Appl Clin Inform - The false security of blind dates: chrononymization's lack of impact on data privacy of laboratory data.

Tópicos

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Resumo

CKGROUND: The reuse of clinical data for research purposes requires methods for the protection of personal privacy. One general approach is the removal of personal identifiers from the data. A frequent part of this anonymization process is the removal of times and dates, which we refer to as "chrononymization." While this step can make the association with identified data (such as public information or a small sample of patient information) more difficult, it comes at a cost to the usefulness of the data for research.OBJECTIVES: We sought to determine whether removal of dates from common laboratory test panels offers any advantage in protecting such data from re-identification.METHODS: We obtained a set of results for 5.9 million laboratory panels from the National Institutes of Health's (NIH) Biomedical Translational Research Information System (BTRIS), selected a random set of 20,000 panels from the larger source sets, and then identified all matches between the sets.RESULTS: We found that while removal of dates could hinder the re-identification of a single test result, such removal had almost no effect when entire panels were used.CONCLUSIONS: Our results suggest that reliance on chrononymization provides a false sense of security for the protection of laboratory test results. As a result of this study, the NIH has chosen to rely on policy solutions, such as strong data use agreements, rather than removal of dates when reusing clinical data for research purposes.

Resumo Limpo

ckground reus clinic data research purpos requir method protect person privaci one general approach remov person identifi data frequent part anonym process remov time date refer chrononym step can make associ identifi data public inform small sampl patient inform difficult come cost use data researchobject sought determin whether remov date common laboratori test panel offer advantag protect data reidentificationmethod obtain set result million laboratori panel nation institut health nih biomed translat research inform system btris select random set panel larger sourc set identifi match setsresult found remov date hinder reidentif singl test result remov almost effect entir panel usedconclus result suggest relianc chrononym provid fals sens secur protect laboratori test result result studi nih chosen reli polici solut strong data use agreement rather remov date reus clinic data research purpos

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