Int J Med Inform - A methodology for the pseudonymization of medical data.

Tópicos

{ health(3367) inform(1360) care(1135) }
{ process(1125) use(805) approach(778) }
{ record(1888) medic(1808) patient(1693) }
{ system(1050) medic(1026) inform(1018) }
{ data(1737) use(1416) pattern(1282) }
{ cost(1906) reduc(1198) effect(832) }
{ patient(2315) diseas(1263) diabet(1191) }
{ problem(2511) optim(1539) algorithm(950) }
{ data(1714) softwar(1251) tool(1186) }
{ assess(1506) score(1403) qualiti(1306) }
{ intervent(3218) particip(2042) group(1664) }
{ use(976) code(926) identifi(902) }
{ method(2212) result(1239) propos(1039) }
{ decis(3086) make(1611) patient(1517) }
{ method(1219) similar(1157) match(930) }
{ data(3963) clinic(1234) research(1004) }
{ studi(1410) differ(1259) use(1210) }
{ age(1611) year(1155) adult(843) }
{ can(981) present(881) function(850) }
{ imag(2830) propos(1344) filter(1198) }
{ concept(1167) ontolog(924) domain(897) }
{ design(1359) user(1324) use(1319) }
{ care(1570) inform(1187) nurs(1089) }
{ method(984) reconstruct(947) comput(926) }
{ research(1085) discuss(1038) issu(1018) }
{ studi(1119) effect(1106) posit(819) }
{ ehr(2073) health(1662) electron(1139) }
{ state(1844) use(1261) util(961) }
{ drug(1928) target(777) effect(648) }
{ system(1976) rule(880) can(841) }
{ imag(1057) registr(996) error(939) }
{ take(945) account(800) differ(722) }
{ treatment(1704) effect(941) patient(846) }
{ framework(1458) process(801) describ(734) }
{ control(1307) perform(991) simul(935) }
{ model(2220) cell(1177) simul(1124) }
{ general(901) number(790) one(736) }
{ search(2224) databas(1162) retriev(909) }
{ featur(1941) imag(1645) propos(1176) }
{ risk(3053) factor(974) diseas(938) }
{ visual(1396) interact(850) tool(830) }
{ blood(1257) pressur(1144) flow(957) }
{ group(2977) signific(1463) compar(1072) }
{ first(2504) two(1366) second(1323) }
{ analysi(2126) use(1163) compon(1037) }
{ health(1844) social(1437) communiti(874) }
{ structur(1116) can(940) graph(676) }
{ use(1733) differ(960) four(931) }
{ survey(1388) particip(1329) question(1065) }
{ detect(2391) sensit(1101) algorithm(908) }
{ model(3404) distribut(989) bayesian(671) }
{ can(774) often(719) complex(702) }
{ imag(1947) propos(1133) code(1026) }
{ inform(2794) health(2639) internet(1427) }
{ measur(2081) correl(1212) valu(896) }
{ bind(1733) structur(1185) ligand(1036) }
{ sequenc(1873) structur(1644) protein(1328) }
{ featur(3375) classif(2383) classifi(1994) }
{ network(2748) neural(1063) input(814) }
{ imag(2675) segment(2577) method(1081) }
{ studi(2440) review(1878) systemat(933) }
{ motion(1329) object(1292) video(1091) }
{ surgeri(1148) surgic(1085) robot(1054) }
{ error(1145) method(1030) estim(1020) }
{ chang(1828) time(1643) increas(1301) }
{ learn(2355) train(1041) set(1003) }
{ clinic(1479) use(1117) guidelin(835) }
{ algorithm(1844) comput(1787) effici(935) }
{ extract(1171) text(1153) clinic(932) }
{ method(1557) propos(1049) approach(1037) }
{ case(1353) use(1143) diagnosi(1136) }
{ howev(809) still(633) remain(590) }
{ perform(999) metric(946) measur(919) }
{ import(1318) role(1303) understand(862) }
{ model(2341) predict(2261) use(1141) }
{ compound(1573) activ(1297) structur(1058) }
{ perform(1367) use(1326) method(1137) }
{ spatial(1525) area(1432) region(1030) }
{ model(3480) simul(1196) paramet(876) }
{ monitor(1329) mobil(1314) devic(1160) }
{ research(1218) medic(880) student(794) }
{ patient(2837) hospit(1953) medic(668) }
{ model(2656) set(1616) predict(1553) }
{ data(2317) use(1299) case(1017) }
{ medic(1828) order(1363) alert(1069) }
{ signal(2180) analysi(812) frequenc(800) }
{ sampl(1606) size(1419) use(1276) }
{ gene(2352) biolog(1181) express(1162) }
{ data(3008) multipl(1320) sourc(1022) }
{ activ(1138) subject(705) human(624) }
{ time(1939) patient(1703) rate(768) }
{ patient(1821) servic(1111) care(1106) }
{ use(2086) technolog(871) perceiv(783) }
{ high(1669) rate(1365) level(1280) }
{ cancer(2502) breast(956) screen(824) }
{ result(1111) use(1088) new(759) }
{ implement(1333) system(1263) develop(1122) }
{ estim(2440) model(1874) function(577) }
{ activ(1452) weight(1219) physic(1104) }
{ method(1969) cluster(1462) data(1082) }

Resumo

