartphone-driven methodology for estimating physical activities and energy expenditure in free living conditions. ( 0,547031929192355 )
Int J Med Inform - Secondary use of routinely collected patient data in a clinical trial: an evaluation of the effects on patient recruitment and data acquisition. ( 0,54539106180049 )
IEEE Trans Vis Comput Graph - Interactive Visual Analysis of Heterogeneous Scientific Data across an Interface. ( 0,544174090611431 )
J. Med. Internet Res. - Real-time sharing and expression of migraine headache suffering on Twitter: a cross-sectional infodemiology study. ( 0,543943182994872 )
Int J Comput Assist Radiol Surg - Medical imaging informatics simulators: a tutorial. ( 0,540564316861303 )
J Am Med Inform Assoc - National-scale clinical information exchange in the United Kingdom: lessons for the United States. ( 0,539388306237203 )
J Am Med Inform Assoc - Validation of a common data model for active safety surveillance research. ( 0,536011597081744 )
Int J Health Geogr - A novel tool for assessing and summarizing the built environment. ( 0,535958405629974 )
Brief. Bioinformatics - Integrative Genomics Viewer (IGV): high-performance genomics data visualization and exploration. ( 0,531952051338131 )
J Am Med Inform Assoc - Privacy by Design at Population Data BC: a case study describing the technical, administrative, and physical controls for privacy-sensitive secondary use of personal information for research in the public interest. ( 0,530367132901875 )
Comput Methods Programs Biomed - Check your biosignals here: a new dataset for off-the-person ECG biometrics. ( 0,529713198660417 )
Appl Clin Inform - Concept and Implementation of a Single Source Information System in Nuclear Medicine for Myocardial Scintigraphy (SPECT-CT data). ( 0,528513606209575 )
BMC Med Inform Decis Mak - Clinical data needs in the neonatal intensive care unit electronic medical record. ( 0,528383817257823 )
Comput Math Methods Med - A healthcare edition of sporting equipment for middle-aged and elderly. ( 0,5274513154092 )
BMC Med Inform Decis Mak - A survey on computer aided diagnosis for ocular diseases. ( 0,527294559598357 )
Comput Methods Programs Biomed - User-centered requirements engineering in health information systems: a study in the hemophilia field. ( 0,52402159270135 )
Appl Clin Inform - Comparison of manual versus automated data collection method for an evidence-based nursing practice study. ( 0,522286676659707 )
J Am Med Inform Assoc - Multi-source development of an integrated model for family health history. ( 0,521836386338179 )
Methods Inf Med - Possible combinations of electronic data capture and randomization systems. principles and the realization with RANDI2 and OpenClinica. ( 0,520848562955027 )
AMIA Annu Symp Proc - Adapting a Clinical Data Repository to ICD-10-CM through the use of a Terminology Repository. ( 0,520556230473365 )
J Integr Bioinform - MEMOPS: data modelling and automatic code generation. ( 0,520189005436049 )
Perspect Health Inf Manag - Integrating research data capture into the electronic health record workflow: real-world experience to advance innovation. ( 0,517323353800318 )
J Am Med Inform Assoc - Physicians' opinions of a health information exchange. ( 0,517123437793421 )
J Chem Inf Model - Generalized workflow for generating highly predictive in silico off-target activity models. ( 0,516686103808661 )
J Med Syst - Evaluating the ability of hospital information systems to establish evidence-based medicine in Iran. ( 0,5154200268212 )
J Chem Inf Model - Managing the computational chemistry big data problem: the ioChem-BD platform. ( 0,515078975256411 )
J Biomed Inform - OnWARD: ontology-driven web-based framework for multi-center clinical studies. ( 0,514126123878299 )
AMIA Annu Symp Proc - Using the UMLS and Simple Statistical Methods to Semantically Categorize Causes of Death on Death Certificates. ( 0,513365920416544 )
J Med Syst - Building clinical data groups for electronic medical record in China. ( 0,513198985589469 )
BMC Med Inform Decis Mak - An evaluation of data quality in Canada's Continuing Care Reporting System (CCRS): secondary analyses of Ontario data submitted between 1996 and 2011. ( 0,512933959429812 )
Methods Inf Med - Clinical data integration model. Core interoperability ontology for research using primary care data. ( 0,512158136031389 )
Telemed J E Health - Federal efforts to define and advance telehealth--a work in progress. ( 0,51205004881587 )
J Am Med Inform Assoc - N-CANDA data integration: anatomy of an asynchronous infrastructure for multi-site, multi-instrument longitudinal data capture. ( 0,511647855970378 )
J. Med. Internet Res. - Developing health promotion interventions on social networking sites: recommendations from The FaceSpace Project. ( 0,511293522822616 )
J Am Med Inform Assoc - Informatics and data quality at collaborative multicenter Breast and Colon Cancer Family Registries. ( 0,511161021345035 )
Appl Clin Inform - Transforming user needs into functional requirements for an antibiotic clinical decision support system: explicating content analysis for system design. ( 0,508664163953144 )
Health Informatics J - Protecting privacy in a clinical data warehouse. ( 0,508503668070619 )
IEEE Trans Pattern Anal Mach Intell - Linear Latent Force Models Using Gaussian Processes. ( 0,507691041177075 )
Brief. Bioinformatics - DNA barcoding: a six-question tour to improve users' awareness about the method. ( 0,50630610769676 )
J Biomed Inform - The ACGT Master Ontology and its applications--towards an ontology-driven cancer research and management system. ( 0,506151234855214 )
J Am Med Inform Assoc - Privacy preserving interactive record linkage (PPIRL). ( 0,505684866514998 )