J Am Med Inform Assoc - Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting.

Tópicos

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Resumo

Large amounts of personal health data are being collected and made available through existing and emerging technological media and tools. While use of these data has significant potential to facilitate research, improve quality of care for individuals and populations, and reduce healthcare costs, many policy-related issues must be addressed before their full value can be realized. These include the need for widely agreed-on data stewardship principles and effective approaches to reduce or eliminate data silos and protect patient privacy. AMIA's 2012 Health Policy Meeting brought together healthcare academics, policy makers, and system stakeholders (including representatives of patient groups) to consider these topics and formulate recommendations. A review of a set of Proposed Principles of Health Data Use led to a set of findings and recommendations, including the assertions that the use of health data should be viewed as a public good and that achieving the broad benefits of this use will require understanding and support from patients.

Resumo Limpo

larg amount person health data collect made avail exist emerg technolog media tool use data signific potenti facilit research improv qualiti care individu popul reduc healthcar cost mani policyrel issu must address full valu can realiz includ need wide agreedon data stewardship principl effect approach reduc elimin data silo protect patient privaci amia health polici meet brought togeth healthcar academ polici maker system stakehold includ repres patient group consid topic formul recommend review set propos principl health data use led set find recommend includ assert use health data view public good achiev broad benefit use will requir understand support patient

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