RPOSE: E-health enables the sharing of patient-related data whenever and wherever necessary. Electronic health records (EHRs) promise to improve communication between health care providers, thus leading to better quality of patients' treatment and reduced costs. However, as highly sensitive patient information provides a promising goal for attackers and is also frequently demanded by insurance companies and employers, there is increasing social and political pressure regarding the prevention of health data misuse. This work addresses this problem and introduces a methodology that protects health records from unauthorized access and lets the patient as data owner decide who the authorized persons are, i.e., who the patient discloses her health information to. Therefore, the methodology prevents data disclosure that negatively influences the patient's life (e.g., by being denied health insurance or employment).METHODS: This research uses a combination of conceptual-analytical, artifact-building and artifact-evaluating research approaches. The article starts with a detailed exploration of existing privacy protection mechanisms, such as encryption, anonymization and pseudonymization, by comparing and analyzing related work (conceptual-analytical approach). Based on these results and the identified shortcomings, a pseudonymization methodology is defined and evaluated by means of a threat analysis. Finally, the research results are validated with the design and implementation of a prototype (artifact building and artifact evaluation).RESULTS: This paper presents a new methodology for the pseudonymization of medical data that stores health data decoupled from the corresponding patient-identifying information, allowing privacy-preserving secondary use of the health records in clinical studies without additional anonymization steps. In contrast to clinical studies, where it is not necessary to identify the individual participants, insurance companies and employers are interested in the health status of individuals such as potential insurance or job applicants. In this case, pseudonymized records are practically useless for these parties as the patient controls who is able to reestablish the link between health records and patient for primary use - usually only trusted health care providers.CONCLUSIONS: The framework provides health care providers with a unique solution that guarantees data privacy (e.g., according to HIPAA) and allows primary and secondary use of the data at the same time. The security analysis showed that the methodology is secure and protected against common intruder scenarios.

Resumo Limpo

rpose ehealth enabl share patientrel data whenev wherev necessari electron health record ehr promis improv communic health care provid thus lead better qualiti patient treatment reduc cost howev high sensit patient inform provid promis goal attack also frequent demand insur compani employ increas social polit pressur regard prevent health data misus work address problem introduc methodolog protect health record unauthor access let patient data owner decid author person ie patient disclos health inform therefor methodolog prevent data disclosur negat influenc patient life eg deni health insur employmentmethod research use combin conceptualanalyt artifactbuild artifactevalu research approach articl start detail explor exist privaci protect mechan encrypt anonym pseudonym compar analyz relat work conceptualanalyt approach base result identifi shortcom pseudonym methodolog defin evalu mean threat analysi final research result valid design implement prototyp artifact build artifact evaluationresult paper present new methodolog pseudonym medic data store health data decoupl correspond patientidentifi inform allow privacypreserv secondari use health record clinic studi without addit anonym step contrast clinic studi necessari identifi individu particip insur compani employ interest health status individu potenti insur job applic case pseudonym record practic useless parti patient control abl reestablish link health record patient primari use usual trust health care providersconclus framework provid health care provid uniqu solut guarante data privaci eg accord hipaa allow primari secondari use data time secur analysi show methodolog secur protect common intrud scenario

Resumos Similares

J Med Syst - Cloud based emergency health care information service in India. ( 0,710943863660636 )
J Biomed Inform - Learning relational policies from electronic health record access logs. ( 0,707160388572267 )
Int J Med Inform - Ethical and legal challenges for health telematics in a global world: telehealth and the technological imperative. ( 0,687156658293585 )
J Med Syst - Unified performance evaluation of health centers with integrated model of data envelopment analysis and bargaining game. ( 0,66189249391194 )
