Int J Med Inform - Internet based patient pathway as an educational tool for breast cancer patients.

Tópicos

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Resumo

JECTIVE: The aim of this paper was to describe the process of developing an Internet-based empowering patient education program for breast cancer patients and to evaluate the quality of the program from the perspective of patients. In this program, the patient pathway was used as an educational tool.METHODS: The Breast Cancer Patient Pathway (BCPP) was developed and tested at one Finnish university hospital in 2005-2007. Thirty-eight newly diagnosed breast cancer patients used the program during their treatment process until the end of all treatments (average 9 months) in 2008-2010. After the treatments the patients evaluated the content, language and structure, instructiveness, external appearance and technical characteristics of the web site as subcategories with the Evaluating Internet Pages of Patient Education instrument, which is a 37-item Likert scale (1-4) questionnaire. Comparison between the subcategories was done with Friedman's test. Dependencies between demographic variables and evaluation values were tested with Pearson correlation coefficients.RESULTS: The mean value of all evaluation criteria was 3.40. However, patients' evaluations between different subcategories varied, being the highest in language and structure (mean 3.48) and lowest in content (mean 3.13). Language and structure, external appearance and technical characteristics were significantly better than content, and language and structure better than instructiveness. Significant correlations were not found between demographic variables and evaluation values.CONCLUSIONS: Patients evaluated the quality of the BCPP to be best in language and structure and weakest in content. In terms of future development of the BCPP, the most improvement is needed in content and instructiveness. There is also a need for further development and study of Internet-based patient education.

Resumo Limpo

jectiv aim paper describ process develop internetbas empow patient educ program breast cancer patient evalu qualiti program perspect patient program patient pathway use educ toolmethod breast cancer patient pathway bcpp develop test one finnish univers hospit thirtyeight newli diagnos breast cancer patient use program treatment process end treatment averag month treatment patient evalu content languag structur instruct extern appear technic characterist web site subcategori evalu internet page patient educ instrument item likert scale questionnair comparison subcategori done friedman test depend demograph variabl evalu valu test pearson correl coefficientsresult mean valu evalu criteria howev patient evalu differ subcategori vari highest languag structur mean lowest content mean languag structur extern appear technic characterist signific better content languag structur better instruct signific correl found demograph variabl evalu valuesconclus patient evalu qualiti bcpp best languag structur weakest content term futur develop bcpp improv need content instruct also need develop studi internetbas patient educ

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