J Am Med Inform Assoc - Patients want granular privacy control over health information in electronic medical records.

Tópicos

{ system(1050) medic(1026) inform(1018) }
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{ decis(3086) make(1611) patient(1517) }
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{ framework(1458) process(801) describ(734) }
{ chang(1828) time(1643) increas(1301) }
{ extract(1171) text(1153) clinic(932) }
{ model(2220) cell(1177) simul(1124) }
{ care(1570) inform(1187) nurs(1089) }
{ method(984) reconstruct(947) comput(926) }
{ featur(1941) imag(1645) propos(1176) }
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{ risk(3053) factor(974) diseas(938) }
{ research(1085) discuss(1038) issu(1018) }
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{ compound(1573) activ(1297) structur(1058) }
{ perform(1367) use(1326) method(1137) }
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{ blood(1257) pressur(1144) flow(957) }
{ spatial(1525) area(1432) region(1030) }
{ health(3367) inform(1360) care(1135) }
{ model(3480) simul(1196) paramet(876) }
{ monitor(1329) mobil(1314) devic(1160) }
{ state(1844) use(1261) util(961) }
{ research(1218) medic(880) student(794) }
{ patient(2837) hospit(1953) medic(668) }
{ model(2656) set(1616) predict(1553) }
{ data(2317) use(1299) case(1017) }
{ medic(1828) order(1363) alert(1069) }
{ signal(2180) analysi(812) frequenc(800) }
{ cost(1906) reduc(1198) effect(832) }
{ sampl(1606) size(1419) use(1276) }
{ first(2504) two(1366) second(1323) }
{ intervent(3218) particip(2042) group(1664) }
{ activ(1138) subject(705) human(624) }
{ time(1939) patient(1703) rate(768) }
{ use(2086) technolog(871) perceiv(783) }
{ can(981) present(881) function(850) }
{ health(1844) social(1437) communiti(874) }
{ high(1669) rate(1365) level(1280) }
{ cancer(2502) breast(956) screen(824) }
{ use(976) code(926) identifi(902) }
{ use(1733) differ(960) four(931) }
{ drug(1928) target(777) effect(648) }
{ result(1111) use(1088) new(759) }
{ estim(2440) model(1874) function(577) }
{ process(1125) use(805) approach(778) }
{ activ(1452) weight(1219) physic(1104) }
{ method(1969) cluster(1462) data(1082) }
{ method(2212) result(1239) propos(1039) }

Resumo

JECTIVE: To assess patients' desire for granular level privacy control over which personal health information should be shared, with whom, and for what purpose; and whether these preferences vary based on sensitivity of health information.MATERIALS AND METHODS: A card task for matching health information with providers, questionnaire, and interview with 30 patients whose health information is stored in an electronic medical record system. Most patients' records contained sensitive health information.RESULTS: No patients reported that they would prefer to share all information stored in an electronic medical record (EMR) with all potential recipients. Sharing preferences varied by type of information (EMR data element) and recipient (eg, primary care provider), and overall sharing preferences varied by participant. Patients with and without sensitive records preferred less sharing of sensitive versus less-sensitive information.DISCUSSION: Patients expressed sharing preferences consistent with a desire for granular privacy control over which health information should be shared with whom and expressed differences in sharing preferences for sensitive versus less-sensitive EMR data. The pattern of results may be used by designers to generate privacy-preserving EMR systems including interfaces for patients to express privacy and sharing preferences.CONCLUSIONS: To maintain the level of privacy afforded by medical records and to achieve alignment with patients' preferences, patients should have granular privacy control over information contained in their EMR.

Resumo Limpo

jectiv assess patient desir granular level privaci control person health inform share purpos whether prefer vari base sensit health informationmateri method card task match health inform provid questionnair interview patient whose health inform store electron medic record system patient record contain sensit health informationresult patient report prefer share inform store electron medic record emr potenti recipi share prefer vari type inform emr data element recipi eg primari care provid overal share prefer vari particip patient without sensit record prefer less share sensit versus lesssensit informationdiscuss patient express share prefer consist desir granular privaci control health inform share express differ share prefer sensit versus lesssensit emr data pattern result may use design generat privacypreserv emr system includ interfac patient express privaci share preferencesconclus maintain level privaci afford medic record achiev align patient prefer patient granular privaci control inform contain emr

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