AMIA Annu Symp Proc - Cognitive analysis of the summarization of longitudinal patient records. ( 0,651045665104022 )
BMC Med Inform Decis Mak - Architecture of a consent management suite and integration into IHE-based Regional Health Information Networks. ( 0,637484803555978 )
Perspect Health Inf Manag - Justice-involved health information: policy and practice advances in Connecticut. ( 0,626274921036437 )
Perspect Health Inf Manag - Health information exchange between jails and their communities: a bridge that is needed under healthcare reform. ( 0,625813642771018 )
J. Med. Internet Res. - A multidimensional view of personal health systems for underserved populations. ( 0,618099781171081 )
Inform Health Soc Care - Identifying health facilities outside the enterprise: challenges and strategies for supporting health reform and meaningful use. ( 0,609820634333808 )
J Am Med Inform Assoc - A personally controlled electronic health record for Australia. ( 0,609067718121854 )
Telemed J E Health - Electronic reminders to patients within an interactive patient health record. ( 0,606845749117271 )
Healthc (Amst) - Relationship-centered care: A new paradigm for population health management. ( 0,605921420670329 )
Methods Inf Med - On creating a patient-centric database from multiple Hospital Information Systems. ( 0,604952328822063 )
J Med Syst - Technologies to better serve the millions of diabetic patients: a holistic, interactive and persuasive ICT model to facilitate self care, in extremely poor rural zones of Central America. ( 0,604401050256884 )
J Am Med Inform Assoc - Data governance requirements for distributed clinical research networks: triangulating perspectives of diverse stakeholders. ( 0,602946113987499 )
Appl Clin Inform - Investigation of The Omaha System for dentistry. ( 0,60199018457104 )
AMIA Annu Symp Proc - Emergency medical services: the frontier in health information exchange. ( 0,601957112026795 )
BMC Med Inform Decis Mak - Strengthening district-based health reporting through the district health management information software system: the Ugandan experience. ( 0,601652741412537 )
J Am Med Inform Assoc - Concern about security and privacy, and perceived control over collection and use of health information are related to withholding of health information from healthcare providers. ( 0,595306109197601 )
Methods Inf Med - A comprehensive e-prescribing model to allow representing, comparing, and analyzing available systems. ( 0,591039169102113 )
J Am Med Inform Assoc - Availability and quality of mobile health app privacy policies. ( 0,583060028897153 )
AMIA Annu Symp Proc - Toward a Virtual Lifetime Electronic Record: the Department of Veterans Affairs experience with the Nationwide Health Information Network. ( 0,580310223651081 )
J Am Med Inform Assoc - Why common carrier and network neutrality principles apply to the Nationwide Health Information Network (NWHIN). ( 0,579822614107233 )
J Med Syst - A novel web-enabled healthcare solution on health vault system. ( 0,579270020415672 )
J. Med. Internet Res. - Are personal health records safe? A review of free web-accessible personal health record privacy policies. ( 0,576504747228707 )
J. Med. Internet Res. - Online access to doctors' notes: patient concerns about privacy. ( 0,575156469566393 )
Appl Clin Inform - Health information exchange and ambulatory quality of care. ( 0,573439059412377 )
Telemed J E Health - Realist review to inform development of the electronic advance care plan for the personally controlled electronic health record in Australia. ( 0,571780461555008 )
J Med Syst - Applied patent RFID systems for building reacting HEPA air ventilation system in hospital operation rooms. ( 0,571715138306215 )
J Biomed Inform - Utility-preserving privacy protection of textual healthcare documents. ( 0,571404182971432 )
J. Med. Internet Res. - Patients who share transparent visit notes with others: characteristics, risks, and benefits. ( 0,570474534276901 )
Int J Med Inform - Views on health information sharing and privacy from primary care practices using electronic medical records. ( 0,569731778930476 )
J. Med. Internet Res. - Storing and using health data in a virtual private cloud. ( 0,569546526359957 )
Methods Inf Med - The lower saxony bank of health. rationale, principles, services, organization and architectural framework. ( 0,568938266344649 )
J. Med. Internet Res. - Examining the differences in format and characteristics of zoonotic virus surveillance data on state agency websites. ( 0,56874562955287 )
