Appl Clin Inform - Multilingual Medical Data Models in ODM Format: A Novel Form-based Approach to Semantic Interoperability between Routine Healthcare and Clinical Research.

Tópicos

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{ framework(1458) process(801) describ(734) }
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{ motion(1329) object(1292) video(1091) }
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Resumo

CKGROUND: Semantic interoperability between routine healthcare and clinical research is an unsolved issue, as information systems in the healthcare domain still use proprietary and site-specific data models. However, information exchange and data harmonization are essential for physicians and scientists if they want to collect and analyze data from different hospitals in order to build up registries and perform multicenter clinical trials. Consequently, there is a need for a standardized metadata exchange based on common data models. Currently this is mainly done by informatics experts instead of medical experts.OBJECTIVES: We propose to enable physicians to exchange, rate, comment and discuss their own medical data models in a collaborative web-based repository of medical forms in a standardized format.METHODS: Based on a comprehensive requirement analysis, a web-based portal for medical data models was specified. In this context, a data model is the technical specification (attributes, data types, value lists) of a medical form without any layout information. The CDISC Operational Data Model (ODM) was chosen as the appropriate format for the standardized representation of data models. The system was implemented with Ruby on Rails and applies web 2.0 technologies to provide a community based solution. Forms from different source systems - both routine care and clinical research - were converted into ODM format and uploaded into the portal.RESULTS: A portal for medical data models based on ODM-files was implemented (http://www.medical-data-models.org). Physicians are able to upload, comment, rate and download medical data models. More than 250 forms with approximately 8000 items are provided in different views (overview and detailed presentation) and in multiple languages. For instance, the portal contains forms from clinical and research information systems.CONCLUSION: The portal provides a system-independent repository for multilingual data models in ODM format which can be used by physicians. It serves as a platform for discussion and enables the exchange of multilingual medical data models in a standardized way.

Resumo Limpo

ckground semant interoper routin healthcar clinic research unsolv issu inform system healthcar domain still use proprietari sitespecif data model howev inform exchang data harmon essenti physician scientist want collect analyz data differ hospit order build registri perform multicent clinic trial consequ need standard metadata exchang base common data model current main done informat expert instead medic expertsobject propos enabl physician exchang rate comment discuss medic data model collabor webbas repositori medic form standard formatmethod base comprehens requir analysi webbas portal medic data model specifi context data model technic specif attribut data type valu list medic form without layout inform cdisc oper data model odm chosen appropri format standard represent data model system implement rubi rail appli web technolog provid communiti base solut form differ sourc system routin care clinic research convert odm format upload portalresult portal medic data model base odmfil implement httpwwwmedicaldatamodelsorg physician abl upload comment rate download medic data model form approxim item provid differ view overview detail present multipl languag instanc portal contain form clinic research inform systemsconclus portal provid systemindepend repositori multilingu data model odm format can use physician serv platform discuss enabl exchang multilingu medic data model standard way

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