Int J Med Inform - Designing for collaborative interpretation in telemonitoring: re-introducing patients as diagnostic agents.

Tópicos

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Resumo

RPOSE: We investigate why clinicians experience problems interpreting implantable cardioverter-defibrillator (ICD) data when the patient is absent, and we explore how to re-introduce patients into the socio-technical setup of telemonitored interpretation practices.METHOD: An action research study with a design interventionist perspective was conducted to investigate the telemonitoring arrangement for chronic heart patients with ICDs and to identify the nature of the collaborative practices involved in ICD data interpretation. We diagnose the main challenges involved in collaborative interpretation practices. These insights were used to re-design the socio-technical setup of the telemonitoring practices by designing and building a web-based, patient-centric, collaborative application, myRecord, to re-introduce the patients as active participants into the telemonitoring setup. Finally, we introduce myRecord at Copenhagen University Hospital and evaluate the new practices and the collaborative technology related to the transformed role of the patients.RESULTS: The interpretation of ICD data is a collaborative practice engaging clinicians and patients and involving three separate collaborative processes: interpretation of numbers; interpretation of general condition; and patient's interpretation of own condition and ICD data. In a collocated setup, these three interpretation processes are entangled and seamlessly interrelated. However, in the current telemonitoring setup, only the interpretation of numbers process is fully supported, neglecting the two other processes, and, in particular, the role of the patient. By re-introducing patients into the socio-technical setup of telemonitoring through myRecord, our design acknowledges the collaborative nature of the interpretation process. However, re-introducing patients transforms their role, and leads to new transformed telemonitoring practices, different from both the current telemonitoring setup as well as from the collocated setup.CONCLUSION: Telemonitoring practices of patients with ICDs involve three entangled collaborative processes, whereas the existing socio-technical setup only mediate one. myRecord is designed as an add-on collaborative technology to mediate the two remaining collaborative processes. We argue that myRecord solves some of the problems with ICD data interpretation inherent in telemonitoring practices by providing a collaborative, asynchronous space for healthcare practitioners and patients to mediate the two processes that are otherwise lost. Our new socio-technical design also transforms the role of patients considerably, thus new studies should take these insights into consideration.

Resumo Limpo

rpose investig clinician experi problem interpret implant cardioverterdefibril icd data patient absent explor reintroduc patient sociotechn setup telemonitor interpret practicesmethod action research studi design interventionist perspect conduct investig telemonitor arrang chronic heart patient icd identifi natur collabor practic involv icd data interpret diagnos main challeng involv collabor interpret practic insight use redesign sociotechn setup telemonitor practic design build webbas patientcentr collabor applic myrecord reintroduc patient activ particip telemonitor setup final introduc myrecord copenhagen univers hospit evalu new practic collabor technolog relat transform role patientsresult interpret icd data collabor practic engag clinician patient involv three separ collabor process interpret number interpret general condit patient interpret condit icd data colloc setup three interpret process entangl seamless interrel howev current telemonitor setup interpret number process fulli support neglect two process particular role patient reintroduc patient sociotechn setup telemonitor myrecord design acknowledg collabor natur interpret process howev reintroduc patient transform role lead new transform telemonitor practic differ current telemonitor setup well colloc setupconclus telemonitor practic patient icd involv three entangl collabor process wherea exist sociotechn setup mediat one myrecord design addon collabor technolog mediat two remain collabor process argu myrecord solv problem icd data interpret inher telemonitor practic provid collabor asynchron space healthcar practition patient mediat two process otherwis lost new sociotechn design also transform role patient consider thus new studi take insight consider

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