J Med Syst - Design and implementation of a telecare information platform. ( 0,567915306477343 )
Med Decis Making - STAR--people-powered prioritization: a 21st-century solution to allocation headaches. ( 0,567213226213139 )
Comput Math Methods Med - A healthcare edition of sporting equipment for middle-aged and elderly. ( 0,567079010407154 )
BMC Med Inform Decis Mak - Actor-Network Theory and its role in understanding the implementation of information technology developments in healthcare. ( 0,567052683947239 )
J Am Med Inform Assoc - Policies for patient access to clinical data via PHRs: current state and recommendations. ( 0,566396130292985 )
Comput Methods Programs Biomed - A HIPAA-compliant key management scheme with revocation of authorization. ( 0,565391297229085 )
Int J Med Inform - Medical record search engines, using pseudonymised patient identity: an alternative to centralised medical records. ( 0,564376393305941 )
Health Informatics J - Electronic patient information systems and care pathways: the organisational challenges of implementation and integration. ( 0,563879202271267 )
J Med Syst - Designing patient-centered personal health records (PHRs): health care professionals' perspective on patient-generated data. ( 0,563467315656152 )
Comput Methods Programs Biomed - User-centered requirements engineering in health information systems: a study in the hemophilia field. ( 0,56294356444168 )
Int J Med Inform - Trustworthy reuse of health data: a transnational perspective. ( 0,561965906489597 )
Int J Med Inform - Kenya's health workforce information system: a model of impact on strategic human resources policy, planning and management. ( 0,561339039529463 )
Int J Med Inform - The essential role of reconfiguration capabilities in the implementation of HIV-related health information exchanges. ( 0,561025959700257 )
J. Med. Internet Res. - Mobile health (mHealth) approaches and lessons for increased performance and retention of community health workers in low- and middle-income countries: a review. ( 0,559970666518284 )
AMIA Annu Symp Proc - Integrating direct electronic collection of data from patients into the process of care for eye care professionals. ( 0,556235230514397 )
Int J Med Inform - Physician and patient willingness to pay for electronic cardiovascular disease management. ( 0,555758261950888 )
J Am Med Inform Assoc - Bringing science to medicine: an interview with Larry Weed, inventor of the problem-oriented medical record. ( 0,55531771860933 )
Med Decis Making - A discrete choice experiment to obtain a tariff for valuing informal care situations measured with the CarerQol instrument. ( 0,554681462605682 )
J Biomed Inform - Steps towards a digital health ecosystem. ( 0,554516400016342 )
BMC Med Inform Decis Mak - De-identifying a public use microdata file from the Canadian national discharge abstract database. ( 0,553492024200251 )
J Am Med Inform Assoc - Modeling shared care plans using CONTsys and openEHR to support shared homecare of the elderly. ( 0,553433770776036 )
J Am Med Inform Assoc - Patient-controlled sharing of medical imaging data across unaffiliated healthcare organizations. ( 0,553302822635259 )
J Am Med Inform Assoc - Lessons from the Canadian national health information technology plan for the United States: opinions of key Canadian experts. ( 0,55205695546675 )
J Am Med Inform Assoc - VA OpenNotes: exploring the experiences of early patient adopters with access to clinical notes. ( 0,550413478686734 )
J Am Med Inform Assoc - Strategies for maintaining patient privacy in i2b2. ( 0,550103521530227 )
Health Info Libr J - Monitoring or avoiding health information--the relation to inner inclination and health status. ( 0,549589978567535 )
Int J Med Inform - Empowering citizens with access control mechanisms to their personal health resources. ( 0,54931266884466 )
Int J Med Inform - The electronic locum record for general practitioners: outcome of an evaluation study in the Netherlands. ( 0,549056574524248 )
J. Med. Internet Res. - Analysis of the definition and utility of personal health records using Q methodology. ( 0,548651472600569 )
J Am Med Inform Assoc - Measuring value for money: a scoping review on economic evaluation of health information systems. ( 0,547252652320716 )
J Am Med Inform Assoc - Estimating the information gap between emergency department records of community medication compared to on-line access to the community-based pharmacy records. ( 0,547096446579454 )
