J Am Med Inform Assoc - Strategies for maintaining patient privacy in i2b2.

Tópicos

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{ research(1085) discuss(1038) issu(1018) }
{ health(3367) inform(1360) care(1135) }
{ use(976) code(926) identifi(902) }
{ ehr(2073) health(1662) electron(1139) }
{ problem(2511) optim(1539) algorithm(950) }
{ patient(2837) hospit(1953) medic(668) }
{ drug(1928) target(777) effect(648) }
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{ take(945) account(800) differ(722) }
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{ error(1145) method(1030) estim(1020) }
{ howev(809) still(633) remain(590) }
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{ record(1888) medic(1808) patient(1693) }
{ model(3480) simul(1196) paramet(876) }
{ state(1844) use(1261) util(961) }
{ research(1218) medic(880) student(794) }
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{ data(2317) use(1299) case(1017) }
{ age(1611) year(1155) adult(843) }
{ medic(1828) order(1363) alert(1069) }
{ signal(2180) analysi(812) frequenc(800) }
{ group(2977) signific(1463) compar(1072) }
{ sampl(1606) size(1419) use(1276) }
{ gene(2352) biolog(1181) express(1162) }
{ first(2504) two(1366) second(1323) }
{ intervent(3218) particip(2042) group(1664) }
{ activ(1138) subject(705) human(624) }
{ time(1939) patient(1703) rate(768) }
{ patient(1821) servic(1111) care(1106) }
{ use(2086) technolog(871) perceiv(783) }
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{ structur(1116) can(940) graph(676) }
{ high(1669) rate(1365) level(1280) }
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{ use(1733) differ(960) four(931) }
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{ survey(1388) particip(1329) question(1065) }
{ estim(2440) model(1874) function(577) }
{ decis(3086) make(1611) patient(1517) }
{ activ(1452) weight(1219) physic(1104) }
{ method(1969) cluster(1462) data(1082) }
{ method(2212) result(1239) propos(1039) }
{ detect(2391) sensit(1101) algorithm(908) }

Resumo

CKGROUND: The re-use of patient data from electronic healthcare record systems can provide tremendous benefits for clinical research, but measures to protect patient privacy while utilizing these records have many challenges. Some of these challenges arise from a misperception that the problem should be solved technically when actually the problem needs a holistic solution.OBJECTIVE: The authors' experience with informatics for integrating biology and the bedside (i2b2) use cases indicates that the privacy of the patient should be considered on three fronts: technical de-identification of the data, trust in the researcher and the research, and the security of the underlying technical platforms.METHODS: The security structure of i2b2 is implemented based on consideration of all three fronts. It has been supported with several use cases across the USA, resulting in five privacy categories of users that serve to protect the data while supporting the use cases.RESULTS: The i2b2 architecture is designed to provide consistency and faithfully implement these user privacy categories. These privacy categories help reflect the policy of both the Health Insurance Portability and Accountability Act and the provisions of the National Research Act of 1974, as embodied by current institutional review boards.CONCLUSION: By implementing a holistic approach to patient privacy solutions, i2b2 is able to help close the gap between principle and practice.

Resumo Limpo

ckground reus patient data electron healthcar record system can provid tremend benefit clinic research measur protect patient privaci util record mani challeng challeng aris mispercept problem solv technic actual problem need holist solutionobject author experi informat integr biolog bedsid ib use case indic privaci patient consid three front technic deidentif data trust research research secur under technic platformsmethod secur structur ib implement base consider three front support sever use case across usa result five privaci categori user serv protect data support use casesresult ib architectur design provid consist faith implement user privaci categori privaci categori help reflect polici health insur portabl account act provis nation research act embodi current institut review boardsconclus implement holist approach patient privaci solut ib abl help close gap principl practic

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