Perspect Health Inf Manag - Innovation in Indian healthcare: using health information technology to achieve health equity for American Indian and Alaska Native populations. ( 0,546739867217628 )
Comput Methods Programs Biomed - Cloud based intelligent system for delivering health care as a service. ( 0,545513895266183 )
J Med Syst - Web information retrieval for health professionals. ( 0,545457584118604 )
J Med Syst - Realizing digital signatures for medical imaging and reporting in a PACS environment. ( 0,545212070483987 )
J Am Med Inform Assoc - Influenza surveillance using electronic health records in the American Indian and Alaska Native population. ( 0,544066869615211 )
J Am Med Inform Assoc - Transforming consumer health informatics through a patient work framework: connecting patients to context. ( 0,54373461562586 )
Perspect Health Inf Manag - Electronic medical record systems in critical access hospitals: leadership perspectives on anticipated and realized benefits. ( 0,543636925173072 )
Int J Health Geogr - Mapping for maternal and newborn health: the distributions of women of childbearing age, pregnancies and births. ( 0,542987796089603 )
J. Med. Internet Res. - Health domains for sale: the need for global health Internet governance. ( 0,542464062666089 )
Inform Health Soc Care - A healthcare management system for Turkey based on a service-oriented architecture. ( 0,542124275514621 )
AMIA Annu Symp Proc - Achieving reliable communication in dynamic emergency responses. ( 0,541218205481337 )
Int J Med Inform - A Public Health Grid (PHGrid): Architecture and value proposition for 21st century public health. ( 0,540688120225341 )
Int J Health Geogr - Spatial modelling of healthcare utilisation for treatment of fever in Namibia. ( 0,540326764313073 )
J Am Med Inform Assoc - Don't take your EHR to heaven, donate it to science: legal and research policies for EHR post mortem. ( 0,538720796105152 )
BMC Med Inform Decis Mak - Video observation in HIT development: lessons learned on benefits and challenges. ( 0,537878719916484 )
Spat Spatiotemporal Epidemiol - The role of public health and how boundary analysis can provide a tool for public health investigations: the public health perspective. ( 0,537592331635146 )
J. Med. Internet Res. - Using evidence-based internet interventions to reduce health disparities worldwide. ( 0,537522305641489 )
BMC Med Inform Decis Mak - A comparison of electronic health records at two major Peking University Hospitals in China to United States meaningful use objectives. ( 0,537369243652204 )
AMIA Annu Symp Proc - Preparing for an aging population and improving chronic disease management. ( 0,536630182007163 )
J. Med. Internet Res. - Analysis of the security and privacy requirements of cloud-based electronic health records systems. ( 0,535927071481863 )
Health Info Libr J - Using the results of a satisfaction survey to demonstrate the impact of a new library service model. ( 0,535801001598931 )
J Med Syst - Designing a personal health application for older adults to manage medications: a comprehensive case study. ( 0,535272485796609 )
J Am Med Inform Assoc - Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting. ( 0,534438077673103 )
J Integr Bioinform - Novel developments of the MetaCrop information system for facilitating systems biological approaches. ( 0,534349453038015 )
J. Med. Internet Res. - Health and wellness technology use by historically underserved health consumers: systematic review. ( 0,533895350928378 )
Int J Health Geogr - Geographical variation of unmet medical needs in Italy: a multivariate logistic regression analysis. ( 0,533594435530153 )
Healthc (Amst) - Will new care delivery solve the primary care physician shortage?: A call for more rigorous evaluation. ( 0,531830229119123 )
AMIA Annu Symp Proc - Impact of health disclosure laws on health information exchanges. ( 0,531764132172481 )
Healthc (Amst) - How it's done: Keys to implementation of delivery system reform. ( 0,531579538920179 )
Int J Med Inform - Introducing a nationally shared electronic patient record: case study comparison of Scotland, England, Wales and Northern Ireland. ( 0,531497331111621 )
Int J Health Geogr - Optimization of preventive health care facility locations. ( 0,531464459503585 )
J. Med. Internet Res. - Using online health communities to deliver patient-centered care to people with chronic conditions. ( 0,530982325447832 )
J Med Syst - Meeting US health reform mandates with computerized health services utilization matching and optimization. ( 0,530677454979344 )